Spoon Central 🦓🥄 @spoon_central
I re/post tweets related to #chronicillnesses to spread info, offer support, & build our #neisvoid community. #CRPS #disability #dysautonomia #chronicpain 🦓🥄 SpoonCentral.com Joined November 2020-
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I know there are a lot of GoFundMe's being circulated, but this one is for a family member who desperately wants to regain freedom by getting a new wheelchair. Every dollar helps! gofund.me/1259aabf
I feel this so hard right now.
After last night's night-sweats, I went through 5 changes of clothes. At work right now, utterly exhausted, but refusing to miss out on an important meeting. I'm currently drinking the lowest caffeine tea I could find (needed a little boost), and it tastes like the smell of A&D.
Good luck and thank you @PlzSolveCFS !
Good luck and thank you @PlzSolveCFS !
Don't you forget it! #affirmation #positivevibes #womenempowerment
I went away for a work conference (it was great!) and am now suffering the post-excitement hangover. Brain fog. Unstable mood. Exhaustion. I feel better knowing what it actually is as opposed to thinking something else was wrong. Guess I'm watching zoo shows in pjs today.
Before leaving for my conference, Luca said "but I don't want you to go to Hogwarts!" I'm proud that he made a Harry Potter reference and honored that he thought I was cool enough to go to Hogwarts!
People don't realize that with chronic illnesses, you mourn the life you used to leave and the one you thought you were going to lead but now can't. Every time an illness steals something else from you, you go through the entire process all over again, as if it was the first time
I can't tell you how much I love and appreciate this post @Tara_Moss ! This. Is. Everything. I wish everyone could see, understand, and feel this.
I can't tell you how much I love and appreciate this post @Tara_Moss ! This. Is. Everything. I wish everyone could see, understand, and feel this.
If you know someone with a chronic illness that lost power due to recent storms, check on them! They may be desperate for power so they can utilize the devices that keep them alive and safe!
Happy #InternationalWomenDay ! Thank you to everyone who inspired me to be the woman I am today!
I've learned through Spoon Central how much I love advocating for people and impacting change! Thank you all for being part of my self-discovery journey!
Still sick (not covid)...starting week 3. Let's see what the doctor has to say. On the bright side, my students pay closer attention to me because of my sick voice. They want to laugh (it souns funny so I encourage it) and actually hear what I'm saying.
Not to brag, but I can breathe out of both nostrils today...most of the time.
I walked into work today (masked) and my colleague said "are you sick...again?!" He meant it as "you can't catch a break" so I just smiled and replied "welcome to life with an autoimmune disease"
You are clearly making a difference @PhoebsBo! As we all know, one doctor can be the difference if someone lives or dies. Thanks to you, other people in the #NEISvoid now have support and hopefully, our doc is teaching other docs!
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
My Name Is Fibromyalg.. @fibromyalgiast1
6K Followers 6K Following Our official Twitter account. Raising awareness and helping fibromyalgia warriors find the help, support, guidance and advice they need 24 hrs a day worldwide
Angie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
FibroTamz @FibroTamz
3K Followers 3K Following live with Fibro, M.E, Arthritis & depression 😖🤪, SEN mum👪, autism advocate, carer to my mum👩🏽⚕️ wrestling & horror fan😱 I’m just me!! 🏳️🌈💖💜💙 🏳️🌈
More Than Fibro (SCIO.. @FibroThan
2K Followers 2K Following Providing community support and a benefit support service to people living with Fibromyalgia. SC051049
FN ⚘️ @MissFibro
898 Followers 596 Following 45\wife\ mom of 3\ ❤ 📚 \ sharing my journey of surviving life one day at a time with spinal arthritis, fibromyalgia, sciatica & more...
