Cystic Fibrosis Aust @CFAustralia
CFAustralia is the national body supporting people who live with CF through research, advocacy and the CF Clinic Improvement Program. cysticfibrosis.org.au Sydney, Australia Joined August 2013-
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Following169
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SURVEY - Pain Management in CF Pilot Study - mailchi.mp/cfa.org.au/per…
The Prevalence, Severity & Measurement of Pain in CF - A survey pilot study - mailchi.mp/cfa.org.au/per…
REMINDER - The Abbie Fennessy Memorial Fellowship 2023 - mailchi.mp/cfa.org.au/per…
Continued Hope & Dedication - mailchi.mp/cfa.org.au/per…
An Invisible Illness - mailchi.mp/cfa.org.au/per…
The Power of Perseverance - mailchi.mp/cfa.org.au/per…
One Hour To Go - mailchi.mp/cfa.org.au/per…
REMINDER - The Abbie Fennessy Memorial Fellowship 2023 - mailchi.mp/cfa.org.au/per…
Investing in our CF Future - mailchi.mp/cfa.org.au/per…
Beyond the Diagnosis - mailchi.mp/cfa.org.au/per…
Fighting for Every Breath - mailchi.mp/cfa.org.au/per…
You are Invited! - mailchi.mp/cfa.org.au/per…
The Abbie Fennessy Memorial Fellowship 2023 - mailchi.mp/cfa.org.au/per…
One Family, Worlds Apart - mailchi.mp/cfa.org.au/per…
Because of You - mailchi.mp/cfa.org.au/per…
Conquer Cystic Fibrosis Lung Health Transplant Grant 2023 - mailchi.mp/cfa.org.au/per…
Conquer Cystic Fibrosis Lung Health Transplant Grant 2023 - mailchi.mp/cfa.org.au/per…
Cystic Fibrosis WA $37,500 Post Graduate Top Up Scholarship - mailchi.mp/cfa.org.au/per…
Consumer Advisory Group - mailchi.mp/cfa.org.au/per…
Trikafta Listed on the PBS for our CF kids. - mailchi.mp/cfa.org.au/per…
Peter Wark @PeterWark1710
2K Followers 620 Following Conjoint Professor @uni_newcastle @hmriaustralia. Senior staff specialist in Respiratory and Sleep Medicine @HNEHealth. Views are my own.Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracleStrawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)CF News Today @CFNewsToday
5K Followers 2K Following We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.Sarath Ranganathan @SarathRanganath
728 Followers 105 Following Stevenson Chair and Head, Department of Paediatrics at the University of Melbourne.Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.Anthony Kicic @DrAnthonyKicic
812 Followers 978 Following Head, Airway Epithelial Research @walyanCentre @telethonkids | Associate Professor @CurtinUni | Advocate for NexGen scientists. Views are my own. He/ him.Dr. Leshan Wannigama .. @dr_leshan
2K Followers 591 Following Physician Scientist in infectious Disease | Passionate about Respiratory Infections | Pathogen Surveillance in LMIC | AMR | Tropical Medicine | #IDTwitterUHB CF Dietitians @CF_dietitians
743 Followers 247 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanadaPaul D Robinson 🫁 @DrPLungResearch
612 Followers 476 Following Child Lung specialist @childhealthqld, Prof University of Queensland & Deputy Director Children's Health and Environment Program (CHEP). My views on lung healthDr Shafagh Waters @ShafaWaters
1K Followers 1K Following Group Leader of miCF Research Lab | Scientia Senior Lecturer @UNSWMedicine @sydney_kids. We create #organoids for #rare lung disorders #PersonalisedMedicine.Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they liveREGINA SORENSEN 👩�.. @BBreggie
5K Followers 2K Following Winner of @bigbrotherau 2022 Winner of BB2003, 2 beautiful kids, I have Retinitis Pigmentosa /Ushers 2 My son has Cystic Fibrosis, Enquries [email protected]Mark Brooke - Lung Fo.. @markbrooke68
2K Followers 2K Following Private site of Mark Brooke Lung Foundation Australia CEO - views are my ownShivanthan Shanthikum.. @ShivanthanS
