🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS
#pwME (and on-hold Phd student) fighting for #MECFS awareness. Creates funny videos for #spoonies on her good days 😊 https://t.co/6oiUClnHna youtube.com/FunwithCFS Brooklyn, NY Joined August 2017-
Tweets4K
-
Followers2K
-
Following789
-
Likes21K
Beautiful artwork by #MECFS artist Inga Topolnicki, titled "Time Spent." Today we honor the #MillionsMissing and demand biomedical research. Please donate to the Open Medicine Foundation to support people with #MyalgicEncephalomyelitis and #LongCOVID. omf.ngo/?form=MayMomen…
1) Since I've been living isolated from the world since 2013, and from 2015, one visitor per year has not been uncommon. I've decided to film my current life with M.E. Not that my days are that exciting, but I often get questions about how I get by. How youtu.be/SYLMqnEWRBg
It's #WorldMEDay and this year's theme is PEM - Post-exertional Malaise. It is part of what makes #MECFS so disabling. If you push harder, you get sicker. #MEAwarenessDay #MyalgicEncephalomyelitis #pwME #MillionsMissing
Each person here is holding in their heart thousands who cannot be here. #MillionsMissing
"my daughter died - the system does not work... we have a problem with the medical establishment, how at 27 you die from ME has to be answered" says Sarah Boothby whose daughter Maeve died of #MEcfs last year #MillionsMissing
Governor Kathy Hochul has signed Assembly Bill A7712B, which "Provides for a myalgic encephalomyelitis/chronic fatigue syndrome education and outreach program" #MECFS #MyalgicEncephalomyelitis
You know, I've never had a gay agenda before today.
Other uses for the N-95: covering acne, protection against the cold, cutting onions🧅
Living in Brooklyn with sound sensitivity be like...
#BookTwitter My friend @RachelKrantz wrote this awesome investigative memoir about non-monogamy: prh.com/open (I reviewed it on Goodreads: bit.ly/32Ao6vp)
This helped, especially Hannah's advice to get to the event late. I'm still flared after Christmas, but would have been much worse if I'd showed up on time. meaction.net/2021/11/30/12-…
I am so excited to learn that "Piranesi" won the Women's Prize for Fiction 2021! ❤️ It's a really special book and I've been rooting for it all year. Congrats to the author, who conceived of it during a long period of suffering with CFS.
I am so excited to learn that "Piranesi" won the Women's Prize for Fiction 2021! ❤️ It's a really special book and I've been rooting for it all year. Congrats to the author, who conceived of it during a long period of suffering with CFS.
Just heard a song with the lyric "you look good when you're tired," and I guess if anyone ever said that to me I'd have to marry them.
“Youth is happy because it has the capacity to see beauty. Anyone who keeps the ability to see beauty never grows old.” ― Franz Kafka
omggggg 😂😂🤣
May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MEcfs) Awareness Month Please help by sharing +/or liking this 6-minute "Paper Stop-motion Animation About ME/CFS" youtube.com/watch?v=dUrPFq… #MEcfs #CFS #MyalgicE #PwME #MyE #MEeps Day 17
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Joy In The Seasons @JoyInTheSeasons
5K Followers 4K Following Mindfully capturing & sharing little seasonal joys in nature. Currently #JoyInSpring 🌸🌼 Mindfulness & Meditation Practitioner #pwME #Spoonie
Vlad Vexler @VladVexler
17K Followers 841 Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in Russia, home is London | Living with ME since 2003. | 🔗 🎥
John Peters @johnthejack
5K Followers 5K Following Unbeliever (political & relig), Wales rugby, #c4news, porridge, #MEcfs johnthejack.peters
All of them snollygos.. @OnlyEnnui
3K Followers 2K Following @onlyennui.bsky.social Ex philosopher. #MEcfs activist #hEDS. spinal injury, prescribed benzo withdrawal = hell Expect swearing & sarcasm
Ben H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Carolyn Hamilton @chamilton1340
422 Followers 2K Following Trained Actor. Lymesick Warrior 💚. Fighting 4 my life back🌱 Former Med Assistant. 🔎Looking for my missing brain.
