Earnest @TomSanders2000

Joined June 2025

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Earnest @TomSanders2000

3 days ago

@Lobs_All_Day 9 TDs, 1 INT. Pretty awful…

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ME/CFS affects ~3.3 million Americans. 75% become too disabled to work or attend school. Patients report among the lowest quality of life of any illness studied — yet NIH research funding amounts to roughly $4 per patient/year and there are 0 FDA-approved treatments. This is a profound public health failure. We urgently need: • Major NIH funding increases proportional to disease burden (~500m/year) @NIH @Surgeon_General @MEActNet #mecfs #longCOVID

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Eric Topol @EricTopol

5 months ago

The suppressed report that concluded there is no protective or safe level of alcohol consumption, now published. It was commissioned by US Congress Report jsad.com/doi/10.15288/j… Editorial jsad.com/doi/epdf/10.15… "Despite the study’s adherence to its mandate, its findings were sidelined.”

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Carole Bruce @CaroleBruce17

6 months ago

Two poems by James Strazza who died this week. He had been suffering with severe #ME since 2019. A rare and sensitive man. It’s incredibly sad that once again we are mourning one of our own. May those that have blocked research and psychologised ME feel the pain of their actions

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Kelsay Books @BooksKelsay

7 months ago

kelsaybooks.com/products/wildn…

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Michael | APC Injury @michaelmoran

7 months ago

“This is similar to what happens to the immune cells in settings such as cancer and HIV...” says Marie Larsson, Professor of Virology at the Department of Biomedical and Clinical Sciences at Linköping University liu.se/en/news-item/l…

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Christoph Ströck @cstroeckw

a year ago

If you’re an MD who has seen severe or very severe ME/CFS patients and you still think this illness is somehow “functional,” you’ve been brainwashed to a degree that’s hard to fathom.

Lizzy H @hopefullizzy

a year ago

#MECFS #myalgicencephalomyelitis #awareness

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👻ghost of submersibles ablaze🌊 @MECFScomrade

a year ago

The more severe you get, the more meaningful a 5%, 2%, or even 1% improvement makes

Rename MECFS @renamemecfs

a year ago

There is a lake from mild to moderate, a sea from moderate to severe, an ocean from severe to very severe, and a universe from very severe to extremely severe. #MECFS