WAMES @WAMESMECFS

WAMES acts as a voice for people with ME/CFS, PVFS their carers, families and professionals. Website: https://t.co/sL34tzYWHX Facebook and Instagram: WAMESMECFS Wales Joined April 2012

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WAMES @WAMESMECFS

33 minutes ago

MERUK highlights a small study that found that skeletal muscle oxygen diffusion, an important process in the body which ensures delivery of oxygen to muscle cells for energy production, may be impaired in both ppl with ME/CFS & in those with long COVID. tinyurl.com/mw4zzr97

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WAMES @WAMESMECFS

35 minutes ago

Dr Nancy Klimas, Michelle Bernstein & Dr Irina R Rozenfeld discuss the role of nutrition in autoimmune disorders. [1h 25 mins] +Chapters +Transcript tinyurl.com/4x5mec9f

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WAMES @WAMESMECFS

37 minutes ago

Do you shop online by PayPal? Why not name WAMES as your favourite charity, so whenever you give a donation to the PayPal Giving Fund you help us. Just add your preferences in your account details. tinyurl.com/bdfb2f22

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WAMES @WAMESMECFS

38 minutes ago

OMF briefly explains the importance of giving informed consent when you take part in a research trial. tinyurl.com/5e6dzbr7

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WAMES @WAMESMECFS

38 minutes ago

Cort explores mast cells in POTS, & Pelvic Venous Disease. "If you experience unresolved abdominal/pelvic/leg pain & the symptoms of ME/CFS/POTS/long COVID you might want to investigate pelvic venous syndromes." tinyurl.com/58dd5acy

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WAMES @WAMESMECFS

a day ago

"A Beginner's Guide to Evaluating Research" - a comprehensive, free resource that teaches anyone how to read and critically assess scientific literature. tinyurl.com/mpfsbk3e

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WAMES @WAMESMECFS

a day ago

'People’s attitudes towards disability, and physical and organisational barriers are what disable us, not our impairments.' More on the Social Model at disability Wales tinyurl.com/4bncdyjb

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WAMES @WAMESMECFS

a day ago

Prof Michael Peluso speaks abt therapeutic approaches 4 Long COVID that address viral persistence-the currently ongoing placebo-controlled outSMART-LC study, which aims 2 reduce persistent viral particles & improve condition of patients 18 mins +Transcript tinyurl.com/y4f3va6j

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WAMES @WAMESMECFS

a day ago

Prof Leonard Jason invites people with ME/CFS, their families, healthcare providers & researchers to participate in online survey about sx& definition, for study on barriers to reaching & obtaining ME research case definition. Anonymous. Takes 10-15 mins. tinyurl.com/ypjbz4xb

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WAMES @WAMESMECFS

a day ago

The Short Breaks Scheme supports unpaid carers of all ages in Wales to take a break from their caring role. Funding continues until March 2026. tinyurl.com/3ey94v6w

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WAMES @WAMESMECFS

a day ago

Mitochondria are found in nearly every cell of the body & generate about 90% of the energy needed to sustain life. BHC outlines research into mitochondrial dysfunction in ME/CFS. tinyurl.com/mu2d82dz

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WAMES @WAMESMECFS

2 days ago

Dr Jaime Tartar shares a conversation with Haylie Pomroy to tackle how stress impacts both our physical health and overall wellbeing, and how we can address it. [32 mins] +Chapters +Transcript tinyurl.com/386manra

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WAMES @WAMESMECFS

2 days ago

A report on the experiences of older Disabled people has been published, calling for new policy & practice to improve support for Disabled people & people with long-term health conditions in their 50s & 60s, to find & stay in work tinyurl.com/5fhrzbbt

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WAMES @WAMESMECFS

2 days ago

Citizens Advice can give help with a wide range of problems caused by money & daily life, including benefits, employment, sickness, how to handle debt & flexible working. Check out the website or contact them direct online or by phone. tinyurl.com/udz5weet

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WAMES @WAMESMECFS

2 days ago

Cort looks at the findings of studies of ME/CFS which include an exercise component and asks why long COVID studies are not also exploring exercise intolerance since PEM is recognised as a possible LC symptom. tinyurl.com/4dt8c6d8

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WAMES @WAMESMECFS

2 days ago

John Milne MP & cross party parliamentarians wrote to Wes Streeting with concerns about the ME/CFS strategy, questioning “the absence of strategic approach to biomedical research into ME/CFS as part of the Final Delivery Plan”. tinyurl.com/mrje7442

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WAMES @WAMESMECFS

2 days ago

Dr Jarred Younger highlights a new (small) clinical trial showing that solriamfetol reduces self-reported fatigue in ME/CFS. [10 mins] +Transcript tinyurl.com/y6zk4w6n

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WAMES @WAMESMECFS

3 days ago

The turn2us website gives financial info for many different situations: applying for benefits or grants; cost of living; carers; ill or injured; low income; older person etc. Plus find out if there is an adviser in your area. tinyurl.com/mfarumvz

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WAMES @WAMESMECFS

3 days ago

Dr Rozenfeld shares her formula for helping patients gain access to adequate care, the role of empathy in building strong therapeutic relationships, & how her work empowers patients to become advocates for themselves. [34 mins] +Chapters +Transcript tinyurl.com/3rz7hemc

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WAMES @WAMESMECFS

3 days ago

A new campaign is calling on UK gov & water industry to implement a water social tariff. Current social tariffs vary significantly between providers. One tariff would be a simpler way to provide fair & consistent support for people in financial hardship. tinyurl.com/4pndwuyu