LongCOVID Patients Arkansas @pwlcArkansas
Patient-Centric community platform for long Covid patients in Arkansas #healthequity #longcovid #healthjustice #dataprivacy. Part of @CareConnectlc Joined April 2023-
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Long Covid study shows TLR4 inflammation is at the core of the disease. Stop/Reverse to end the feedback loop causing ongoing downstream issues of inflammation and micro-clotting . Multi prong approach should work. Antiviral, TLR4 block, Fibrin break up, Probiotics… What Else?
We need exactly the same for #ME/ MECFS as @LisaAMcCorkell is asking for, we needed it decades ago. So much suffering could have been avoided and #LongCovid might not even exist if we’d had it!
We need exactly the same for #ME/ MECFS as @LisaAMcCorkell is asking for, we needed it decades ago. So much suffering could have been avoided and #LongCovid might not even exist if we’d had it!
So excited to share our new website! It contains links to all episodes so far, exhaustion enterprises advert drawings, links to contributor content and a poetry section. Have a look at pempod.com
“The researchers found that those with preclinical Alzheimer’s disease had markedly different assemblages of gut bacteria… The team also found that the microbiome changes correlated with amyloid-beta and tau levels in the brain…” directorsblog.nih.gov/2023/06/27/cha…
ME/CFS Research Published 13 – 19 June 2023 There's been 10 new ME/CFS studies and 11 Long Covid studies. Paper one is on the circular RNAs (circRNAs) present in the blood, which have been shown to have a unique pattern in ME/CFS. meassociation.org.uk/lnth #pwME #MECFS…
Philippines -Doctor suggests mandatory mask-wearing return until cases decrease newsinfo.inquirer.net/1790621/doctor…
- My daughter learned how to read at 2 years old. - At 6, she was accepted into a prestigious conservatory for piano as the most talented applicant. - She played complex pieces by Chopin, Liszt, Mozart, Rachmaninoff, and others with ease from a young age. - When they tested her,…
Only ME – A Journal for people with ME/CFS £14.95 The diary can be used as a #symptomtracker and has snippets of information throughout to help with #pacing and #energymanagement. It is undated, so you can start it at any time of the year, adding your own dates as you go! Buy…
“If the virus is circulating, it’s also mutating. As we learned during the delta variant surge, some of those mutations can have devastating consequences” health.clevelandclinic.org/is-the-pandemi…
Long COVID and #MECFS are debilitating conditions with similar symptoms. Doctors and researchers have wondered what are the underlying biological abnormalities that may cause symptoms, and whether they are similar in the two illnesses. meassociation.org.uk/bkaw #LongCovid
Here is the updated link for today's conference x.com/pwlcresources/…
Here is the updated link for today's conference x.com/pwlcresources/…
Many hospitalized individuals continue to battle chronic lung damage, impairing their quality of life. #COVID19 #LongCOVID #healthcare wowt.com/2023/06/06/man…
I know "acceptance" is a loaded term for a lot of us w chronic illness, but I wrote about my journey (which is still evolving in many ways) to acceptance of living w #LongCovid. I hope it helps someone. today.com/health/essay/l…
A Major Problem With Compulsory Mental Health Care Is the Medication, via @nytimes madinamerica.com/2023/06/a-majo…
Harli Nahm @NahmHarli56881
85 Followers 5K Following
Tiffanie Rehler @TRehler58514
122 Followers 5K Following
Ashley Schlabs @ash_schlab
76 Followers 5K Following
Noreen Knipple @NKnipple9592
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Juliann Lillich @LillicJulia
60 Followers 5K Following
Rusalina Uren @rusali_ur
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Sydney Englehardt @SydneyEngl71934
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Raven Scouten @scout_rav
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Rochell Hansing @HansingHansi
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Annmarie Dinardi @AnnmarieDi46203