406 Followers 265 Following Paediatric Respiratory Doctor @RCHMelbourne and @MCRI_for_kids pursuing precision health via multi-omic profiling & digital health strategies. Views my own.Beam for Cystic Fibro.. @Beam_CF
1K Followers 673 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgoodTanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏Graham Hall @GrahamHall_lung
822 Followers 421 Following Strategic leader | Lung health advocate | Mentor | Managing Director, Synergy Health Solutions.Cystic Fibrosis Regis.. @CFRegistryIE
215 Followers 155 Following Official CFRI twitter. The patient registry for people with cystic fibrosis in Ireland. Retweets not an endorsement. Seek the advice of your physician.Missing School Inc @missing_school
91 Followers 60 Following Up to 1.2 million Australian kids risk missing school due to physical or mental illness. Beyond their health crisis, they feel forgotten. We reconnect them.José Martínez @JosMart06443049
11 Followers 386 Followingعبدالله الد.. @Aldraihemab
39 Followers 717 Following @_KSU 433 graduate | Pediatric pulmonology fellow @NGHAnews 🫁Janica Leppanen @LeppanenJa54487
26 Followers 278 FollowingShanal Kumar @ShanalKumar_AU
97 Followers 575 Following Endocrinologist, PhD Candidate. Interested in diabetes, bone & tech research, and endocrine management for adults living with Cystic FibrosisMumhan Abú @SportsAnon7
52 Followers 685 Following #dabears #bullsnation #mancity #nextstartshere #blackhawks #munsterrugby @irishrugby #GoIrish☘️ #foreverfreoMaddy @maddy_deery
0 Followers 21 FollowingDr Golly Paediatricia.. @drgolly
43 Followers 41 Following 👨🏻⚕️Paediatrician 💛Father of 3 💤Sleep & Settling Program 0-5yrs 🎙Podcast: Dr Golly & The ExpertsMathew Smith @m85smith_physio
185 Followers 1K Following Specialist Musculoskeletal Physiotherapist (Fellow of the Austalian College of Physiotherapists, 2021)John Perdikaris @John_Perdikaris
29 Followers 59 FollowingElena Williams @elewilliams
1K Followers 1K Following 🇦🇺🇮🇩 Consultant and PhD researcher. Board member Australia-Indonesia Institute. Passionate about building better Oz-Asia relationships. All views my own.Clara Casimiro @ClaraCasimiro2
27 Followers 453 Following Peço pf para assinar a petição. Validar o e-mail da mesma, sff Obrigada https://t.co/9J7ZaljZR4Robert McCarthy #Cure.. @87_RobertM
28K Followers 29K Following He/Him Aspiring author. Humanist. Advocate. President of the Sudbury Chapter of Cystic Fibrosis Canada (@CFCanada)irishtingtong @irishtingtong
522 Followers 2K Following_laurenclayton_ @laurenclayton__
75 Followers 144 Following Respiratory physiologist 🫁 | PhD researcher @UoPSportScience - Exercise physiology in cystic fibrosis during the modulator era 👩🏼⚕️🫁🚴🏼♀️ @CFwarriorsLaura Nementzik @laura_nementzik
123 Followers 730 Following PhD Candidate👩🔬 | MiCF lab UNSW 🧬 | She/Her | Kiwi in Aus 🥝 | Jewish ✡️ | All views are my ownThe TWells Lab @TheWellsLab
96 Followers 49 Following Dr Timothy Wells laboratory investigating gram-negative host-pathogen interactions at the Frazer Institute, the University of Queensland.Emma Ledger @EmmaLedger_1
17 Followers 39 Following Final year PhD student located at Frazer Institute, the University of Queensland under Dr Timothy Wells supervision.ZaM @zam__16
84 Followers 610 FollowingCoralMS @CoralMS1
223 Followers 481 Following Fighting for #LifeSavingDrugs for #CysticFibrosis #KaftrioNowCystic Fibrosis paper.. @cf_papers
46 Followers 14 Following Tweeting latest #cysticfibrosis papers from Pubmed | Created by / report issues to @williammflowers cystic fibrosis 🫁 #RespEdCentre for Genetics E.. @CGE_HETI
831 Followers 216 Following Centre for Genetics Education, HETI NSW Health - Providing genetics and genomics health information for healthcare professionals.Paige Alsop @paigealsop
