Anna @anna_anx
Long COVID December 2021 Sydney, New South Wales Joined July 2014-
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Please sign this friends, even if you don’t have ME or Long Covid yourself. It would be great to have your support 💙
Please sign this friends, even if you don’t have ME or Long Covid yourself. It would be great to have your support 💙
Since there’s no “TEST” for Long COVID essentially everyone is “seronegative” @JAMA_current 📌Many doctors are Cynical about #longCOVID 📌Skepticism of Seronegative pts is not new 📌Prejudice is built into our training as Doctors Let’s hear patients👇 bit.ly/3npdHx5
this petititon needs less than 1000 more signatures to require a govt response on the lack of funding for ME and Long Covid research petition.parliament.uk/petitions/6305…
@AndreaJoliat @Dakota_150 @kaelyn_lynch @NatGeo Agreed, I get how a younger clinician disconnected from the historic context of “yuppie flu” might not see the issue with emphasizing how #pwME are actually typically go-getters (in order to dispel the myth of malingering) but the neurotic type A trope is just as pernicious.
Strange sitting in ER listening to my Bedmates talk to Doctors. Person to left has been given FND Diagnosis, despite developing Seizures out of nowhere. Person to right has no energy, can hardly get out of bed, Dr was worried about Depression. Long COVID is everywhere yet nowhere
“One of the big issues with #LongCovid… is that the people who are the most motivated to do something about it have the least amount of energy and ability to cause a scene,” @LisaAMcCorkell said calmatters.org/health/coronav…
Disappointed that the usually very good SMH/Age journos have quoted research by Cochrane backing Graded Exercise Therapy for Chronic Fatigue Syndrome when a ten second Google search shows
For @NatGeo, I wrote about post-exertional malaise—one of the most debilitating symptoms of long COVID and ME/CFS—and how it upends the notion of exercise as a universal medicine. nationalgeographic.com/premium/articl…
“A growing trove of research shows that PEM has physiological underpinnings… When ME/CFS patients & those with #LongCovid exercise, David Systrom discovered their veins were not moving blood to the heart efficiently, or ‘priming the pump.’”nationalgeographic.com/premium/articl…
I listened to the RECOVER clinical trial webinar to see if there was anything new from the 1st meeting. I know everyone is occupied with the FDA meeting, so I tried to multitask. #LongCovid 🧵
I'm done with platforming those who have harmed & smeared #MECFS pts for decades. There is actual research in LC & ME, but those who run 'fatigue clinics' in Aus have a vested interest in suppressing this research. It's a 'dog's breakfast' because you make it so.
So looks like multiple sclerosis affects little less than 1 million Americans. Everyone has heard of MS, there are many pharma companies working on treatments & many treatments are currently available. Even if you take the lowest estimates of ME/CFS/Long Covid/Post viral…
No-one who tells you not to mask will be there for you if you get Long Covid
The NIH has had $1 billion and more than two years to study long Covid. They haven’t enrolled a single patient in a clinical trial, and treatment studies have been repeatedly delayed. @betsyladyzhets of @MuckRock and I spent months investigating statnews.com/2023/04/20/lon…
Today @theage and @smh launch a series on Long COVID: the science, the patients, the economic effects, what we're going to do about it. First piece ran on the front page today - a deep dive into what we know, don't know, and *don't want to know* theage.com.au/national/steph…
This survey result from @qldhealth is getting reported as "long covid symptoms no different from the flu", but the study results are actually more concerning than the headline attempts - statements.qld.gov.au/statements/975…
Long Covid is trending….again. Here’s some facts. 1.9M people in the U.K. have long Covid, including an increasing number of children (currently 62,000). You can get long Covid even from an initially ‘mild’ SARS-CoV-2 infection #WearAMask #CleanAir #CovidIsntOver
It's tunnel vision. #LongCovid and #MECFS diagnostics and treatments need to be accelerated. The human and economic catastrophe created by ignoring #MECFS in 1984 cannot be compounded by a vaccine only strategy.
It's tunnel vision. #LongCovid and #MECFS diagnostics and treatments need to be accelerated. The human and economic catastrophe created by ignoring #MECFS in 1984 cannot be compounded by a vaccine only strategy.