Nia | The Chronic Not.. @chronicnotebook
11K Followers 960 Following Here to smash societal stigmas about #chronicillness & #disability💊 Life with #ibd #eds #migraine #fibro #dysautonomia & more 🦓 IG 49K📷 Join Discord⬇ she/her
Carrie Kellenberger -.. @globetrotteri
5K Followers 2K Following ♿️ #Disability Advocate @spondylitis @TeamFibro ➡️ I write so you can learn about life w #Arthritis #axSpA #Fibromyalgia #MECFS #ChronicIllness #ChronicPain
Fibromyalgia - What I.. @SoIsFibroReal
16K Followers 15K Following Beating #fibromyalgia one day at a time, taking my power & my life back. Join me! The- So Is Fibromyalgia Real? What I Know Is Real -Blog #ClimateActivist too🌎
Jeannie Di Bon @jdibon
10K Followers 1K Following Internationally recognised EDS/HSD Movement Therapist. 15 yrs EDS experience. Author, Speaker, Educator. IMM, The Zebra Club & Moovlite. MSc Pain Mgt
Bev Schechtman🇮�.. @ibdgirl76
10K Followers 4K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPP
Chris✞chronicpainDA.. @ChronicPainDad
24K Followers 22K Following Raising Awareness for #Chronicillnesses🎗Supporting all in #Chronicpain I’m in agony 24/7 but I’ll #NeverGiveUp #StayStrong #YouMatter ✝️ https://t.co/bW802UapEX
Rachael Averill @averi_racha
71 Followers 5K Following
Karen Fredette @KaFredet
65 Followers 5K Following
Lyla Roumeliotis @LylaRoumel48877
79 Followers 5K Following
FOR Nature @JacquelynHedden
300 Followers 1K Following I've got questions about this thing we call life. Neurobohemian.
Mariah Leidholt @LeidholtMa21803
75 Followers 5K Following
Deetta Yuscak @DeettaY58692
77 Followers 5K Following
Ellie-rose Bocker @BockerRo
82 Followers 5K Following
Sadie Lillehaug @LillehauSa
35 Followers 4K Following
Dori Poplaski @DPoplask
48 Followers 5K Following
Alaia Katra @alaia_kat
14 Followers 3K Following
Susan Dougill @SusanD1408
455 Followers 656 Following I am a married mother of one teenage son. I have a wonderful husband who cares for me. I have ME/CFS Fibromyalgia, POTS, peripheral neuropathy & other things
Shiloh Nicolette @ShilohN8303
69 Followers 5K Following
Grazyna Champaco @champa_grazy
73 Followers 5K Following
Carie Mujica @CarMujic
76 Followers 5K Following
Frieda Behling @BehliFrie
56 Followers 5K Following
Cora Andrango @CorAndran
66 Followers 5K Following
Josie Longbine @jo_longbin
34 Followers 5K Following
Marian Jodlowski @JodMarian61418
1K Followers 4K Following Independent researcher and writer. He described the theory of gravitational muscle tensions and the function of the spine as a mechanical muscular transmission.
Verity Chaknis @VChaknis25038
69 Followers 5K Following
Norah Urlaub @NorahUrlau72106
68 Followers 5K Following
Maida Clayburn @MaidaC85979
82 Followers 5K Following
Harley-rose Akard @AkardRose2189
62 Followers 5K Following
Sydney Appia @AppSydne
42 Followers 5K Following
Ma Rohowetz @MRohowetz20980
82 Followers 5K Following
Ma Kowalcyk @KowalcykMa3464
98 Followers 5K Following
ChronicCareCompass @ChronicCompass1
21 Followers 187 Following Created by @Fwcdeborah, Chronic Care Compass offers tips and tools to make living with a #ChronicIllness a little easier. #EhlersDanlos #MECFS #Spoonie #POTS
Seraphina Crumbliss @SeraphinaC98063
36 Followers 5K Following
Libby Stanaland @LibbStanal
38 Followers 5K Following
Karyn Valentine @KarynValentine
1K Followers 2K Following I’m a chameleon..I’m a dichotomy..I’m just me 💜#Dontpunishpain #PAINKILLS #CPP #ProtectPainPatients #IPP $KarynCValentine @Karyn-Valentine-1 Photographer
Odelia Crafts @craf_odeli
41 Followers 5K Following
Raven Wooden @WoodeRav
56 Followers 5K Following
CRPS Awareness @CRPS_Awarness
385 Followers 1K Following CRPS RSD Warrior and I love designing notebooks and T-shirts. If you need one I can get it for you from Amazon
Disabled NHS England .. @disablednhs
161 Followers 788 Following Anonymous disabled NHSE employee. Activist, parent, BAME, professional. Exposing corruption, injustice and inequity in NHS England. Views own & of the people.