81 Followers 194 Following Embedded Researcher | Specialist Paediatric Cystic Fibrosis Dietitian | NUTH RDI Doctorate Fellow @newcastlehosps @northumbriauniCian Greaney @Ciansgreaney
157 Followers 234 Following PhD Candidate. University of Limerick, Ireland. Exploring Diet Quality in Cystic Fibrosis. IRC GOI post-grad scholarship. Opinions are my own.💙Fiona Moore💙 @fionamooreRD
769 Followers 1K Following Cystic Fibrosis Specialist Dietitian, social media BDA Cystic Fibrosis specialist group, ordinary member ECFNG. MSc Advanced Practice Student @ GCU. Own viewsCity Connect @CityConnectNews
1K Followers 2K Following City Connect is an online magazine featuring articles and reviews on Science, Culture & Lifestyle, Health & Beauty, Food & Drink and more.Fibrosis_SCIEPublish @Fibrosis_htu
29 Followers 482 Following The official journal of Henan Normal University.Head of School @Schoo.. @ProfJakeBaum
410 Followers 282 Following Research & Teaching @UNSWMedicine covering biomedical research: from nano all the way to macro. Tweets by #UNSWSBMS staff. Lab-specific tweets at @TheBaumLabJustGiving Causes @JGcauses
4K Followers 1K Following We help charities and their supporters raise more money and reach more people 💜 Follow us for fundraising tips & @JustGiving news. Tweet @JGhelp for help.European Cystic Fibro.. @ecfs_ecfng
292 Followers 242 Following European Dietitians working with people with cystic fibrosis to support optimum nutrition and improve clinical outcomesFORMaT @FORMaTtrial
13 Followers 27 Following Finding the Optimal Regimen for Mycobacterium abscessus Treatment using an Adaptive, Multi-arm, platform trial.Nahgrim #1 Ganesha @TheRealNahgrim
75 Followers 184 Following Educator of Cystic Fibrosis (65 Roses) while being someone who lives with it. Currently going to school for the medical field. [email protected]NMaksoud @NMaksoud1
336 Followers 3K Following Deputy Ward Leader on Sconce Ward @ Newark Hospital @ SFHFTMotivate Nutrition @motiv8nutrition
235 Followers 369 Following Renee Kennedy from Motivate Nutrition | Accredited Practising Dietitian | Sports Dietitian | ❤️ Triathlon, gelato & food jokes | MOTIVATE • EDUCATE • THRIVE!Czara Kennedy @CzaraKennedy
288 Followers 639 Following Surgical SpR @RCSI_Irl. Dietitian. Limerick 💚🤍March.us @march_community
40 Followers 113 Following Connect with patients, researchers, and healthcare experts in our community, dedicated to advancing the battle against rare diseases.Nikhil T Awatade @indianniks
10 Followers 11 Followingjenkins2515 @jenkins2515
41 Followers 179 FollowingEugene @EugeneLabs
30 Followers 56 Following Doctor-recommended genetic tests for preconception, pregnancy and proactive health. https://t.co/mSifc6SThxsamanthamac2363 @samanthamac2363
15 Followers 70 FollowingAyla @Aylailtus
82 Followers 308 Following kistik fibrozis annesi mücadelemize devam ve kazanacağınızzzzz🙏🙏 Allah'ın izniyle 👏👏☘️☀️Rachel Gregory @rachelagregory
7 Followers 102 FollowingCentre to Impact AMR @CentreImpactAMR
2K Followers 2K Following Anti-Microbial Resistance | Sustainable Solutions. Combining Engineering, Social, Biological, Evolutionary, Chemical and Clinical solutions to AMRKatie Jane Marsden RD @KatieJaneM_RD
215 Followers 345 Following Cystic Fibrosis Specialist Dietitian 💜 Dietetic Learner Lead 💙 CF BDA Group Secretary 💚 HCPC registered - All views are my own! She / Her 🏳️🌈Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.ABC News @abcnews
2.4M Followers 1K Following Latest news updates from the Australian Broadcasting Corp. This is an official @abcaustralia account.Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanadaTanya Plibersek @tanya_plibersek