And yet only $1.15 billion to research treatments for #LongCovid—which at least 16+ million already have and the vaccines don’t prevent. Maybe we should think of better ways to spend this $ (like upgrading air infrastructure and finding effective treatments for C19/LC).
And yet only $1.15 billion to research treatments for #LongCovid—which at least 16+ million already have and the vaccines don’t prevent. Maybe we should think of better ways to spend this $ (like upgrading air infrastructure and finding effective treatments for C19/LC).
Every therapeutic used for autoimmune diseases should be being trialled on #LongCovid patients right now. There is zero excuse for this pathetic lack of progress. And please stop with the 'these medications have risks'. We know. So too does abandoning people to suffer for years.
PhoebeDoherty @NyAWu2qa1Jd84B
0 Followers 127 Following
us_Mackenzie_ @UsMackenzi86520
18 Followers 2K Following
Judith @morelandjudith4
163 Followers 3K Following
Luna @Lethesh23970
3 Followers 160 Following Can we be good friends? I'm looking for a serious relationship
Nina A Tomei, MD @doctormom63
4K Followers 2K Following Life derailed #Sjogrens #MECFS #POTS #LongVax Child with #LongCovid Surviving Not Living. Sick Not Tired. Tweets not medical advice. We just want our lives back
Bethany Wormald 🇦�.. @BethanyJPoore
88 Followers 269 Following Guinness World Record holder x3 (running in costume). Jogger now bc long covid and POTS. Ex-flack. Sydney / Fingal Bay.
Melina @melinalinalina
323 Followers 507 Following Just a sick girl | this is an alt acct for low spoon vents #LongCovid #MECFS #FBLC
JJ @M02181653M
2K Followers 5K Following #TreatLongCovid #LongCovid #Notrecovered #MECFS #MillionsMissing #PwME #BC007
thais @thc_suz
381 Followers 3K Following
Covid Castaways @CovidCastaways
5K Followers 4K Following Covid Castaways focuses on helping those w/ #LongCOVID & COVID #VaccineInjury. LC - 3/2020. 💚💜“𝓢𝓾𝓻𝓿𝓲𝓿𝓮 𝓣𝓲𝓵 𝓨𝓸𝓾 𝓒𝓪𝓷 𝓣𝓱𝓻𝓲𝓿𝓮”
Helli @Helli_Lene
168 Followers 690 Following #ME/CFS, #Kölle, #stolz_vom_kleinen_Schnitzel_geblockt!
Tired @EndemicPrepared
3K Followers 4K Following healthcare educator, Population Health, RN/RM/ MBA. Ex-runner, cyclist, Perpetual Eye Roll since Jan 2020. You might know me on other platforms @TiredT.bsky
Sinéad @spoonless_me
2K Followers 821 Following dog lover • plant mad • software engineer • chronically ill #CanWeTalkAboutIt #PostVacSyndrome #MECFS #LongCovid #SFN #POTS #Fibromyalgia
Nathalie Robin Justic.. @welcomewords
8K Followers 9K Following Writer. Photographer. Traveller. Cook. Married to my best friend: 19 yrs. #MyalgicEncephalomyelitis: 3+ decades. 80-100% bed bound: 5 1/2 yrs. Empathy is key.
Prof. Michael Sharpe .. @SharpeParody
382 Followers 360 Following The unconscious ramblings of an errant Oxbridge Professor. I am right no matter what anyone says! Change your mind Change your world ✨✨✨
Colin O’Malley @comaly93g42b84
3K Followers 5K Following “If wars can be started by lies, peace can be started by truth” Julian Assange
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
_____________________.. @BaszkoM
2K Followers 5K Following ME-dically gaslit for 9yrs. Literal dopamine hit from blocking terfs, ableists and racists. Esos son Reebok o son Nike... @baszkom.bsky.social
Karine @koat71
699 Followers 2K Following Teacher.Longhauler.Currently on pause. French-Welsh 🇨🇵🏴 #CovidLong March 2020. #TreatLongCovid #LongCovid #apresJ20
Liv @oliviaahliv
2K Followers 614 Following San Francisco born and raised. About me: “she’s not warm and fuzzy but she gets the job done”- someone I worked with
Roweena @r2ph
5K Followers 5K Following Liquorice addicted Irish lesbian feminist dyslexic foodie with achalasia. Owned by Pixie Drama my cat. Trinity College Dublin. #LongCOVID #TreatLongCovid
M_P @MchP66592467
3K Followers 2K Following 35y/o w Post-Acute SARS Cov2 Syndrome/ME/CFS,POTS,MCAS.Fmr Fin Analyst-now unable 2 work. ME/CFS=biggest Med scandal in history.Experiments w novel therapeutics