Saoirse Wong @SaoirWo
26 Followers 5K Following
Kisha Chessman @KishChessm
38 Followers 5K Following
Tetetough @tetetough75365
133 Followers 5K Following
Nasme @Nasme371030
94 Followers 870 Following
Thasseau @thasseau40464
74 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
Theathout @theathout51736
127 Followers 6K Following
Elsie @smedismi31602
13 Followers 2K Following Intelligence comes from hard work, and genius comes from accumulation.
Pheigh @Pheigh169381
0 Followers 522 Following When you come to this world, you must make an effort to see all the beauty.
Medical News Bulletin @MedNewsBulletin
3K Followers 2K Following A not-for-profit online magazine providing you with the latest news in #health, #wellness, and medical research. Tweets are not medical advice.
LA2LAGURL @La2Arceri
424 Followers 2K Following Questioning everything : 𝚖𝚎𝚗𝚊𝚐𝚎𝚛𝚒𝚎 𝚘𝚏 𝚠𝚑𝚊𝚝 𝚠𝚊𝚜: spiritual & narcissistic abuse survivor #CPTSD: severe #ME/CFS: POTS, CCI 20yrs
Kendra F @SurvivingCFS
4K Followers 5K Following Disabled for a decade due to MECFS| Escaped homelessness | I’m advocating for those who can’t | See highlights tab for my free masking and disability art.
JH @jaymie_hu
30 Followers 43 Following
CranioCervicalInstabi.. @CranioUnstable
627 Followers 3K Following My entire adult life has been a daily struggle with #cervicalspine instabi(ity symptoms, and now totally disabling and untreated #CCI and #MECFS. Please help!
T @noFO__allMO
512 Followers 4K Following Queen of Vertigo👸Empress of Brainfog👑Wanderluster Interrupted🌎Inconsistent Gardener🌱#SevereMECFS #MigraineWithBrainstemAura #VestibularMigraine +etc,etc🙄
Larry Weis @LarryWeis7
409 Followers 1K Following #ME/CFS,#SFN,#Dysautonomia Owner-Commercial Insurance Agency
JH @JH8149596912203
11 Followers 45 Following
JJ @M02181653M
2K Followers 5K Following #TreatLongCovid #LongCovid #Notrecovered #MECFS #MillionsMissing #PwME #BC007
Logan Rhodes @Logan__Levi
5 Followers 60 Following Severe ME patient. Life derailed. Bedridden, no caretaker. ME/CFS, Fibro, IBD, c-PTSD, Myotonia Congenita. 🏳️🌈🏳️⚧️ they / them
Fliss Baker @baker_fliss
89 Followers 518 Following Crazy cat (rescue) lady, avid reader coffee and chocolate addict, artist, a Mommy to two beautiful girls and a gorgeous son. Owner of Wise Owl Book Shop 🦉
Nicole Lange🇨🇦 @NicoleL42759817
777 Followers 1K Following Proud momma, Proud grandma to pups Grizzley and Cedar, and Scruffy, animal lover, a positive person. Can’t have my own pets due to allergies. ME/CFS, fibro
Emma Fox @emszlyttle1
1K Followers 3K Following Ex Communications Manager BBC. All views here my own. Life on hold since March 2020 #LongCovid PoTS
AllNaturalBrit @NaturalBrit
8 Followers 169 Following I beat cancer naturally. I beat M.E/CFS naturally. I had a baby naturally after I was told I was infertile. I love all things natural. I share my knowledge :)
Long Covid Advocacy I.. @LCAIreland
2K Followers 3K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
Justice is like air @JusticeIsAir
199 Followers 2K Following Justice is like air; without it we cannot survive; We’re suffocating from lack of Justice! #DisabilityJustice #pots #ptsd #depression #migraines #mecfs etc
Megan Elizabeth Morri.. @MoFromTheGut
698 Followers 5K Following Human trafficking survivor & community prowess capacitor. Find more Max Mo at Mack's Memo • https://t.co/OBKkYnoMU3 🕊️🌻🌿✨
Keka Ju @Rebe73539251
1K Followers 4K Following PACIENTE de #CovidPersistente #EncefalomielitisMialgica y #DisautonomiaAutoinmune LUCHANDO POR NUESTROS DERECHOS, VISIBILIZACIÓN Y POR #SanidadPublica
Culinary Cabin @Culinary_Cabin
1K Followers 3K Following Culinary Cabin was born out of a passion for the art of cooking and a desire to provide home chefs 👩🍳👨🍳 with the tools they need to excel in the kitchen.