88 Followers 5K Following
Stephani Coopwood @steph_coopwoo
41 Followers 5K Following
Arica Stoor @arica91567
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Melba Lafave @lafave_me
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Jessie Gitt @GittJessie19933
65 Followers 5K Following
Sheila Debutiaco @debutiac_shei
74 Followers 5K Following
Angie Savino @AngieSavin66824
77 Followers 5K Following
Lakeisha Rzeszutko @LRzeszutk
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Ramona Moeder @moeder41824
59 Followers 5K Following
Kiera Shaeffer @KShaeff
37 Followers 5K Following
Fatimah Rupley @fatima_rupl
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Linh Heathman @HeathmanLi59967
76 Followers 5K Following
Emmie Boddy @emm_bodd
43 Followers 5K Following
Olive Buckman @olive_buck3246
48 Followers 5K Following
Ivy Levins @IvyLevins73091
45 Followers 5K Following
Stephany Huit @huit_hu
102 Followers 5K Following
Elfrieda Sigg @elfri_si
68 Followers 5K Following
Ellis Winkfield @WinkfieElli
91 Followers 5K Following
Romie Astarita @astar_rom
34 Followers 5K Following
Salena Hasten @SalenaHast
49 Followers 5K Following
יוסי פרס @Yosiperes
178 Followers 2K Following
Gabriella Samul @GabriellaS67355
55 Followers 5K Following
Amalia Nazaroff @AmalNazarof
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Amia Pellom @APellom18584
32 Followers 5K Following
Amy @mcbride_amy12
170 Followers 3K Following
Mari Pavelich @MariPaveli
40 Followers 5K Following
CleanTheAir @CleanTheAir2024
313 Followers 5K Following
Lyn Warsager @WarsagL
30 Followers 5K Following
Myrtle Cobia @CobiaCob
38 Followers 5K Following
Rubie Bessellieu @RubiBessellie
55 Followers 5K Following
Angelica Butzlaff @AngelicaBu1286
72 Followers 5K Following
carlos perez @Carlosfreedom10
66 Followers 2K Following
Fish Out Of Water | L.. @fowusorg
19 Followers 115 Following Non-Profit 501c3 supporting effective treatment for C-Injured & LongHaulers | Bringing hope and healing to those with Long COVID. Msg @ Telegram @fowus_org
Vivan Falanga @falan_viv
45 Followers 5K Following
Kate Spitzmiller 🕊.. @KateSpitzmiller
6K Followers 6K Following #LongCovid since February 2020. M.Ed., BA: Human Geography, AS: Veterinary Science. “Autoritätsdusel is the greatest enemy of truth.” —Albert Einstein.
Margreet @MSmitG
594 Followers 5K Following #HumanRights ✨ #WomensRights ✨ #ChildrensRights ✨ #European #InternationalAffairs #Politics 🌍 #ProudMum✨ #RaisingAwareness #LongCovidKids ✨ #TreatLongCovid ✨🖤
Long COVID Patients W.. @pwlcwashington
101 Followers 115 Following Community platform for #pwLC #pwME #longcovid patients in the Washingaton. We are in this together. #Healthequity #dataprivacy. Part of @CareConnectlc
Long COVID Patients C.. @pwlcchile
125 Followers 133 Following Community platform for #pwLC #pwME #longcovid patients in Chile. We are in this together. #Healthequity #dataprivacy. Part of @CareConnectlc
Movilización Persist.. @CovidVictimas
3K Followers 4K Following Pacientes + familias #EncefalomielitisMiálgica + #CovidPersistente unidos y movilizados para denunciar el abandono
SuzySue @suzy_CP_Queen
175 Followers 236 Following Trying to find a new way with Long Covid, ME/CFS, anxiety & depression. Diagnosed with Cerebral Palsy at 43. Ex Primary teacher missing educating young minds.
Japan Long-COVID Rese.. @Japan_LongCovid
527 Followers 935 Following SHARE medicine, supplement, and the voices of patients of Long-Covid in Japan. and LOCOPEDIA. Japan account→@tako_wata. contact→[email protected]
N Rog @Nc_Rog
1K Followers 2K Following Once highly active. Now mostly housebound due to Long Covid and resulting ME/CFS and POTS. First waver March 2020. Yes BEFORE the vaccine.
Association Action Co.. @ActionCovidLong
1K Followers 2K Following Les oubliés du Covid S’unir pour agir, ensemble pour la reconnaissance #CovidLong #CovidLongPediatrique #LongCovidAwareness
Millions Missing Mexi.. @sfcem_mexico
696 Followers 1K Following #MillionsMissing #MillonesAusentes es un movimiento internacional que visibiliza y aboga por pacientes con Síndrome de Fatiga Crónica/Encefalomielitis Miálgica.