Pwoiter @pwoiter
956 Followers 4K Following I’ve seen a few memes on Facebook so that makes me an expert on everything. #MECFS x 2 carer.
Dr Anjali Agarwal @Dranjaliphysio2
1K Followers 3K Following Health care Professional, consultant Physiotherapist. Lifestyle consultant. Advocacy Co Director Long covid Physio, treats #EDS #Hypermobile #POTS
Dr. Melissa Geraghty,.. @MindfulDrG
6K Followers 6K Following 💢 Director of Mental Health & Support @US_Pain 💢 Medical Gaslighting Sensitivity Trainer 💢 CEO of Phoenix Rising with Dr. G 💢 Keynote Speaker 💢#IamRare
Matt Lazell-Fairman @mfairma
961 Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
Katya Orlova @KOsnp
583 Followers 2K Following Human Genetics PhD | Genetic Counselor by training. Views own
Katya @BoundedEnergy
421 Followers 965 Following Long covid since Sep 21. I make the Bounded Energy podcast with my buddy Hannah 👌 and weekly video shorts - all on life with LC🤗❤️
Crypto_zoologist Ⓥ @Cryptozoologis7
438 Followers 427 Following ME/CFS, vegan, crypto curious, lover of laffs
Debbie Seymour @debbie_seymour
2K Followers 779 Following This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving. #LongCovid #MECFS #POTS
Devaki @DevakiDevay
397 Followers 624 Following Town crier with ME/CFS + writer + fiction CE @ Barren + Tin House 23 ◇
N Rog @Nc_Rog
1K Followers 2K Following Once highly active. Now mostly housebound due to Long Covid and resulting ME/CFS and POTS. First waver March 2020. Yes BEFORE the vaccine.
KöniginErl @konigin_erl
851 Followers 2K Following #MECFS seit 25J. #LongCovid #NotRecovered MECFS ist somatisch!#IchBinArmutsbetroffen #millionsmissing #NoAFD #FckNazis #Narzissmusintoleranz ein 🖤 für Gruftis
Pekka Puupää 🇺�.. @Raichu_pokem0n
510 Followers 3K Following
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
eIisa @mildTin
1K Followers 1K Following Previously lurking, now on here for #LongCovid #MECFS updates. "The world is awful. The world is much better. The world can be much better."
Steve Chalmers @FStevenChalmers
1K Followers 3K Following Let's tear down silo walls in the data center. Spent a decade each in servers and storage, then networking. Consultant to Daedaelus Corp. Retired from HPE.
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Friesein @Friesein
8K Followers 6K Following Clean air is a human right. SARS2 is a severe pathogen disabling millions. Let's use scientific modeling and engineering to solve both. Listen to patients.
Dierdre Sherman @DierdreSherman
82 Followers 283 Following #fblc Longhauler since Mar 2020, single mother, student, couch potato, animal lover, crazy cat lady, pan, 🏳️🌈ally, #ADHD, neurodivergent, cèile dè
Wen Dombrowski MD MBA.. @HealthcareWen
37K Followers 40K Following Convergence @CATALAIZE… 🌐 #Physician #Geriatrics #Fascia #Ecosystems #Tech #Data #AI #Design #Ethics #Policy #Aging #Disability #HomeCare #SDoH †♫🥁💃
Colin Pidgeon #CleanA.. @baldypidge
2K Followers 1K Following Above ground. Mostly upright. Ireland Cricket fan. Poet. Painter. #LongCovidAdvocate Professional member of the #NerdCircle. Views not those of my employer.