Lisa Zett @ME_LisaZett
2K Followers 1K Following #MECFS #Lyme #Democracy #🌈Ally PhD Political Science. I do care. she/her @[email protected]
Dierdre Sherman @DierdreSherman
83 Followers 283 Following #fblc Longhauler since Mar 2020, single mother, student, couch potato, animal lover, crazy cat lady, pan, 🏳️🌈ally, #ADHD, neurodivergent, cèile dè
Joe Connolly @joec_chicago
430 Followers 5K Following
Long Covid Sufferer M.. @LCsuffererMECFS
2K Followers 2K Following Diagnosed with #MECFS and #POTS. Looking for a treatment. #Dysautonomia #Millionsmissing #LongHauler #LongCovid #Apheresis #SteroidPulse #IVIG #BC007 #Rituximab
Kim Phillips @KimPhil42933949
45 Followers 620 Following
AloneLonghaulLady @LadyLonghaul
855 Followers 5K Following animal adorer • impatient advocate • LC 2020 • masker • needs more spoons • prefers clean air • some adult language • #ADHD #HSD #spoonie #pwME #pwLC
Steve Walden♿ @stevewalden
381 Followers 1K Following Hubby & dad of 3, kid brother to Jesus. Not flawless. living with ME & hEDS ✝️🇺🇸♿🪫 Fan of @U2 @Broncos #GoAvsGo & 🏴. 🙏🏻 for 🇮🇱
Massachusetts ME/CFS .. @MassMECFS
2K Followers 790 Following To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
Long Haul Hope - A Lo.. @longhaulhope
1K Followers 2K Following #LongCovid #LongHauler (sick 12/2019 - shortness of breath, severe fatigue, & brain fog ever since). Finally heard, validated and formally diagnosed 2022. #FBLC
C Aust @Cdownunder
19 Followers 31 Following Human. Activities: fractal across disciplines; science, computing, community, people, issues, rural, city, global. Seek our species survival in civilized form.
marifecita17 @marifecita17
277 Followers 2K Following
Jay Muscle @JayMuscle1
74K Followers 10K Following Female Muscle, Models and Other Stuff 18+. I do not own any of the Photos or Videos posted. DM for Removal, Credits, Promo or Collaboration 🌈✨
Neenyah Ostrom @neenyahostrom
564 Followers 2K Following Editor, ghostwriter, author--America's Biggest Cover-Up: 50 More Things Everyone Should Know About the CFS Epidemic & Its Link to AIDS, 2nd Edition on Amazon
Alex Pop @AlexPop70603710
48 Followers 305 Following
Gottfried Weibler @goddyw567
1K Followers 4K Following Formerly CIO / Group IT Director, now on sabattical leave / retirement due to #MECFS
Lucy Ainsley @Mummy2rascals
287 Followers 806 Following
Heather Hayes @hhayes91
1K Followers 5K Following 💙 BC Survivor, Friend, Lake & Dog Lover, #meshinjured Diagnosed w/#MECFS, MCAS, Fibro, CRPS, PA, Hashimoto’s & Autoimmune CIRS from J&J Prolene mesh.
Jason Boyce @FatigueGone
82 Followers 490 Following Pioneer of therapies to beat chronic fatigue caused by Long COVID, EBV, Lyme and fibromyalgia. Book now available on Amazon - Chronic Fatigue Gone! GET WELL NOW
Ed Fiaschi @ed_fiaschi
207 Followers 263 Following Husband, father, grandfather. Jesus follower. Among all of God's actions there is none which is not entirely a matter of mercy, love and compassion.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 206 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Agy Lena 🏳️�.. @agy_lena
9K Followers 290 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
T @noFO__allMO
512 Followers 4K Following Queen of Vertigo👸Empress of Brainfog👑Wanderluster Interrupted🌎Inconsistent Gardener🌱#SevereMECFS #MigraineWithBrainstemAura #VestibularMigraine +etc,etc🙄
Sydney Hegele @sydneyhegele
3K Followers 5K Following Author of The Pump (2021) Bird Suit (2024) Bad Kids (2025) @invisibooks. Prose Editor @The_Temz_Review. Rep: @zoealinehoward. They/Them
Greta Thunberg @GretaThunberg
5.6M Followers 3K Following Autistic climate justice activist Born at 375 ppm
NASA Exoplanets @NASAExoplanets
1.5M Followers 119 Following We're the NASA team looking for – and finding – new worlds. Verification: https://t.co/s1F7QxOQnV
