K @kammiri
UXR | Social R | #NEISvoid ~ I have a thing for animals with opposable thumbs. Aotearoa/New Zealand Joined August 2009-
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Spike protein-triggers mast cell (MC) degranulation in brain microvascular endothelial cells and microglia cells Mast cell (MC) activation triggered by SARS-CoV-2 causes inflammation in brain microvascular endothelial cells and microglia (2024) frontiersin.org/articles/10.33…
It is a wondrous experience to let someone speak without judging them, trying to fix them, trying to help them, or trying to defend yourself against them.
Here we go...
Empirically, I've considered that ND predisposes LC. I think the root cause is a psychoneuroimmune issue. Neurological biology (nature) + environmental factors (nurture) driving hyper SNS, therefore, imprinting for dysimmunity. Spike is a trigger. medrxiv.org/content/10.110…
Update about Millie Petition change.org/p/save-millie-… Fundraiser justgiving.com/crowdfunding/b… #BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie
AZDUVINE another low-cost antiviral whose approval is delayed in the US and Europe There is a blockade and even an attack against low-cost drugs which would be very useful both for AcuteCOVID as well as for ChronicCOVID or LongCOVID x.com/aguirre1gustav… x.com/aguirre1gustav…
AZDUVINE another low-cost antiviral whose approval is delayed in the US and Europe There is a blockade and even an attack against low-cost drugs which would be very useful both for AcuteCOVID as well as for ChronicCOVID or LongCOVID x.com/aguirre1gustav… x.com/aguirre1gustav…
It’s official: A new Lancet Infectious Disease paper solidifies evidence of long-term viral persistence after #COVID-19. Up to a quarter of people in the study harbored viral proteins indicative of persistent virus for up to 14 months after infection: polybio.org/covid-19-virus…
"Long COVID is a straightforward illness that can be addressed with good diet, sleep hygiene and exercise." "OK, would you like some blood? I understand there's a big dema..." "Nah nah, bruv, you're good lol"
I've compiled a list of tests and exams for diagnoses and control in Long C/Vax injury. notion.so/kammiri/Tests-… I'd love for some input on anything I've missed
Main takeaways from interview w/ Dr. Lawrence B. Afrin, one of the founding fathers of #MCAS: 1/ #MCAS is systemic inflammation +/- allergies 2/ You don’t have to have any allergy symptoms to have #MCAS 3/ Low histamine diet doesn’t work for everyone youtube.com/live/cX6uZKInI…
Can't wait 👏
Maraviroc promotes recovery from traumatic brain injury in mice by suppression of neuroinflammation and activation of neurotoxic reactive astrocytes #MECFS #LongCovid ncbi.nlm.nih.gov/pmc/articles/P…
This is an immense presentation on the potential drivers of Mast Cell Activation Syndrome (#MCAS), which is a central part of #LongCovid for many: primaryimmune.org/resources/vide…
Dr. David Kaufman follows up to Dr. Ruhoy’s discussion on connective tissue damage via inflammation. “You don’t need EDS to end up with the same connective tissue disorders we’re seeing such as craniocervical instability … it’s all about inflammation” #longcovid #mecfs #mcas
Dr. David Kaufman follows up to Dr. Ruhoy’s discussion on connective tissue damage via inflammation. “You don’t need EDS to end up with the same connective tissue disorders we’re seeing such as craniocervical instability … it’s all about inflammation” #longcovid #mecfs #mcas https://t.co/sWMnjbmsAJ
The medical ignorance is so dangerous. When your existence is forced to be centred around managing illness 24/7 you become an expert in it. First do no harm, get curious, honour your position of power, respect CI wisdom.
The medical ignorance is so dangerous. When your existence is forced to be centred around managing illness 24/7 you become an expert in it. First do no harm, get curious, honour your position of power, respect CI wisdom.
Berlin Cures have a press release out today about #bc007 trial progress. Two things jump out at me. 1. No bad side effects (👍) 2. The press release estimates only about 40% of #longcovid patients actually have the AABs that bc007 neutralises (👎) berlincures.com/en/news/bc-007…
So good to finally see the information getting to medical practice. May patients be unblocked.
