Ramy @ramyvaldes

Attorney, part time poet, musician. Life on pause due to mecfs. Florida Joined September 2009

Tweets

5K
Followers

2K
Following

615
Likes

8K

Neb 🤙 @Nebulow

9 months ago

I want to live. Next time I post I hope to share a link to a GoFundMe. I want surgery in Spain. Fusion of my neck will save my life from CCI and leave me with me/cfs which is intolerable on its own but I hope to hang in there long enough to see treatments become available.

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Ramy @ramyvaldes

9 months ago

Who is this Ramy2.0? He is a clone I bet, or maybe a twin I didn't know about?

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Ramy @ramyvaldes

9 months ago

Hi there guys. I gained access to my old account lol

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Ramy @ramyvaldes

11 months ago

It happened again, I guess if this is accurate and I believe it is, then I have sleep apnea. Another fun diagnosis to add to my list of health conditions.

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Ramy @ramyvaldes

11 months ago

As I was beginning to fall asleep I got woken up by the device who vibrates if your oxygen is tanking too low. It got to 84 before it started ringing and woke me up. Device be like....dude you are dying, wake up please 😆

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Ramy @ramyvaldes

11 months ago

Lol, supraventricular tachycardia because I took a shower.

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Ramy @ramyvaldes

11 months ago

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Ramy @ramyvaldes

11 months ago

Lol

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Ramy @ramyvaldes

11 months ago

😆

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Ramy @ramyvaldes

11 months ago

🤣🤣

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Ramy @ramyvaldes

11 months ago

So what is considered resting for purposes of doing the lactate test? Say for example, I am sitting down on my laptop (which I struggle to do quite a lot) but a healthy person would have no problem doing that and it would surely be considered "at rest" right?

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Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice.
https://t.co/jqc4g8cFLa
https://t.co/lKQezPwtQs

LongCovidPharmD @organichemusic

37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs

charlos @loscharlos

23K Followers 1K Following 😎🌁🎷 #LongCovid March 2020 😵‍💫

John Kennedy @j_b_kennedy

17K Followers 7K Following music boats books humour photos music

Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked

Hannah Davis @ahandvanish

60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked

Marky Mark @MrkStdngr

12K Followers 6K Following #ME #CFS #CCI #POTS #MCAS

MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate

GeoCK @GeoEduOne

Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5

Naomi Harvey PhD #Wea.. @Naomi_D_Harvey

15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5

Director of Sci & Med Outreach, #MEAction
Stanford Med
#ME, #EDS, #POTS, #LongCOVID
Views my own
exceedhergrasp1@bsky.social

It'sME(Jaime) @exceedhergrasp1

20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]

Brian Fog @useless_priest

6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️‍🌈 | 🇮🇪

Billy Hanlon @bhanlon15

12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally

29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

Lizzy H @hopefullizzy

6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

Ippokratis @IpLongCovid

7K Followers 1K Following Physical education and sport science BSc #LongCovid

Chris J. Maddison @cjmaddison

18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.

Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.

Pam Bishop, PhD @pamelarbishop

10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.

🚀Space physicist➡️#MECFS researcher🧪
Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨

Tess Falor, Ph.D. | @.. @tessfalor

9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨

Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤

elle W @elleW902

3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤

💌allietran@viralnationtalent.com 👹Horror content creator 900k+ Chronic illness advocate MECFS/POTS/LC

Allie Tran @allietrann

3K Followers 1K Following 💌[email protected] 👹Horror content creator 900k+ Chronic illness advocate MECFS/POTS/LC

Dan Wyke 🦠➡️�.. @Dan_Wyke

13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet

35y/o w Post-Acute SARS Cov2 Syndrome/ME/CFS,POTS,MCAS.Fmr Fin Analyst-now unable 2 work. ME/CFS=biggest Med scandal in history.Experiments w novel therapeutics

M_P @MchP66592467

3K Followers 2K Following 35y/o w Post-Acute SARS Cov2 Syndrome/ME/CFS,POTS,MCAS.Fmr Fin Analyst-now unable 2 work. ME/CFS=biggest Med scandal in history.Experiments w novel therapeutics

Amy @alexandrite113

6K Followers 844 Following Long Covid to very severe ME/CFS to mod/severe ME/CFS. Tweeting into the void. DX'd autistic ✨