Catherine Harris @oovChirrupvoo
2K Followers 5K Following Christian, socialist. 🏴🇹🇹. Long Covid, ME etc. Kidney cancer survivor. Sometime HA NED, former Chair Haringey Pensions Committee.DV survivor.
Long Covid Sufferer M.. @LCsuffererMECFS
2K Followers 2K Following Diagnosed with #MECFS and #POTS. Looking for a treatment. #Dysautonomia #Millionsmissing #LongHauler #LongCovid #Apheresis #SteroidPulse #IVIG #BC007 #Rituximab
GeoChicken @geo_chicken
438 Followers 761 Following #LongCovid 04/21 #MECFS #POTS I am a human being and against all odds I still am a PhD cand. in Geophysics and I will never ever let go neither of them. 💙
Scribulatora @Scribulatora
22K Followers 5K Following Radical Centrist. Writer. Photographer. Forbes alumnus. Occasional long form ranting. 🇨🇦@[email protected] | https://t.co/eGTZjzcWvt
Justin Trudeau @JustinTrudeau
6.6M Followers 909 Following Father, @liberal_party Leader, 23rd Prime Minister of Canada. | Papa, chef du @parti_liberal, 23e premier ministre du Canada.
Nora Loreto @NoLore
37K Followers 1K Following My beat is correct ☆ Socialist ☆ half of https://t.co/WQ63IzKiqL I write books and I know things. Chialeuse. https://t.co/2egL6O8q3V
Rachel Notley @RachelNotley
215K Followers 10K Following Albertan. Mom to children & dogs. Wife. Friend. Leader of the Alberta NDP. Account run by Rachel Notley and staff. She/Her #ableg
Charles Adler @charlesadler
75K Followers 4K Following Free Press columnist. Host of "Charles Adler Show" Podcast - after 30 yrs/Talk Radio/TV - Canada/US - Emmy Award in US-Lifetime Achievement Award in Canada.
The Beaverton @TheBeaverton
154K Followers 302 Following North America’s Trusted Source Of News. Now accepting support on Kofi https://t.co/LFZuB18Ddb and selling merch at https://t.co/a4TCyGFqAK
Barney Panofsky's Bes.. @mynamesnotgordy
92K Followers 2K Following Former progressive conservative specializing in delivering satirical irony through interpretive dance since June 2018. If anyone orders Merlot I'm leaving.
Andrew Coyne 🇺🇦.. @acoyne
145K Followers 1K Following Explorer, founder of Lachine, seigneur of Cataracoui, discoverer of the mouths of the Mississippi.
Terrill Tailfeathers @Terrilltf
44K Followers 29K Following Blackfoot. I mainly retweet for causes I believe in and things I find funny. No, I’m not on Facebook.
Cheri DiNovo @CheriDiNovo
82K Followers 50K Following Order of Canada Performed Cdn 1st legalized ssex marriage, passed most LGBTQ Bills in Cdn history as MPP Minister Trinity St Paul's She/Her
💕 fleur delis .. @fleurdelis30
2K Followers 2K Following Research on 🇨🇦’s Koch: #AureaFoundation #munkdebate #DonnerCanadianFoundation #DonnerFoundation ⚠️BOYCOTT kiwicom247⚠️
M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) & her M.E. advocate spouse/caregiver. Before: Architect, software interaction designer.
Suzan Jackson @livewithmecfs
4K Followers 4K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
IleneRuhoyMDPhD @RuhoyMD
7K Followers 1K Following Neurologist treating chronic and complex disease #NeuroEDS Medical Director #ChiariEDS Center @MS_SouthNassau Book Release Spring 2025
wigglethemouse @wigglethemouse
935 Followers 140 Following 49ers and Swindon Town supporter. Engineer. #mecfs has got in the way of having a life
Phil Stewart 💙 @PhilStewart23
2K Followers 2K Following Person Centred Counsellor. ME Sufferer. Social Justice & Equality. LFC. #MyalgicEncephalomyelitis #autismawareness #YNWA #MentalHealthMatters
Nia | The Chronic Not.. @chronicnotebook
11K Followers 960 Following Here to smash societal stigmas about #chronicillness & #disability💊 Life with #ibd #eds #migraine #fibro #dysautonomia & more 🦓 IG 49K📷 Join Discord⬇ she/her
Georgia Elle @_memyselfandwhy
1K Followers 323 Following 26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme
Rae @Sunny_Rae1
12K Followers 2K Following Dr Rae Duncan MBChB,BSc(HONS), MSc,MD,FRCP, SCMR3,BSE TTE/TOE Accr. Consultant Cardiologist & Long Covid Researcher. #TeamClots #LongCovidKids #WHN.Views my own
Dr K Fearnley @fearnley_k
12K Followers 590 Following NHS Doctor | Animal rights activist | Long Covid Research Initiative | helping to make invisible illness VISIBLE | advocate for #ME | #LongCovid | #CleanAirBill
A. Mannan Baig (Ph.D... @AMannanBaig
13K Followers 8K Following Consultant COVID-19 and Long-COVID. Employer Free status. Book for your session for Long-COVID and injuries related to S-protein in LC.