Long Covid Commentary @LongCovidComms
3K Followers 4K Following Long covid patient who thinks the world needs more resources to solve and treat long covid and me/cfs #FBLC #pwLC #LongCovid #mecfs #pwME treat #PEM
LongCovidPodcast @longcovidpod
5K Followers 4K Following Podcast hosted by Jackie Baxter, bringing together lived experience, medical experts, researchers & solidarity on this lonely #LongCovid journey #FBLC
Solve ME/CFS Initiati.. @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & post-infection diseases widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/84TBR9Fgzj
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Melina @melinalinalina
323 Followers 507 Following Just a sick girl | this is an alt acct for low spoon vents #LongCovid #MECFS #FBLC
Rachel Fairbank @rachel_fairbank
2K Followers 962 Following Freelance science writer, essayist, fan of the sweet science. Opinions, of which I have many, are all mine. she/her
Nicholas Boyd-Gibbins.. @NBoydGibbins
2K Followers 528 Following UCL | Kyoto Univ. | CSO | cell engineering, cell therapy, autoimmune, long Covid, iPSCs, regenerative and predictive medicine, cancer, genetics and neuroscience
NotRecovered @Not_Recovered
6K Followers 206 Following We share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.
Bateman Horne Center @BatemanHorne
6K Followers 1K Following Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating ME/CFS, FM, Long COVID, and related conditions.
Energy Deficit 🔋 @Kim77852906
874 Followers 1K Following Maximise your energy envelope & boost usable hours with assistive technology. ME/CFS & L-C community EnergyDeficit@disabled.
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Tom Molmans, MD @Molbaas
2K Followers 885 Following Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Ravi Veriah Jacques @RaviHVJ
6K Followers 995 Following On a long twitter break | 2021 Schwarzman Scholar | @Stanfordhistory alum | Covid longhauler | Long Covid & ME/CFS Advocate 🇲🇾🌲✨🎻
S.Jones @seastarsal
1K Followers 2K Following Teacher, librarian, ME/CFS cartoonist. ME/CFS for 32 years.
Maureen Hanson @DrMaureenHanson
6K Followers 145 Following I am a Professor in the Molecular Biology and Genetics Department at Cornell University in Ithaca, NY.
Peter Vogel @psvbluemts
5K Followers 2K Following Australian inventor turned lawyer. Mainly social justice cases, but my civil litigation practice pays the bills and funds my pro-bono work.
Isolating Community @isolatingcmnty
3K Followers 4K Following A community sheltering from the pandemic. A community that minimizes risk. Join us.
Junior @nolimitjuni0r
2K Followers 823 Following 22 year old long hauler fighting for his life back. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.
Michelle R. Zimmerman.. @mrzphd
6K Followers 2K Following To inspire passion, the unexpected, learning from failure in a new generation • Author • MVP • NCCE Trainer • #MIEExpert • #MicrosoftEdu • #ShowcaseSchool
Lauren @Lauren_phill
2K Followers 2K Following Used to be a lawyer before disabled by #mecfs #MEspine #chiari #pots #eds #tetheredcord she/her *never legal advice*
Ivan l'Africain @AlterIvan1
2K Followers 3K Following Linguistics, UI/UX/motion #BLM #animalcruelty CACA (Covid minimizers ArmChair Aeconomics) 💩= Trickle-down, Smith's Invisible Hand & Mises Cultists
Avik Roy @AvikRoy74969264
567 Followers 461 Following CSO Simmaron Research @RedefiningMECFS; Co-Founder/Sci. Director of Sotira Scientific: Professor (adj) @UWM; Neurobiology; ME/CFS; Drug design and development
Sinéad @spoonless_me
2K Followers 821 Following dog lover • plant mad • software engineer • chronically ill #CanWeTalkAboutIt #PostVacSyndrome #MECFS #LongCovid #SFN #POTS #Fibromyalgia
Recovery in the Bin #.. @RITB_
12K Followers 1K Following User Led critical theorist & activist group. Anti-Ableist. #StopSim #Neorecovery #PdInTheBin https://t.co/L4jyTzOJ5R
Dr Graham Lloyd-Jones @DrGrahamLJ
9K Followers 610 Following Consultant Radiologist. Medical educator. Director @RadMasterclass. Clinical anatomist. Linking poor #OralHealth to #ChronicDisease of the body. Views mine.