Greg W. Bingandadi @Eastern_Marquis

18 Followers 118 Following Vetpreneur | Renaissance Man | Everything Equine 🐎

Marni Gold Creative @MarniRGold

7K Followers 2K Following Creator-Singer-Teacher-Mom-Skincare/makeup❤️ Long Covid-CFS-Dysautonomia🥄 ⬇️80glp1 @mgoldcreative on insta & TikTok

Vallie Hallock @vall_hallo

29 Followers 5K Following

Maci Fitzhugh @MaciF747

40 Followers 5K Following

Alvamarshal @alva_psycho

20 Followers 92 Following Best of me is yet to come

Windy秋良 @928920471

163 Followers 1K Following 上帝爱你，当你犯错犯罪跌倒，上帝会给你第二次机会站起来。只要你来到他面前，认罪悔改。所以不要放弃希望，不要放弃信心!

Aisla Eva @e_aisl

70 Followers 5K Following

Annabel Ferrusi @anna_ferru

61 Followers 5K Following

Rainer S. Cheis @rainer_s_cheis

599 Followers 314 Following 💚☕🍪🍀 #mecfs #CovidIsNotOver yet #ImpfenSchützt #CleanAir #WirSindMehr #noAfD achja #Klimakrise ME/CFS seit 1998 Gen X

ARNOLD SCHWARZENEGGER @ARNOLDSCHW28338

57 Followers 273 Following I'm giving out big prize to all my fans.follow and message me to be a lucky winner.

Foday kabba dumbuya @KabbaDumbu16844

110 Followers 1K Following

Netese @Netese13193

6 Followers 1K Following

Nevaeh Prickett @nev_pricke

46 Followers 5K Following

Zarah Golom @GolomZarah94008

65 Followers 5K Following

Cancer patient and author of Terminating Terminal Terminology. Tired of people dying before they die. Live joyfully as your pulse beats!
https://t.co/66KpLPbTbE

RHughesPh.D. @rhughesphd

2K Followers 644 Following Cancer patient and author of Terminating Terminal Terminology. Tired of people dying before they die. Live joyfully as your pulse beats! https://t.co/66KpLPbTbE

Rachel smith @JessSamTon44901

220 Followers 5K Following Smith 💡💡💡💡💕

I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.

Nereyn @Nereyn29127

52 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.

Seletha @Seletha315621

21 Followers 3K Following “Working from the heart with passion is an art!”

Ruby Michelle @Rubymich1234

433 Followers 5K Following

Cheryl @Cheryl667750150

91 Followers 3K Following

Charlie @Charlie__0123

30 Followers 177 Following A dog with attitude. Tweets a lot about long covid. Bites the ankles of trolls.

Lynette Angel @LynetteAng41143

71 Followers 536 Following It is better to be hurt by the truth than to be deceived by lies

Unix, Security, Networks. Security@BlueCat. Hobbies: Open Source, NetBSD, Photography, Magic, Martial Arts, Psychology, 3D (Lightwave & Blender), Blacksmithing

David Maxwell @David_W_Maxwell

875 Followers 2K Following Unix, Security, Networks. Security@BlueCat. Hobbies: Open Source, NetBSD, Photography, Magic, Martial Arts, Psychology, 3D (Lightwave & Blender), Blacksmithing

VanBuren Vandiveer Ca.. @BlackVarier

65 Followers 272 Following We understand that the most valuable investment we can make is in our people.

Serious tweets by a serious person. Memes, sarcasm, self deprecation & dark humor. Geriatric millennial. Mom of 3. Librarian.📚 Figure Skater.⛸️

saraharasaraharasarah.. @mcslog

12K Followers 13K Following Serious tweets by a serious person. Memes, sarcasm, self deprecation & dark humor. Geriatric millennial. Mom of 3. Librarian.📚 Figure Skater.⛸️

Director of Operations, Partnership for Inclusive Disability Strategies, disability rights activist, writer, JD, supports disabled Ukranians, opinions mine

Melissa Marshall @melissamarsall

1K Followers 4K Following Director of Operations, Partnership for Inclusive Disability Strategies, disability rights activist, writer, JD, supports disabled Ukranians, opinions mine