Reginé Gilbert @reg_inee
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24K Followers 1K Following @[email protected] @spavel.bsky.social Design is the rendering of care. 💼UX Lead @AWS ⏳10+ yrs in problem design. Sick of rectanglesJina Anne @jina
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5K Followers 4K Following Co-founder of @GreaterGood_. Dad to three kids. Living in Chicago since 2001.@timnitGebru@dair-com.. @timnitGebru
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14K Followers 1K Following Author of 'Deceptive Patterns' | UX Director | Expert Witness | Speaker & Consultant | PhD Cognitive ScienceMatthew Harrison 🔬.. @hattdesigns
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5K Followers 1K Following Just a mailman with #POTS. Here to spread awareness and advocate for those with #dysautonomia #chronicillnessmaude 🍉 @sheisartmoney
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2K Followers 485 Following 25 I ME/CFS seit 2021 I https://t.co/lXLUhs2Prj I WING @uni__augsburg I DE II ENLearn Something @cooltechtipz
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4K Followers 4K FollowingWholesomeMemes @WholesomeMeme
3.1M Followers 294 Following 🇨🇦 We post memes, comics, wholesome stuff & anything we like. Get original shirts to raise money for charity https://t.co/Upa2OFOAJkNeurodivergent_lou @neuro_lou
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1K Followers 1K Following Lecturer and Researcher in Physiology at @UniWestScotland. Interests: ageing, exercise, HIIT, long COVID, ME/CFS, and mHealthJanet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...Natasha 🐱🦠 @doyouseem_e_now
2K Followers 673 Following 29 & sick with Severe #LongCovid for 13 months 🛌 Part of the biggest mass disabling event in modern world history. #MillionsmissingHarry Spoelstra @HarrySpoelstra
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4K Followers 134 Following 🔬Diving deep into #MECFS & #LongCOVID research. 🦠Dual role: Researcher and EBV ME/CFS patient. 🌍 Seeking answers.Mulher, jovem, trombose e embolia pulmonar. Morta e abandonada pelo sistema de saúde com diagnóstico de ansiedade. Gostaria que fosse o último, mas com Covid (e Covid Longa) negligenciadas, narrativa antivax nadando de braçada... Ainda vamos (estamos vendo) muitos casos assim.
Mariane foi medicada para crise de ansiedade. Posteriormente, um aparelho de ultrassonografia detectou quantidade expressiva de líquido na região torácica em.com.br/gerais/2024/04…
academic.oup.com/immunotherapya… "an in-vitro study using SARS-CoV-2 infection of human monocytes shows that MitoQ blocks SARS-CoV-2 replication, and reduces HIF1α stabilisation and inflammatory cytokine IL-1β and ACE2"
Vagus Nerve Stimulation increases remyelination and decreases brain inflammation: important implications for future clinical trials and the therapy of #MS. @SetPointMed @mssociety @Stanford_Neuro sciencedirect.com/science/articl…
My onpopular opinion, the interstitium will turn out 2b a remarkably important system in the body. I feel we will find new clarity by discovering & exploring extracellular matrix disease disorders that might explain a lot!
"Remarkably, doctors and scientists routinely encountered the interstitium but were taught to ignore it." the-scientist.com/interstitium-a…
“Theise explained further that the collagen that makes up the interstitium is piezoelectric. It can convert mechanical force into electrical currents….Collagen…,becomes a piezo crystal. Any movement of the collagen will generate electrical energy,”
The Role of Interleukin 6 During Viral Infections #IL2 #IL6 #IL17 #IFNγ #MECFS #LongCovid frontiersin.org/journals/micro…
"Remarkably, doctors and scientists routinely encountered the interstitium but were taught to ignore it." the-scientist.com/interstitium-a…
There's a really big difference between supporting the mental health of people with MECFS/LC (necessary), and weaponising mental health for the oppression and denial of their physical disease. This is a distinction a lot of people, unfortunately, need to learn. #MECFS
A friend with LC who had t-cells just above an AIDS patient has had his normalise once removing coinfections Hope this gives a little hope
Excited to have this review on #autoimmunity in orthostatic intolerance syndromes, including #POTS, published in @JPM_MDPI special issue that I am guest editing, authored by none other than Dr. Blair Grubb et al! Dr. Grubb is a legend in our field. 🫀🙏 mdpi.com/2075-4426/14/4…
This tremendously exciting paper is now published: Exercise in #LongCovid induces severe tissue damage & skeletal muscle necrosis, metabolic disturbances, myopathy, & tissue infiltration of amyloid-containing deposits. Patient-Led Research Collaborative helped fund this study!
After a long wait, our longitudinal long COVID study is finally published in @NatureComms: nature.com/articles/s4146…. We find a skeletal muscle alterations in patients with #longcovid, which worsen with exercise. 1/n
#LongCOVID Symptoms Improved after MDMA & Psilocybin Therapy: a case report authorea.com/users/762473/a… "The patient reported an improvement of ~90% in her overall well-being, compared to her initial presentation. The patient was again able to return to work & continue with her PhD"
IVIG infusion #2. Measurable improvements: heart rate and light sensitivity. #LongCovid
Spike protein-triggers mast cell (MC) degranulation in brain microvascular endothelial cells and microglia cells Mast cell (MC) activation triggered by SARS-CoV-2 causes inflammation in brain microvascular endothelial cells and microglia (2024) frontiersin.org/articles/10.33…
One thing is for sure - if you see a burning house and you want to save it, the first thing you need to do is put the fire out. As any firefighter will tell you: don't put the wrong thing on a fire - you might make it worse. In PAIS, the right drugs to put out the 'fire' 4/
Recibiendo mi segunda infusión del ensayo clínico BC-007 en @QS_Madrid Quiero expresar mi más sincero agradecimiento por el excepcional cuidado y atención que estoy recibiendo de todo el equipo de @PabloGVasco . #covidpersistente #longcovid
Help us shape a Māori digital identity org crafted for our people, compliant with global standards. 👉 help here: Survey (15 mins): forms.gle/4K73TZcvvVS8t3… or Workshops: signupgenius.com/go/10C0B4BAAAB… (6 spots each session) Help define a digital future! #DigitalIdentity #MāoriCulture