Adam R. Kosiorek @neu.. @arkosiorek
8K Followers 547 Following Research Scientist at DeepMind. ML generalist working on generative models. Was at below 50% capacity due to #LongCOVID, now *almost* recovered.
ABBY 🇵🇸 @AbbyMachines
1K Followers 868 Following abbymachines abbymachines abbymachines abbymachines 🏳⚧ new EP 🅰🅱️ at https://t.co/h9KkIyqrpF 🏳⚧ (some tweets are automated)
Colin O’Malley @comaly93g42b84
3K Followers 5K Following “If wars can be started by lies, peace can be started by truth” Julian Assange
suresh @MsuSuresh
168 Followers 151 Following Senior lecturer at Faculty of Health and Life Sciences (FHLS) at Management & Science University (MSU)
Raoul Schendel @Raoul__Lucas
2K Followers 485 Following 25 I ME/CFS seit 2021 I https://t.co/lXLUhs2Prj I WING @uni__augsburg I DE II EN
Long Covid on the sho.. @LC_ontheshort
3K Followers 174 Following The most prominent research on the causes of #LongCovid in a quick and digestible manner | Understanding raises awareness | by @HerbertoDhanis
Red Heron @MelissaJKali
183 Followers 251 Following 2.5 yrs Long Covid, Autistic Wanderer, Former Hospice CNA, Anarchy, Skoolie-Biatch, Bassist, Art Collector, Architecture Whore, and all around WHORE.
A/Prof Nada Hamad @nadahamad
2K Followers 1K Following TCT haematologist, clinical researcher, lymphoma doc, mother of 3, intersectional feminist and ANZTCT president. She/her. Opinions are my own.
Jess Davis @jesskatedavis
4K Followers 5K Following Climate Reporter https://t.co/oZAZxhnZr9 Views mine not my employer's.
Nick Güthe @NickGuthe
5K Followers 694 Following
Public Herald @PublicHerald
3K Followers 2K Following Award-winning investigative newsroom. @newsCOUP podcast. #RightsOfNature documentary INVISIBLE HAND w/ EP @MarkRuffalo available for streaming/screenings.
PoP NB @PoPNB_kindness
3K Followers 1K Following
_____________________.. @BaszkoM
2K Followers 5K Following ME-dically gaslit for 9yrs. Literal dopamine hit from blocking terfs, ableists and racists. Esos son Reebok o son Nike... @baszkom.bsky.social
emwins @emmyremmyloo
609 Followers 425 Following
J. P. Gownder (கவ.. @jgownder
25K Followers 445 Following VP analyst @Forrester. Opinions mine. Future of work + tech. Harvard MA & BA. Multiracial POC. Born: 326ppm CO2.
Roweena @r2ph
5K Followers 5K Following Liquorice addicted Irish lesbian feminist dyslexic foodie with achalasia. Owned by Pixie Drama my cat. Trinity College Dublin. #LongCOVID #TreatLongCovid
Kat Dorrough @KatDorrough
944 Followers 2K Following Mom, twin, flutist, singer/songwriter, nerdy knitter, history geek, master of sarcasm & hyperbole, empath, dork, She/Her LC: March 2020 #CountLongCovid #FBLC
Dr. Lisa Iannattone @lisa_iannattone
74K Followers 2K Following Assistant Professor of Dermatology @McGillMed. MD/residency @med_umontreal. Fellowship @HarvardDerm. Focus: complex medical dermatology and medical education.
nunosep @nunosep1
656 Followers 87 Following Researcher and eternal curious about science. Head of the Immune-Stats group with special interest on tropical diseases and ME/CFS.
Ramy @ramyvaldes
2K Followers 615 Following Attorney, part time poet, musician. Life on pause due to mecfs.
NHMRC @nhmrc
54K Followers 2K Following National Health and Medical Research Council: Australia's peak body for health and medical research, evidence-based health guidelines, and health ethics.
Eliza Charley | Actre.. @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Brain Frog @NearFights
388 Followers 907 Following #longcovid patient advocate. #curelongcovid March 15th is International Long Covid Awareness Day
M_P @MchP66592467
3K Followers 2K Following 35y/o w Post-Acute SARS Cov2 Syndrome/ME/CFS,POTS,MCAS.Fmr Fin Analyst-now unable 2 work. ME/CFS=biggest Med scandal in history.Experiments w novel therapeutics
MB @Mjbt223
1K Followers 504 Following Long COVID sufferer of 2+ years. Made this account to gain/share information to better inform myself and others about LC. As well as raise awareness.