Flor 🥀 @lugaresxcomunes

1K Followers 1K Following we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME

simon metcalfe @sjmlondon

517 Followers 2K Following #LongCovid all views my own.

Marcos Sánchez Murie.. @MarcosSnchezMu1

195 Followers 676 Following

MatteKat2 @mattekat2

88 Followers 194 Following

Founder @antisemitismeye,Work in Music record industry 1986 onwards,violinist, #Zionist,#MEcfs,Cats🐈,#Jewish,Likudnikit, #longCovidVaccine Pfizer EM4965

AmbrosineShitrit 🇮.. @AmbrosineShitr2

1K Followers 2K Following Founder @antisemitismeye,Work in Music record industry 1986 onwards,violinist, #Zionist,#MEcfs,Cats🐈,#Jewish,Likudnikit, #longCovidVaccine Pfizer EM4965

Find treatments for Long Covid, ME, VaxInjury, POTS, & Sjogrens chronic illnesses. Tweeting for spouse, ME survivor of 25+ years. @petecaruso.bsky.social

Pete Caruso @PeteCaruso_

435 Followers 852 Following Find treatments for Long Covid, ME, VaxInjury, POTS, & Sjogrens chronic illnesses. Tweeting for spouse, ME survivor of 25+ years. @petecaruso.bsky.social

AnitaTexasSunshine @TexasSunshine18

316 Followers 2K Following searching medical scientific articles #MS #MECFS 38 yrs #neuroimmune 🧬#HHV6 #EBV #lowNK🧪👒🐴🌵🌞🌎🍀💚💐 🏔️ 🌊

disabled RN, BA sociology, LC March ‘20, Wuhan 3/20, omicron 4/22, Eris 10/23. Navy wife, mom, Nana, believe in kindness & compassion.

Lisa Seymour Michalek @michalek_lisa

883 Followers 1K Following disabled RN, BA sociology, LC March ‘20, Wuhan 3/20, omicron 4/22, Eris 10/23. Navy wife, mom, Nana, believe in kindness & compassion.

Jane @minorescalation

55 Followers 159 Following ADHD• LSD •Fashion • Bow Hunter Syndrome & co•

Post-Doc Researcher SETU. HECAT 2020. Political Economy of Finance, Financialisation, Soc of Development, IPE, CPE, Labour Markets. #LongCovid

Patrick Gallagher @patrickG731

2K Followers 3K Following Post-Doc Researcher SETU. HECAT 2020. Political Economy of Finance, Financialisation, Soc of Development, IPE, CPE, Labour Markets. #LongCovid

Josh @Josh06758161

89 Followers 308 Following Be the best you. #pwME

Diagnosed with #MECFS and #POTS. Looking for a treatment. #Dysautonomia #Millionsmissing #LongHauler #LongCovid #Apheresis #SteroidPulse #IVIG #BC007 #Rituximab

Long Covid Sufferer M.. @LCsuffererMECFS

2K Followers 2K Following Diagnosed with #MECFS and #POTS. Looking for a treatment. #Dysautonomia #Millionsmissing #LongHauler #LongCovid #Apheresis #SteroidPulse #IVIG #BC007 #Rituximab

A mirrorbox and map taking messages from people with ME/CFS or long COVID to places they love but can no longer get to #ACEsupported #socialart #missingmillions

bethereificould @bethereificould

604 Followers 1K Following A mirrorbox and map taking messages from people with ME/CFS or long COVID to places they love but can no longer get to #ACEsupported #socialart #missingmillions

Ibn Djouroufi @IDjouroufi

23 Followers 345 Following Book, Science, Football

Dr Andrew Wood @DrAndrewGWood

2K Followers 961 Following Performance Psychologist. Family Man. Doing utmost to recover from Long Covid ✌️👊.

Me?…Forensics, furry friends (especially Labradors!) & some creativity! Founding Member @long_covid. Views my own. https://t.co/WZjZFGNOo4. #LongCovid #FBLC

Nikki S. @NikkiS_MCSFS

1K Followers 1K Following Me?…Forensics, furry friends (especially Labradors!) & some creativity! Founding Member @long_covid. Views my own. https://t.co/WZjZFGNOo4. #LongCovid #FBLC

Maria-louise Williams @Mariararoo

1K Followers 3K Following Severe M.E warrior (One of the missing millions). Crohn's disease in remission.