Cynthia Johnson @MineToDo
419 Followers 2K Following ME/CFS since 2009. Still Sick Still Fighting. Stand By ME/CFS!
Maria Agnes Quinn @MariaAgnesQuinn
435 Followers 810 Following #NoJusticeNoPeace #DisabledActivist #Widow #CRPS #ME #HeterochroMia I’m a #VisuallyImpaired #WheelchairUser #BEDRIDDEN (40months) #LoveIsAVerb🏳️🌈♿️
Neenyah Ostrom @neenyahostrom
564 Followers 2K Following Editor, ghostwriter, author--America's Biggest Cover-Up: 50 More Things Everyone Should Know About the CFS Epidemic & Its Link to AIDS, 2nd Edition on Amazon
Howard Wang @Convoy_Invest
144 Followers 232 Following Convoy Investments founder, ex-Bridgewater, professional ballroom dancer.
Тетяна Denford .. @TetyanaUkrainka
15K Followers 635 Following Ukrainian. Translator @20DaysMariupol, ‘The Battle for Ukraine’: @FrontlinePBS @apnews @nytimes Author: 'The Soldier's Child', ‘The Child of Ukraine' on Amazon
Volodymyr Zelenskyy /.. @ZelenskyyUa
7.4M Followers 1 Following President of Ukraine / Президент України
Movie About M.E. @Movie_About_ME
478 Followers 2K Following A documentary that seeks to shine a light on and tell the stories of those suffering with myalgic encephalomyelitis and Long COVID.
Simon Garner Photogra.. @SimonJGarner
125 Followers 256 Following Visual Artist, Dance photographer, and defender of the Oxford Comma. Autistic They/Them 🌈 https://t.co/TDAaXW96nZ
Sonya Huber @sonyahuber
7K Followers 7K Following Books: Pain Woman Takes Your Keys, Voice First, Supremely Tiny Acts, etc. Prof., Rheumatoid, human raccoon, @[email protected] she/her/they
Patricia Lockwood @TriciaLockwood
108K Followers 1K Following hardcore berenstain bare-it-all | [email protected]
Manuscript Academy & .. @MSWLMA
13K Followers 204 Following The Happiest Place in all of Publishing! Live & Written Critique. Live Events. 60+ Hours of Content. Brought to you from Manuscript Wishlist ®. #MSWL
Grandpa's Advice - En.. @wildepix
78 Followers 244 Following I'm a chronically ill family guy (ME/CFS). I love many flavours of creativity... when I can muster the energy for any of them.
Czeslaw Milosz @czeslaw_milosz
297 Followers 0 Following Micro-homage to the great poet. Daily quotes by and about Milosz, as well as from the writers he translated, cited and reflected upon.
AmbrosineShitrit 🇮.. @AmbrosineShitr2
1K Followers 2K Following Founder @antisemitismeye,Work in Music record industry 1986 onwards,violinist, #Zionist,#MEcfs,Cats🐈,#Jewish,Likudnikit, #longCovidVaccine Pfizer EM4965
Clare James @Clarejames131
6K Followers 5K Following ✍Writing first novel. Enjoy 📚 Photography Piano/Sax Art Gardening QiGong Laughter + Tea 🍵 #amwriting #pwME
Winston Blick @winstoncb
3K Followers 901 Following #MECFS post-viral #longhauler | ally of #LongCOVID | quoter of @mecfsquotes | previously, 🚵🏼♂️ 🏂 🏃🏻🏕️ 📖
Catherine @JonathanLSeagul
3K Followers 4K Following Happily married, proud mum, former Chartered Engineer, ME, HI, ASD, ADHD Mastodon @[email protected] Bluesky @jonathanlseagull.bsky.social
Jeff Smith @JefferySmithME
1K Followers 916 Following Obsessed by many creative & ridiculous things. Fighting severe M.E. Very Liberal and happily woke. ❤️🇨🇦 #pwME 🏳️🌈
Anna Radcliffe 💙�.. @AnnaRadcliffe74
438 Followers 1K Following Missing from life since 2019 #mecfs. Still mum to my beautiful boy. Still happiest with hands in the dirt. Waiting for science to catch up. #mecfs #pwme
Tracie White @tracieawhite
904 Followers 556 Following Author of The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son. Senior writer for STANFORD magazine.