Dr Anjali Agarwal @Dranjaliphysio2
1K Followers 3K Following Health care Professional, consultant Physiotherapist. Lifestyle consultant. Advocacy Co Director Long covid Physio, treats #EDS #Hypermobile #POTS
Dr. Dale Bredesen @DrDaleBredesen
9K Followers 23 Following Dr. Dale Bredesen is the author of The End Of Alzheimer's, the Chief Science Officer of Apollo Health, and a pioneer in brain health research.
@evangrizlon Lana Del Rey all day keeps the boyfriends at bay
by the power invested in me by our great nation, I shall complete all tasks with which I have been encrusted 😌
Is it time for this again?
Question: Did Ron Davis say that he was turned down for grant money on that basis that NIH deemed his proposals to be observational and not hypothesis testing? Hasn't most of RECOVER been all observational so far? #MEcfs #ME #MyalgicE #LC #LongCovid
this petititon needs less than 1000 more signatures to require a govt response on the lack of funding for ME and Long Covid research petition.parliament.uk/petitions/6305…
I'm part of this working group & will be particularly focused on metabolism (including microbial metabolites 🥳). I was very happy when I saw the list of members. A-players, indeed The community will have opportunities to give input during the process. I'll keep you posted.
Capping off a week of frustration with NIH here’s at least one positive development: New working group stacked with A-players aligned with patients’ interests will develop a research roadmap w/ a focus on translational studies & clinical trials. ninds.nih.gov/about-ninds/wh… #MECFS
Hobart — a city with no passenger trains or trams, a single ferry route and limited bus patronage — is about to get a 23,000-seat stadium close to the CBD. How will crowds get to and from there? ab.co/3LDLU5k
I've just done a quick calculation about the cost of the proposed new stadium in Hobart....750mill to seat 25 thousand people ... that equates to a cost of 30 mill per seat. Question.. have we lost our collective minds?
When people describe medical care as 'medieval', they mean it in a pejorative way, implying it's sub-standard. But when #LongCovid patients say medical care is 'medieval', it's literally true. When medicine ignores the extensive biomedical science, you get no real-world progress.
@loscharlos @UCSF Why is this even politically advantageous at this point? It's just so obviously not true.
@loscharlos @UCSF Monica Gandhi is malicious this clearly demonstrates that.
@loscharlos @UCSF "I don't see how mild disease is causing longer symptoms?" How are these people considered medical professionals? Many (including me) had mild onset and still sick three years later. #smh
Australian crypto friends: stay away from Swyftx A story in 3 parts below
I made a map of the prominent AI discource clans as I see them now. What frustrates me is the lack of anti-capitalist leaders in the "dreamers" clan, and the rifts between the 3 groups despite shared goals, e.g. doomers and skeptics could collab on regulation
Strange sitting in ER listening to my Bedmates talk to Doctors. Person to left has been given FND Diagnosis, despite developing Seizures out of nowhere. Person to right has no energy, can hardly get out of bed, Dr was worried about Depression. Long COVID is everywhere yet nowhere
Disappointed that the usually very good SMH/Age journos have quoted research by Cochrane backing Graded Exercise Therapy for Chronic Fatigue Syndrome when a ten second Google search shows
Nothing is more important re #LongCovid research right now than understanding the underlying pathology: how it all connects together, from root-causes to symptoms, & how it can be targeted with treatments that intervene in, disrupt or resolve the ongoing pathological process.
For @NatGeo, I wrote about post-exertional malaise—one of the most debilitating symptoms of long COVID and ME/CFS—and how it upends the notion of exercise as a universal medicine. nationalgeographic.com/premium/articl…
“A growing trove of research shows that PEM has physiological underpinnings… When ME/CFS patients & those with #LongCovid exercise, David Systrom discovered their veins were not moving blood to the heart efficiently, or ‘priming the pump.’”nationalgeographic.com/premium/articl…
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