Kad @DruistKad

95 Followers 296 Following

Sebas @sebajones

511 Followers 1K Following Literary Fiction and em dash fan. Long Covid since 2020. Retired Junglist. Guiri Madrileño.

#LongCovid #ImmuneDeficiency #Homeless 4+ yrs w/o real treatment or gov't aid & #Crowdfunding 2 live, 📌 for #MutualAid boosting, #PwLC #FBLC

🐸 Froglet @froglet80

2K Followers 1K Following #LongCovid #ImmuneDeficiency #Homeless 4+ yrs w/o real treatment or gov't aid & #Crowdfunding 2 live, 📌 for #MutualAid boosting, #PwLC #FBLC

ME/CFS Münster @CfsMunster

1K Followers 2K Following just another #pwME living in Münster | disabled by #MECFS | https://t.co/1d5WI6rtAb

Writer and editor on pause due to Long Covid/vaccine injury since 2021. Severe and fully bedbound since 2023. ME/CFS | POTS | hEDS. he/him

Himmat @himmatb15

954 Followers 664 Following Writer and editor on pause due to Long Covid/vaccine injury since 2021. Severe and fully bedbound since 2023. ME/CFS | POTS | hEDS. he/him

LongCovidPharmD @organichemusic

37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs

charlos @loscharlos

23K Followers 1K Following 😎🌁🎷 #LongCovid March 2020 😵‍💫

John Kennedy @j_b_kennedy

17K Followers 7K Following music boats books humour photos music

Hannah Davis @ahandvanish

60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked

Marky Mark @MrkStdngr

12K Followers 6K Following #ME #CFS #CCI #POTS #MCAS

GeoCK @GeoEduOne

Naomi Harvey PhD #Wea.. @Naomi_D_Harvey

15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5

Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation

Resia Pretorius @resiapretorius

27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation

It'sME(Jaime) @exceedhergrasp1

20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]

Brian Fog @useless_priest

6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️‍🌈 | 🇮🇪

We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI

Prof. Akiko Iwasaki @VirusesImmunity

220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI

Billy Hanlon @bhanlon15

12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally

Lizzy H @hopefullizzy

6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

Ippokratis @IpLongCovid

7K Followers 1K Following Physical education and sport science BSc #LongCovid

Chris J. Maddison @cjmaddison

18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.

Pam Bishop, PhD @pamelarbishop

10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.

Tess Falor, Ph.D. | @.. @tessfalor

9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨

elle W @elleW902

3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤

Putrino Lab @PutrinoLab

34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.

We share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.

NotRecovered @Not_Recovered

6K Followers 206 Following We share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.

News and updates about treatment trials for Long Covid, ME/CFS, POTS, and other post-viral and related illnesses. DM if participating in a trial or interested.

Post-Viral Trials New.. @postviraltrials

4K Followers 157 Following News and updates about treatment trials for Long Covid, ME/CFS, POTS, and other post-viral and related illnesses. DM if participating in a trial or interested.

Fibromyalgia/CFS, Dysautonomia. Looking for ways to fight my debilitating, su!c!dal and hell condition. Views are strictly personal. Please be kind

Fight @WallStreet2021

32 Followers 255 Following Fibromyalgia/CFS, Dysautonomia. Looking for ways to fight my debilitating, su!c!dal and hell condition. Views are strictly personal. Please be kind

Andrea Joliat @AndreaJoliat

1K Followers 2K Following Advocate for research and support for all who suffer from the neglected illness MEcfs. Including my son.

Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics.
@Ody@disabled.social
🌌 OdyOdy.b...