346K Followers 1K Following Australian Minister for the Environment and Water. Member for Sydney. Authorised T Plibersek, ALP, Redfern.REGINA SORENSEN 👩�.. @BBreggie
5K Followers 2K Following Winner of @bigbrotherau 2022 Winner of BB2003, 2 beautiful kids, I have Retinitis Pigmentosa /Ushers 2 My son has Cystic Fibrosis, Enquries [email protected]SBS News @SBSNews
529K Followers 927 Following Bringing you the national 🇦🇺 and global 🌏 news that matters. See website for T&C and privacy policy.BEAT CF @BEATCF_study
32 Followers 41 Following BEAT CF is an Australian adaptive platform trial, aiming to improve the management of cystic fibrosis exacerbations. Led by researchers @syd_healthIntuit Mailchimp Stat.. @MailchimpStatus
34K Followers 1 Following What's up with our servers? Award Winning Support: @mailchimphelp Everything Else: @mailchimpJohn Schroeder @cffschroeder
2K Followers 2K Following Advocating for CF tomorrows! All tweets are mine. Einstein: Only two things are infinite, the universe and human stupidity, and I'm not sure about the former.Make CF History @MakeCFHistory
2K Followers 2K Following Raising $1 million for the @CF_Foundation. An annual #hockey tournament for men, women, and kids, silent/live auction, and more! #CysticFibrosis #CureCFFor Benefit Medicine @FBMAustralia
16 Followers 41 FollowingManchesterCFResearch @Manchester_cf
1K Followers 335 Following From the Cystic Fibrosis research group at Manchester University. A forum to update public, patients, and other researchers on what we do and why we do it.European CF Patient R.. @ECFSRegistry
689 Followers 117 Following European Cystic Fibrosis Society Patient Registry: measuring, surveying & comparing cystic fibrosis & its treatment in participating countries.Journal of CF @JournalofCF
1K Followers 392 Following Posting content from the Journal of Cystic Fibrosis, European Cystic Fibrosis Society and Cystic Fibrosis Research News. Follows do not indicate endorsement.Telethon Kids Institu.. @telethonkids
7K Followers 1K Following Headed by Professor @jcarapetis, the Telethon Kids Institute is committed to improving the health and development of all children.Barnaby Joyce @Barnaby_Joyce
97K Followers 887 Following Working hard trying to do my best for New England and our nation.Josh Frydenberg @JoshFrydenberg
117K Followers 655 FollowingGreg Hunt @TheHonGregHunt
82K Followers 3K Following University of Melbourne Honorary Melbourne Enterprise Professor | Former Member for Flinders 2001 - 2022 | Former Minister for Health & Aged CareThe Hon. Nola Marino .. @NolaMarinoMP
3K Followers 259 Following Assistant Minister for Regional Development and Territories. Member for Forrest. (Authorised by Nola Marino MP, Liberal Party of Australia, Bunbury WA)WeNeedOrkambi @OrkambiAus
168 Followers 119 Following Sick Australians are dying whilst a med sits unused on a shelf - after 2.5 years & 3 rejections 1300 young Australians with Cystic Fibrosis need Orkambi now!Anna Knuckey @AnnaKnuckey
8 Followers 21 Following Wife. Mum. Sister. Daughter. Friend. Worker. Mermaid (according to my daughter).Aleta Gibbs @leta70
372 Followers 530 Following Mum of 4 👩🏻👱🏻♂️🐶🐶 (she/her) Animal lover Wannabe Chef 👩🏻🍳Cystic Fibrosis advocate Pro Vax 💉 Former Registered Nurse Primary Early Childhood EducatorStarlight Australia @Starlight_star
20K Followers 446 Following Help us bring happiness to sick kids 💜Joel Boy CF @JoelBoyDotCom
227 Followers 260 Following I'm 15 and I have Cystic Fibrosis. I like to make videos to help CF kids do their nebs, swallow tablets or if they're getting a port YouTube | JoelBoyDotComEmmah Money @CF_Mummy
313 Followers 835 Following 2020 Australian of the Year SA Local Hero • Author • International Empowerment Speaker 🎙The Princess of PossibleYesOrkambi @YesOrkambi