KT King @KTKINGbooks
2K Followers 3K Following Author of Little Eden novels📚💎awakener🗝 🌏inspirational 😇🤗enlightenment 🌈💎higherconsciousness👽😇compassion 🌈🦄ME/CFS/Fibro🙁🙏💖 RTs 👍 millionsmissing
Vlad Vexler @VladVexler
17K Followers 841 Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in Russia, home is London | Living with ME since 2003. | 🔗 🎥
Sarah Ramey // Wolf L.. @sarahmarieramey
2K Followers 266 Following Author of THE LADY'S HANDBOOK FOR HER MYSTERIOUS ILLNESS. Also known as Wolf Larsen @wolflarsenmusic. Empress of all maladies.
Bo Burnham @boburnham
2.1M Followers 528 Following
RLS Foundation @RLSFoundation
955 Followers 590 Following Dedicated to increasing awareness, providing support, and funding research to find a cure for restless legs syndrome.
Hannah @violinvet
483 Followers 117 Following I love rocks, trees, oceans, and gardens. I love playing violin, rock climbing, boating, baking. Episcopal priest. PhD candidate. I also have ME/CFS and POTS.
Tilman Andris @TilmanAndris
3K Followers 5K Following Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
President Biden @POTUS
34.8M Followers 5 Following 46th President of the United States, husband to @FLOTUS, proud dad & pop. Tweets may be archived: https://t.co/HDhBZBkKpU Text me: (302) 404-0880
Alauraborealis @laura_bridgeman
290 Followers 174 Following Writer @Sentient_Media & freelance. https://t.co/stl6SejMcf
SCOTUSblog @SCOTUSblog
601K Followers 65 Following Independent news and analysis on the U.S. Supreme Court. Left Twitter 4/20/23. Follow us on TikTok! 🎙: SCOTUStalk. 📸: scotus_blog.
Emma Dolan @JustMissEmma
38K Followers 2K Following PR guru, to PJ warrior...horizontal in an odd world. Battling multiple conditions with fierce humour, and writing books along the way #DiaryOfAHorizontalGirl
Desus MF Nice💯 @desusnice
986K Followers 2K Following #HTK | #KNICKS | 🇯🇲 | @Desus on #countersocial & @spillmob | https://t.co/fWYKvafF7e | #BX | guest hosted @thedailyshow | @SHODesusAndMero
IamLongCovid @IamLongCovid
2K Followers 1K Following I am Long Covid! #IamLongCovid Spread the word! Bring attention to those suffering from #LongCovid, #ME #CFS #EDS #MCAS #MECFS #LongHaulers #RareDisease
Ayishat Akanbi @Ayishat_Akanbi
83K Followers 907 Following Garment selecta. Thinking aloud. Very Indoorsy.
Anne Thériault @anne_theriault
87K Followers 4K Following putting the hag in hagiographer - please send any inquiries, compliments, and unsolicited advice to [email protected]
Hannah Alpert-Abrams .. @hralperta
6K Followers 3K Following 'Acceptably competent, borderline amazing' | digital / humanist | @AFGENational rep | she/her | @[email protected]
Marilyn Gavranovic @marilyngavrano1
685 Followers 350 Following Mum, Grandma, Advocate for Mother Nature & Human Rights; Disability Support Worker, Teacher- retired
ᗰᔕ ᑕᗩT @oshunsprite
923 Followers 1K Following Negotiating life with chronic illness: 21 years ♿ #pwME, one of the #MillionsMissing, Expressive & Healing Arts, Poetry, 🌿🌸 #ShinrinYoku #MEAWARENESSHOUR 💙
thehoch @hochalicious
3K Followers 4K Following Reward for any information leading to the recovery of grandfather's automobile. Last seen near big lake.
Sam Adams @SamuelAAdams
39K Followers 2K Following Writer, @SlateCulture. Member @NYFCC | @NatSocFilmCrix | @WGAEast Thinking about movies and cities.
Joanna Robinson @jowrotethis
97K Followers 2K Following Writer and podcaster at the @ringer • one of Cameron Crowe’s Uncool • taller than you think • author of MCU: The Reign of Marvel Studios for W. W. NortonCats are such good companions for people with ME, depending on severity of course. When I’m in bed, which is a lot, #Smorky is usually there too. She just wants to be where I am, and I love it! She’s the perfect cat for me. 🥰 #PwME #ChronicIllness #CatsOnTwitter #CatsOfTwitter
@BBCNews I’d love to work at full capacity, be at the office and socialise with colleagues again. I have a Masters degree and have worked relentlessly to build my career over the last 15 years. #LongCovid ruined that
@BBCNews Most of us would love to be able to work… but government isn’t investing in research into our conditions, so we cannot move forward. We’ve been screaming for help for years, and warned that the problem would escalate during and after the pandemic due to post viral illness.