Ody @OdyO11

3K Followers 5K Following Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @[email protected] 🌌 OdyOdy.b...

poetry | concrete poetry | postdigital writing | crip | disability justice | swedish/english | instagram/diktgymnasiet | https://t.co/aREdTFectY

diktgymnasiet @diktgymnasiet

Hannah Siden @hannah_siden

882 Followers 1K Following Writer | Director | Producer | Curiouser and curiouser!

emily fraser 🌿🐌.. @emilyesfraser

5K Followers 4K Following Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet

Henriëtte Raap-Schee.. @HenrietteRaap

1K Followers 797 Following Sinds eind 2021 #longcovid

#LongCovid Scientific Consultant
Hon Research Fellow, Lund Uni
PhD Nutrition & Metabolism
Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots

Harriet Carroll: Long.. @angryhacademic

8K Followers 4K Following #LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots

#Mecfs & #Pots since 2012.
Currently moderate/severe and mostly housebound.

🏳️‍🌈 She/her

From the river to the sea, Palestine will be free 🇪🇭

Hrefna @hrefnask

1K Followers 868 Following #Mecfs & #Pots since 2012. Currently moderate/severe and mostly housebound. 🏳️‍🌈 She/her From the river to the sea, Palestine will be free 🇪🇭

dog lover • plant mad • software engineer • chronically ill
#CanWeTalkAboutIt #PostVacSyndrome #MECFS #LongCovid #SFN #POTS #Fibromyalgia

Sinéad @spoonless_me

2K Followers 821 Following dog lover • plant mad • software engineer • chronically ill #CanWeTalkAboutIt #PostVacSyndrome #MECFS #LongCovid #SFN #POTS #Fibromyalgia

Cam Regier @CamRegier

2K Followers 1K Following Husband, Father, Engineer, Buildings Nerd, LongCOVID. Views are my own. Likes and retweets are not endorsements.

Giorgia Lupi @giorgialupi

28K Followers 4K Following Information Designer. Partner @Pentagram. 1/2 of @_deardata, @TEDTalks speaker, Advocating for #datahumanism

Kirst @kirstler31

2K Followers 937 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS Part of the #Renegade50 💫 @RemissionBiome

Tiago Silva @tfouto

118 Followers 329 Following

supercathofragilistic.. @super_catho

293 Followers 579 Following https://t.co/4SO0220IGC

Love is the most powerful force in the universe. Serendipity Meets Preparation: @remissionbiome @RenegadeRes 💖🚀She/her. Surviving #LongCovid #MECFS w/you.

Shelley Jules @shelleyjules

796 Followers 948 Following Love is the most powerful force in the universe. Serendipity Meets Preparation: @remissionbiome @RenegadeRes 💖🚀She/her. Surviving #LongCovid #MECFS w/you.

Felino @GetaLifePeg

1K Followers 1K Following COVID IS CHRONIC. TREAT THE CHRONIC INFECTION

eIisa @mildTin

1K Followers 1K Following Previously lurking, now on here for #LongCovid #MECFS updates. "The world is awful. The world is much better. The world can be much better."

Ciara Wright PhD, Gle.. @CiaraGlenville

2K Followers 797 Following Nutritional Therapist, Scientist, Director of Glenville Nutrition Ireland, Long Covid Mar 2022

Wonky Badger @salesyboy

250 Followers 509 Following The nicest misanthrope you could ever hope to meet. Currently clattered by ME/CFS. One of the #Renegade50 ✊️

chronically illest �.. @paradigm1444

59 Followers 235 Following aim for the stars #carrotsalad #peaty

Resources & help for #longcovid patients globally. Let's fight #covid #longcovid related #misinformation & #disinformation together. Part of @PuchoDigiHealth

Global Long COVID Pat.. @pwLCResources

370 Followers 2K Following Resources & help for #longcovid patients globally. Let's fight #covid #longcovid related #misinformation & #disinformation together. Part of @PuchoDigiHealth

Global #pwLC Centered LC Collaborative Research efforts researchers towards mission to bring treatments and diagnostic at warp speed. Part of @PuchoDigiHealth

pwLC Centered Global .. @pwLCResearch

470 Followers 4K Following Global #pwLC Centered LC Collaborative Research efforts researchers towards mission to bring treatments and diagnostic at warp speed. Part of @PuchoDigiHealth

Patient-Centric community platform for Long Covid patients in Australia #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc

#LongCOVID Patients A.. @pwlcAustralia

238 Followers 937 Following Patient-Centric community platform for Long Covid patients in Australia #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc

Leben und Überleben mit ME/CFS seit Covid 12/20. Würde am liebsten meine Koffer packen und dem Long Covid-Alptraum entfliehen. 🏝️🍹⛵️🏔️🏂🚴‍♀️🤸‍♂️🥾

🧳 Koffer @fighting_MECFS

878 Followers 636 Following Leben und Überleben mit ME/CFS seit Covid 12/20. Würde am liebsten meine Koffer packen und dem Long Covid-Alptraum entfliehen. 🏝️🍹⛵️🏔️🏂🚴‍♀️🤸‍♂️🥾

Rotting with #LongCovid since May 22. Looking for scientific insights, community, and memes. 😷 Wear a high-performance mask.