Lisa McCorkell @LisaAMcCorkell
6K Followers 2K Following @patientled cofounder | #longcovid patient-researcher/advocate | disability justice policy nerd | MPP | she/her | natures 10 2022
Long COVID Physio @LongCOVIDPhysio
27K Followers 1K Following #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Long Covid SOS @LongCovidSOS
27K Followers 941 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Eliana Uku @ElianaUku
3K Followers 531 Following #LongCovid patient (mar '20) incoming @StanfordGSB | ex @37angelsny @paypal @inturnhq
Danny Altmann @Daltmann10
26K Followers 2K Following Immunology Prof. Ed at OUP OxfordOpenImmunol, Imperial Coll research group with @BoytonRosemary. Co-author - https://t.co/TRqYKSl30V
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Gwen B. with LC🦩�.. @PenGwenWithLC
5K Followers 5K Following P/w Long Covid, writer, nerd, ENM, loudmouth, green thumb, artist, queer, ND, & unstoppable! No alt text= no RT https://t.co/Hj2Dq2wRlJ #FBLC
Renuka Dhinakaran @renudhinakaran
6K Followers 602 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
Kirst @kirstler31
2K Followers 937 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS Part of the #Renegade50 💫 @RemissionBiome
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
clair elle ❀🦌 @ClairElle__44
3K Followers 90 Following former IT analyst and occasional film photographer. chronically Ill for the social mystique (ME, hEDS & POTS)
Seets💫 @MamaSitaa__
8K Followers 841 Following Lover of plants, astrology, and being a good human. Long Covid sucks. Hot people wear masks. 🤌✨Amid growing #mentalhealth crisis, #research raises questions about the mass rollout of brief psychotherapies in Australia. #TherapistTwitter #therapy #psychiatry #psychtwitter madinamerica.com/2023/05/austra…
The new normal. Watching people collapse on live tv. This time during a Doug Ford press conference vm.tiktok.com/ZM2eSDPSC/
Later this week there is a discussion on the current U.S. definition of #LongCovid (working definition in screenshot below). Welcoming input from the community on this thread! 1/
[TW: story about severe ME/CFS] Some time ago, a person with severe #MECFS requested that I visit with them. It has been a while since I was there and I’m still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)
Many thanks to @WomensHealthMag for interviewing me & sharing part of my Sisyphean journey with #LongCovid #POTS! Grateful for the opportunity & hope it inspires other women to fight for their health💪🏼❤️🩹! #MECFS #MCAS #EhlersDanlosSyndrome #Dysautonomia womenshealthmag.com/health/a435943…
This is why we are funding the first IVIG clinical trials in #POTS, #LongCOVID, #Sjogrens and #AGID! You can help by donating to our POTS, Dysautonomia or Long COVID Research Funds at CureDys.org.
OVERALL CONDITION Over 81% on SCIG (n = 11) & 72% on IVIG (n=29) reported their overall condition improved. Strikingly, >52% reported feeling moderately to much better w/ >27% of the 38 respondents feeling “much better.” This is significantly better than most other surveyed txs!
Fantastic meeting of the World ME Alliance just now. We had colleagues join us from South Africa, Portugal, Czech Republic, Netherlands, Wales, USA, Isle of Man, Belgium, Northern Ireland, Republic of Ireland, Canada, UK, and France! #WorldMEDay #LearnFromME #MyalgicE
With #WorldMEDay 2023 fast approaching on May 12th we're launching our next resource! The new ME Factsheet is available in 4 languages and has a focus on post-exertional malaise - when pushing harder can make you sicker. #LearnFromME #MyalgicE #LongCovid worldmealliance.org/2023/04/new-fa…
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