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CureME~CFS @Cure_ME_CFS

#ME. Not a doctor/scientist. Views are strictly personal. #microbiome, #neuro/+genic #inflammation, #fibromyaglia #mcas, #tryptophan #immunometabolism #genetics Mother Earth Joined August 2017
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CureME~CFS retweeted
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Tom Kindlon @TomKindlon

a year ago

(Massachusetts, USA) This exciting study led by a sympathetic researcher has been struggling to recruit for years. It now has this webpage which is new to me. Please like +/or RT. 🙏 rally.massgeneralbrigham.org/study/me_cfs_p… #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

CureME~CFS retweeted
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Janet Dafoe @JanetDafoe

a year ago

#MECFS24 lightening talks. Rob Phair 2 patients who improved greatly from Jak stat1 inhibitors.

CureME~CFS retweeted
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Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke

a year ago

Another young person with #MyalgicEncephalomyelitis passed away at the weekend. I don't know the details but surely it's time @NHSEngland stopped pretending ME is a mild illness people can recover from using psychosocial interventions. As usual, condolences to friends & family.🕯️

CureME~CFS retweeted
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Ariakas Enoreth @Aenoreth

a year ago

Tau is required for glial lipid droplet formation and resistance to neuronal oxidative stress nature.com/articles/s4159…

CureME~CFS retweeted
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Janet Dafoe @JanetDafoe

a year ago

@bhanlon15 This was at a hearing with three speakers who spoke for about a half an hour each and at the end the public got to talk. Ron had two minutes. He couldn’t explain the whole model and he couldn’t explain all the details!

CureME~CFS retweeted
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Billy Hanlon @bhanlon15

a year ago

Ron Davis today at the Santa Clara County ME hearing: “..we think this disease is initiated when you initiate innate immunity…you can turn it back off by JAK-STAT Inhibitor…we have seen 1 patient in Australia who took it..within 3 days of taking the drug was completely cured..”

bhanlon15 Profile Picture

Billy Hanlon @bhanlon15

a year ago

Ron Davis today at the Santa Clara County ME hearing: “..we think this disease is initiated when you initiate innate immunity…you can turn it back off by JAK-STAT Inhibitor…we have seen 1 patient in Australia who took it..within 3 days of taking the drug was completely cured..” https://t.co/DquBdcMtjd

CureME~CFS retweeted
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thetranscendedman @atranscendedman

a year ago

In a study of 551 participants in Guangzhou, China, #LongCOVID was found to suppress brain activity during walking, with more severe initial symptoms leading to greater suppression. link.springer.com/article/10.100…

CureME~CFS retweeted
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Ariakas Enoreth @Aenoreth

a year ago

In the wake of Céline Dion's diagnosis and comeback, stiff-person syndrome researchers and advocates march toward a cure fiercebiotech.com/research/wake-…

CureME~CFS retweeted
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S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic

a year ago

POTS can come in different forms and can affect anyone. Thanks @katieledecky, an #OlympicChampion, for sharing your story! #OlympicGames #Olympics2024Paris self.com/story/katie-le…

CureME~CFS retweeted
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Robert Saunders (aka McMullen) @RobertHMcMullen

a year ago

Dr Weir: “There’s a dogma that this condition is psychological and until that dogma is buried it will be very difficult to treat ME patients properly” telegraph.co.uk/news/2024/07/2… #MaeveInquest 1/

CureME~CFS retweeted
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Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke

a year ago

Before psychiatry poisoned the field of ME research and treatment it was handled respectfully and often quite knowledgeably by neurology departments. Now the complete reverse is true. #MyalgicEncephalomyelitis

CureME~CFS retweeted
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Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke

a year ago

CW: "40% of parent carers have thought about killing themselves. But what’s really shocking is that so many parent carers have been feeling this way and nobody has known until now." #MECFS #LongCovid #chronicillness birmingham.ac.uk/news/2024/more…

CureME~CFS retweeted
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Ariakas Enoreth @Aenoreth

a year ago

Stress-resilience impacts psychological wellbeing as evidenced by brain–gut microbiome interactions nature.com/articles/s4422…

CureME~CFS retweeted
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ME Research UK @MEResearchUK

a year ago

Dr Amy Proal from PolyBio Research Foundation recently updated us on the progress of her ME Research UK-funded project searching for viruses in tissue and nerve samples from people with ME/CFS. bit.ly/45icR6W

CureME~CFS retweeted
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Billy Hanlon @bhanlon15

a year ago

PolyBio: 'LongCOVID brain inflammation associated with vascular problems, Harvard team finds' 'Neuroinflammation was identified across a wide range of brain regions and connected to measures of blood vessel dysfunction' polybio.org/longcovid-brai…

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