Fe. @NoHealthNoFun

1K Followers 593 Following Rotting with #LongCovid since May 22. Looking for scientific insights, community, and memes. 😷 Wear a high-performance mask.

🐞🐞 @BeetSamantha

474 Followers 1K Following

Steppen Shite @steppenshite

234 Followers 312 Following The Covid Poet.

Erhaneb @erhaneb03

357 Followers 5K Following

Life | Empathy | Love | Meditation | Health&Fitness | Music Festivals | Travel. MUA | Web/UX Designer.
Disabled by #LongCovid & #MECFS since Jan/22 💔

Lindsey 🩵🇨🇦 @LindseyMarie_xo

4RealsBoo @BooReals

809 Followers 758 Following Looking to find current science and people who understand the ramifications of said science. First wave LC.

Pls help us to startaMEvolution: https://t.co/s9IRUVVRew

Lover of life, culture, design and work coping with ME/CFS. Sometimes brainfoggy. Sometimes just fogged up

Die_Magdalena (@magda.. @Notes_about_me_

260 Followers 801 Following Pls help us to startaMEvolution: https://t.co/s9IRUVVRew Lover of life, culture, design and work coping with ME/CFS. Sometimes brainfoggy. Sometimes just fogged up

Jade Savoca @JadieIsTired

670 Followers 616 Following 39F / AZ🌵➡️MN🌲 / Rescue 🐕‍🦺🦮 mom / Investments 💵 / Music 🎵 / #LongCovid community #FBLC / Politics #NeverTrump

__Ally @Ally_e14

88 Followers 750 Following *private account*concentrate on yourself. #psychology #Art #chronicillness journey🫀#witch🪞 authenticity:love,truth,will,loyalty.

https://t.co/VbxjEQf4fe ME/CFS, science, history of ideas, board games, words, photography, film, chili peppers, forever curious, disabled. #MEcfs #pwME

ez @ezchili

8K Followers 1K Following https://t.co/VbxjEQf4fe ME/CFS, science, history of ideas, board games, words, photography, film, chili peppers, forever curious, disabled. #MEcfs #pwME

Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖

Emma, thechronicsurvi.. @chronicsurv1vor

58K Followers 45K Following Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖

#COVIDisAirbourne #BringBackMasks

@adriana@toot.community

Adriana Baranek @AdrianaBaranek

1K Followers 5K Following #COVIDisAirbourne #BringBackMasks @[email protected]

Used to be @GayKiwiDan. 44 y/o battling #LongCovid since 01 June 2022. Here to correspond with fellow sufferers. #MECFS #FBLC #MillionsMissing 🤒 😷

Daniel Freeman (on hi.. @LongCovidKiwi

2K Followers 1K Following Used to be @GayKiwiDan. 44 y/o battling #LongCovid since 01 June 2022. Here to correspond with fellow sufferers. #MECFS #FBLC #MillionsMissing 🤒 😷

BeWinkel @W1nKe3l

164 Followers 775 Following MPH, 🇩🇪🇪🇸🇬🇧🇳🇱 Fan von Evidenz, sachlichem Diskurs, sozialer Teilhabe und Musik #LongCovid

NursingAmbulant @NursingAmbulant

851 Followers 3K Following Leben und arbeiten in der Pflege mit #MECFS #MCAS #hEDS #niewiederunsichtbar #teamvorsicht #diemaskebleibtauf

Petit Feu @feu_petit

975 Followers 2K Following Still suffering from #MECFS. Life still on hold. she/her 💙 = ME/CFS solidarity #noAfD

Samuel Ilisei @SamuelIlisei

162 Followers 229 Following sehr schwerer MECFS Überlebender seit einem Jahr. Leben im Pausemodus. 32 Jahre alt. Lachen bis zum Tod