@Squashedhedgi @BBCNews I am one of the #MillionsMissing. 43 years old, I spent 20 years building up my career from entry level analyst to director level. #MECFS has taken that away. I want to work but no effective treatments for #pwME make that impossible right now. #BBCBreakfast #BBCPapers #economy
@BBCNews ME/CFS would account for about 180 000 prime-age adults unable to work, a large chunk, a factor seemingly ignored when determining fair research funding & MRC /gvt action pwME have been left to languish on minimal funding, despite high disease burden & costs to economy £3b/year
@JesuisSanta @MEActNet that’s how i ended up bedridden. misinformed doctors gave me the same advice and it has taken me over a year to be able to get some of my independence back. my leg muscles never atrophied, far from it. i used to be addicted to exercise so resting is the hard thing to do.
On the 20th of February 2022, I walked up a mountain with my brother, exercising under the advice of a cardiologist who told me my symptoms were deconditioning. Two days later, I woke up in pain. I never got better. #MillionsMissing2023 #MyalgicEncephalomyelitis #MEAwarenessDay
I am one of the #MillionsMissing living with Myalgic Encephalomyelitis in the UK. #MyalgicEncephalomyelitis #MECFS ME Awareness Week 2023 💙
Sending love to everybody affected by ME/CFS. It’s a long-term condition with a wide range of symptoms. Unless somebody has this condition they don’t know how exhausting it can be. #MEAwarenessWeek #MECFS #MECFSAwareness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
This is a beautiful animation by Inga Topolnicki "An Existence Project". 💜 Maybe something to share with friends & family as a starting point for understanding life with #MECFS (depending on your severity). #pwME #MyalgicEncephalomyelitis Full video: youtu.be/dUrPFqGONM8
Live feed of lie-down demonstration in front of German parliament — #MEcfs LiegendDemo vor dem Bundestag youtube.com/live/Ju4Ghn6M4… via @YouTube #MEawarenessDay #MillionsMissing #pwME #MyalgicE
Stand By ME/CFS As the #MillionsMissing come out of the shadows, we band together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and support today! #ME #MEcfs #StillSickStillFighting #StandByMEcfs #EndMEcfs
1) Since I've been living isolated from the world since 2013, and from 2015, one visitor per year has not been uncommon. I've decided to film my current life with M.E. Not that my days are that exciting, but I often get questions about how I get by. How youtu.be/SYLMqnEWRBg
#MEAwarenessDay #MillionsMissing #WorldMEDay The years go past so quickly when you have ME. So much time lost to crashes. eg. Some days are just 5 hours long. 19 hours of being unable to do absolutely nothing, just sleeping or breathing. Missing so much of my life
#MyalgicEncephalomyelitis is a truly debilitating and devastier condition, the more you push to get on with life the more your punished. It’s still misunderstood in the medical world. I’m one of those #MillionsMissing but I will not stop using my voice to bring awareness to all!
Tomorrow is International ME Awareness Day. And I am #StillSickStillFighting like the other #MillionsMissing. I wanted to start by re-sharing this tweet thread. It’s still just as pertinent now, sadly.
Exercise does not cure #MECFS. We wish desperately that it did. What I wouldn’t give to have my life back; to hike, swim, skate and bike with my kids all the time. It’s too sad to even think about. It’s too cruel to suggest we haven’t tried hard enough. #ENDmecfs2021
My pillowcase for #MillionsMissing. These will be part of a protest art installation in Washington DC this Friday. More here: millionsmissing.meaction.net/protest2023/
30 years of slowly dying without sympathy empathy or support there are #MillionsMissing from life world wide alone & afraid help us Now before #longcovid takes millions more
📢 ME/CFS is regularly misrepresented & downplayed in the media 📢 ANYONE can get #MECFS 📢 ME/CFS is NOT just fatigue 📢 ME/CFS can leave you bedbound & unable to walk or speak 📢 There is no treatment or cure #MillionsMissing #StillSickStillFighting @MEActNet @NIH
It's ME Awareness Day 2023 #MEAwarenessDay #MillionsMissing #WorldMEDay so I'm sharing this podcast which raised awareness of my experience of being housebound with ME #TwitterNatureCommunity #TwitterNaturePhotography #chronicillness nature.scot/connecting-out…
Trends for United States
You might like
