PF (Patricia/Pat) Anderson @pfatech

This was the livetweeting account for @pfanderson. Have been locked out & am unable to access help from @TwitterSupport Librarian, LongCOVID March 2020 etechlib.wordpress.com Ann Arbor Joined September 2010

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PF (Patricia/Pat) Anderson @pfatech

43 minutes ago

home/song/hope #poem by @thetattooedjew lets-unwrite-these-pages.ghost.io/home-song-hope/

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David It Up! @Dave_it_up

a week ago

The Long Covid Strategy Guide for Talking to Doctors Your appointment was at 2:30. You’ve been sitting in this waiting room since 2:15, which means you’ve already burned through half your energy reserves for the day. You’re clutching a carefully written list of symptoms that…

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David It Up! @Dave_it_up

2 weeks ago

How to Show Up for Someone with Long COVID, You Love Let’s start with something uncomfortable. You probably love your family member. You want to help. But if you’re being honest, you’re also frustrated. Confused. Maybe even a little resentful. You didn’t sign up for this. You…

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Yaneer Bar-Yam @yaneerbaryam

a day ago

Here are three clear and important statements about COVID and Long COVID — what’s happening to our bodies, why the medical system fails to respond, and how to support the people affected. Worth your time. Sharing them here:

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David It Up! @Dave_it_up

a day ago

COVID Isn’t a Cold. It’s Cigarettes All Over Again The Damage Is Everywhere – That Is the Definition of Long COVID Look, we’ve been here before. My grandpa smoked two packs a day for most of my memory of him. Everyone did. Doctors literally prescribed cigarettes for stress.…

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Learn Something @cooltechtipz

19 hours ago

house styles

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PF (Patricia/Pat) Anderson @pfatech

9 hours ago

Le Mot (@WordleFR) #1338 4/6 🟨⬛⬛🟨⬛ ⬛⬛⬛⬛⬛ 🟨⬛⬛🟨🟩 🟩🟩🟩🟩🟩 wordle.louan.me

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PF (Patricia/Pat) Anderson @pfatech

9 hours ago

Connections Puzzle #820 🟪🟪🟪🟪 🟦🟦🟦🟦 🟨🟨🟨🟨 🟩🟩🟩🟩

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PF (Patricia/Pat) Anderson @pfatech

9 hours ago

Strands #554 “One for the Trekkies” 💡🔵🔵🟡 🔵🔵🔵

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PF (Patricia/Pat) Anderson @pfatech

9 hours ago

Canuckle 1213 4/6 ⬜⬜🟥🟨⬜ ⬜🟥⬜⬜🟨 🟨🟥🟥⬜🟥 🟥🟥🟥🟥🟥 🔥 streak: 5 ⭐ #CanuckleStar canucklegame.ca

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PF (Patricia/Pat) Anderson @pfatech

9 hours ago

Wordle 1,542 3/6 ⬛⬛🟩⬛⬛ 🟩🟨⬛🟨⬛ 🟩🟩🟩🟩🟩

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PF (Patricia/Pat) Anderson @pfatech

9 hours ago

Phoodle #1219 4/6 🟨🟨⬛⬛⬛ ⬛⬛⬛⬛🟨 ⬛⬛🟨⬛🟩 🟩🟩🟩🟩🟩 phoodle.net

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PF (Patricia/Pat) Anderson @pfatech

9 hours ago

Canuckle 1212 6/6 ⬜⬜⬜🟨⬜ 🟨⬜⬜⬜⬜ ⬜⬜⬜⬜⬜ ⬜🟥⬜🟥🟥 ⬜🟥🟥🟥🟥 🟥🟥🟥🟥🟥 🔥 streak: 4 canucklegame.ca

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thetranscendedman @atranscendedman

4 days ago

Senator Young to RFK Jr. on Long COVID. More trials with real treatments. ARPA-H in the mix. Pharma finally picking up the phone.

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Sa @HazylightsSa

3 days ago

1/5🧵Itaconate Shunt theory presented by Dr Robert Phair today - how it causes PEM: High energy demand uses up ATP into ADP, which activates IDH3 to increase the Krebs cycle activity. The Krebs cycle generates the NADH necessary for pumping protons across the inner mito-

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🌸 fawn 새라 @tantanbambam318

2 days ago

@cfs_jo @ClagueNjc36 oh absolutely. i'm always trying to get an A+ in each session lol. trying to be a perfect patient for each type of doctor's personality is exhausting

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🌸 fawn 새라 @tantanbambam318

2 days ago

@cfs_jo @ClagueNjc36 this is SO important. physio centers frequently have bright lights, lots of sound and movement, people around. there is a energy toll on being stimulated this way. also the social aspect of talking with the physio (not to mention, advocating for ourselves) is exhausting.

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Amanda Goodhart @NurseGoodhart

3 days ago

@ClagueNjc36 4. That we are scared of you. Because we've been gaslit about G.E.T. helping when it harms. And it's not your fault. But you're going to have to listen. And gain our trust. And even can advocate for us. The net thing PT did for me was document my PEM/PESE for my doctors.

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Amanda Goodhart @NurseGoodhart

3 days ago

@ClagueNjc36 5. Its not "brainfog" . It's like we have a TBI. I tested negative for ADHD B4 COVID, positive after. I had to do cognitive rehab. And still struggle. Give us things written. & Not too much at once. Use something easy to understand for pacing like this. drive.google.com/file/d/11uP8rn…