Stefanie DS 😷 @SDS_snoopyhome

649 Followers 2K Following Long/Post-COVID seit 12/2020 Team Wissenschaft & Solidarität Twitter war eine ziemlich gute Sache. Jetzt ist es ❌

Lord Hagen @LordHagen13

285 Followers 335 Following CFS since 2020, lost nearly everything because of this illness but future treatments will cure us all

Rainer S. Cheis @rainer_s_cheis

599 Followers 314 Following 💚☕🍪🍀 #mecfs #CovidIsNotOver yet #ImpfenSchützt #CleanAir #WirSindMehr #noAfD achja #Klimakrise ME/CFS seit 1998 Gen X

Brenda @Brenda94403763

48 Followers 104 Following Nhs worker. Caught Covid March 2020. Never recovered.

OldFashionedAnne @oldfshndanne

3K Followers 3K Following Nature lover refusing to spread Covid-19 😷 🇺🇦 Long Covid since early 2020 COVID IS AIRBORNE (she/her)

Cynthia Johnson @MineToDo

419 Followers 2K Following ME/CFS since 2009. Still Sick Still Fighting. Stand By ME/CFS!

Baby Ruthless 🗡️ @babyrelentless

571 Followers 192 Following Your friendly neighborhood plague victim. Unwilling early adopter of #LongCovid. Solidarity from the void.

Fe. @NoHealthNoFun

9 months ago

@Ramyisback @ramyvaldes That IV is giving you voices in your head 😁

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GeoCK @GeoEduOne

9 months ago

@ramyvaldes 😆

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Ramy2.0 @Ramyisback

9 months ago

@ramyvaldes Boooo, you hater!

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Ramy2.0 @Ramyisback

9 months ago

@GeoEduOne @ramyvaldes Hahahaha lmao

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GeoCK @GeoEduOne

9 months ago

@ramyvaldes Now we’ve got two Ramys! You could run a placebo controlled trial on yourself 😆

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Mary Quigley @maryeilmicdom

9 months ago

@ramyvaldes Ah, will follow here...

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elle W @elleW902

9 months ago

@ramyvaldes this made me lol Yay you 😆

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Brian Fog @useless_priest

9 months ago

@ramyvaldes Jeez that Ampligen is powerful stuff

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Josh @ProperChels34

11 months ago

Idk why I’m so fucking against venting to my friends about this. One even reached out recently. I guess I just still wanna be seen as the old me in their eyes

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Sassy @NekomataSassy

11 months ago

#LongCovid #MECFS #PostVac Ouch...

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Download Gif

Fanatic Hermitude (orthostatic.bsky.social) @hobbyhorrible

11 months ago

@ramyvaldes That needs to be one of the first things they check for. If you’re running on sleep apnea and try to fix these other conditions first, it’s not gonna matter. At least now that you now you have a real chance at some sort of recovery. Recorded pretty profound improvements if they

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curiouser and curiouser @SueSueCurious

11 months ago

@ramyvaldes Sorry. At least sleep apnea is easy to diagnose & treat. I use a cpap and I actually really like it.

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Tired @EndemicPrepared

11 months ago

@ramyvaldes 😮‍💨😮‍💨

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Tired @EndemicPrepared

11 months ago

@ramyvaldes 😢

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Nadine 🇨🇦 Long Covid Awareness @NS_Beachbum

11 months ago

@ramyvaldes CPAP machine was the best thing that they did for me. Really improved my sleep tho said I didn't have apnea but do funny things at night. Heart rate is all over the place too.

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Dianna Cowern @thephysicsgirl

11 months ago

It’s been nearly 5 months of being completely bedridden. I’ve made very little progress. I can still barely move, or think or talk. I want to be out in the world living a life. My body hurts. But my heart hurts more. I wish I had a more positive update.

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Neb 🤙 @Nebulow

11 months ago

The council couldn't 'determine my case' for disability so it has been sent off to rehabilitation council and I have to wait until the 30th of August to talk to them 💀💀💀💀 BRO I AM BEDBOUND AND THE LETTER SAYS I HAVE TO BE THERE IN PERSON