676 Followers 429 Following Orkambi is a breakthrough drug that could change the lives of 600 Irish PWCF. We won't rest until we get access to it - you can't put a price on people's lives.Peter Ford @mrpford
31K Followers 5K Following Showbiz reporter on radio & TV in Australia. A retweet doesn’t necessarily mean I agree - just that I think it’s interesting.Julia Gillard @JuliaGillard
808K Followers 161K Following Official Twitter account of the 27th Prime Minister of Australia.Guardian Australia @GuardianAus
364K Followers 170 Following Latest news from Guardian Australia 📨 Newsletters: https://t.co/f51s1ZlWog 📰 Contribute: https://t.co/BD5vlNxzm4 👩💻 Live blog: https://t.co/679NnPmBV9The Daily Telegraph @dailytelegraph
224K Followers 13K Following Follow for breaking news in Sydney. NRL News, Sport, Entertainment and Business. We'll retweet our journalists here toonews.com.au @newscomauHQ
660K Followers 4K Following Australia's number one news site. Bringing you the latest breaking news from Australia and around the world.CF Smart @CFSmart1
275 Followers 30 Following A national educational program for teachers, parents and students about cystic fibrosis.Wendy Harmer @wendy_harmer
84K Followers 3K Following Broadcaster, author, columnist,stand-up. Memoir "Lies My Mirror Told Me" now out in the wild ... " all good bookshops" etc. BEWARE ACCTS PRETENDING TO BE ME!Harrison Young @harrisonyoungpa
3K Followers 4K Following Chairman @ConversationEDU, Non-Executive Director @commbank, international banker, financial system thinker & novelist #leadership #banking #writingRUPA @RugbyPlayersAus
5K Followers 882 Following Official account of RUPA (The Rugby Union Players' Association). Representing, supporting and promoting Australia's Professional Rugby Players.Hootsuite APAC @HootsuiteAPAC
100K Followers 3K Following This account is no longer active. We've flown over to @Hootsuite and you can find us there. Need support? Tweet @Hootsuite_HelpHootsuite 🦉 @hootsuite
7.2M Followers 1.4M Following Social media tools, tips, news, and a shoulder to cry on for social pros since 2008. Support: @Hootsuite_HelpMayor Greater Shepp @GrSheppMayor
626 Followers 262 Following This is the official Twitter page of Greater Shepparton Mayor Cr Dinny Adem. For more Council-related info follow @greatersheppMitch Messer @mitchmess
188 Followers 223 Following consumer advocate - passionate about ensuring that community services & health systems/policies are consumer focusedCeline Dion NL @cdipnl
36K Followers 317 Following Dutch Céline Dion fanclub. Follow us for the latest #CelineDion News & updates!CFCanadaWalk @CFCanadaWalk
1K Followers 915 Following The Walk to Make Cystic Fibrosis History will take place on Sunday, May 28, 2017.Worldwide CF Day @WorldwideCFDay
118 Followers 122 Following Cystic Fibrosis Worldwide will host the first Worldwide Cystic Fibrosis Day on September 8th 2013. Join and help fight CF!CF Ireland @cf_ireland
6K Followers 2K Following Cystic Fibrosis Ireland is a non-profit organisation, supported by fundraising & voluntary contributions & are solely concerned with the well-being of PWCFPrue MacSween @macsween_prue
35K Followers 1K Following This is the REAL Prue MacSween twitter. Beware of imitations! @SkyNewsAus & TNT Live Radio regular contributor.Pete's Bookshelf @petesbookshelf
152K Followers 82K Following Providing Quality Informational Audio and CD-ROM Products at Very Affordable Prices - Try Us Out Today!!G8t to be with @CFAustralia’s Nettie Burke discussing the Morrison Government’s $65 million investment to establish the first dedicated Cystic Fibrosis Specialist Unit in NSW.
@GregHuntMP @ScottMorrisonMP @CFAustralia Thank you! This gives many the opportunity to live many more healthy years. I truly hope we don’t have a long wait for PBS access to Symdeko and the triple combination.
@GregHuntMP @ScottMorrisonMP @CFAustralia The best day ever!!!!
@GregHuntMP @ScottMorrisonMP @CFAustralia Thank you @GregHuntMP for making this happen! On behalf of the siblings of CFers, THANK YOU! Knowing that my fabulous sister, Janette, will live long enough for my daughters to remember their Aunt and remember her in good health is brilliant! #WeNeedOrkambi
@CFAustralia Congratulations from the UK! #OrkambiNow #ukneedsorkambi
@CFAustralia Huge congratulations to all in Australia 🇦🇺 - so very pleased that you finally have access to #OrkambiNow 💛❤️ Hoping UK 🇬🇧 will catch up very soon!
@CFAustralia So happy for everyone in Australia - You need a new hashtag #Wehaveorkambinow
If Jarrod and Kiara have already broken up I’m putting my flat screen on the nature strip. #BachelorinParadiseAU
@GregHuntMP @TurnbullMalcolm @jillhennessymp My young niece has #cysticfibrosis I know how it devistates young lives. They never asked for this hideous disease. Please give them a chance wherever you can. The games have gone on for too long. #65roses #WeNeedOrkambi
@CFAustralia @leta70 Let’s make this a reality @LindaBurneyMP @KenWyattMP @GregHuntMP my granddaughter and others need this now😔no more waiting just do what’s right for our CF families
And we are home 😀 Out of hospital. Tune up done . Happy dance 💃🏻💃🏻💃🏻@CFAustralia @cfqld @PEAKS4CF
Day 13 of hospital Lucas is even helping push through his antibiotics 😀 My little CF hero ❤️ @CFAustralia @cfqld
A BIG THANK YOU | Supporters, volunteers, all those who set themselves a 65 roses challenge, held a community... fb.me/4Lv03BkPl
@Ed_Owen CEO of @cftrust has taken the #StrawfieChallenge - watch our video: youtube.com/watch?v=EfRGmi… & pls join in.
Featured - Yahoo7 au.tv.yahoo.com/the-daily-edit… via @Yahoo7 here is my interview today @strawfie @CFAware @cfqld @CFAustralia @CFNewsAustralia
Sneak peak at our custom trading kit we've developed with Volero. Donate at: peaks4cf.com #curecfnow
Today's @65RosesDay. Reggie's 6yo Lucas is sadly in hospital. She bravely joined @tdeon7 to discuss #CysticFibrosis au.tv.yahoo.com/the-daily-edit…
Rugby legend @NathanCharles2 showing off the new #CFbuzz app this morning at @moodychef1. apple.co/1OQqJ9w