Liliana Rumbolt @rumbolt94637
31 Followers 5K Following
ButterflyChaseGirl @CjChaseGirl57
192 Followers 768 Following MARRIED TO A WONDERFUL MAN MY SOULMATE OF 31.5 yrs ! HAVE 2 WONDERFUL SONS ! I'M NOT SINGLE STOP MESSAGING ME PPL!!
HurtyHands @HurtyHands
40 Followers 29 Following Surviving Long Covid (3 years). Hopefully my stories will help fellow sufferers with understanding and maybe a little humor!
Natalie Simmons @NatalieSim96525
111 Followers 3K Following
Linnea @linnea_orabuena
199 Followers 3K Following
Elyse Brown @BrownElyse72460
106 Followers 3K Following
Mimi @Mimi46453461
459 Followers 3K Following Evil thrives when the good stand idly by! Don't be a bystander!
Angela @Milwgirl2
188 Followers 1K Following The perfect combination of sweet, sassy and don't f*!k with me. Perfectly imperfect and always improving.
Vital Reaction® @h2vitalreaction
790 Followers 5K Following Full Body Rejuvenation! Vital Reaction® is a #health and #wellness company specializing in molecular #hydrogen. #LongCovid #MECFS #CKD #Fatigue #millionsmissing
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
Charis Hill | they/th.. @BeingCharisBlog
39K Followers 3K Following Disabled. Queer. Living in forced poverty. Writer, speaker, cat theydy, gardener. Punny.
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
stable finally, getti.. @bennessb
27K Followers 693 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. find me on 🦣: @[email protected] she/her.
My Name Is Fibromyalg.. @fibromyalgiast1
6K Followers 6K Following Our official Twitter account. Raising awareness and helping fibromyalgia warriors find the help, support, guidance and advice they need 24 hrs a day worldwide
Thomas Kline MD, PhD @ThomasKlineMD
34K Followers 20K Following 42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6Ku
Angie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
FibroTamz @FibroTamz
3K Followers 3K Following live with Fibro, M.E, Arthritis & depression 😖🤪, SEN mum👪, autism advocate, carer to my mum👩🏽⚕️ wrestling & horror fan😱 I’m just me!! 🏳️🌈💖💜💙 🏳️🌈
More Than Fibro (SCIO.. @FibroThan
2K Followers 2K Following Providing community support and a benefit support service to people living with Fibromyalgia. SC051049
Ru 🌸♿️ (she/th.. @RollWithRu
29K Followers 658 Following queer disabled activist who is a lover of all thinks pink 🩷🌸🧚♀️🎀 ♡ cosplayer | streamer | activist ♡ 🌸for collabs/enquiries: [email protected]
FN ⚘️ @MissFibro
898 Followers 596 Following 45\wife\ mom of 3\ ❤ 📚 \ sharing my journey of surviving life one day at a time with spinal arthritis, fibromyalgia, sciatica & more...
Matthew Cortland, the.. @mattbc
54K Followers 3K Following Lawyer, immunocompromised, writer, public health nerd | Then: SSI. Be A Hero. Now: data & policy, disability, healthcare. they 🏳️🌈
Nia | The Chronic Not.. @chronicnotebook
11K Followers 960 Following Here to smash societal stigmas about #chronicillness & #disability💊 Life with #ibd #eds #migraine #fibro #dysautonomia & more 🦓 IG 49K📷 Join Discord⬇ she/her
J85 @JoWhitley85
87 Followers 554 Following 🌈 A lesbian warrior fighting daily with HeDS and fibromyalgia. Trekkie, writer of poems, theatre enthusiast, living and loving life.
Jeraldine Nagel @JeraldineNagel
49 Followers 636 Following
Lis DeWispelaere @elisajackdew
226 Followers 2K Following Arts & Culture Arts & Culture Art Classic Rock Design & Architecture Humor Interesting Pictures Literature Music Rock/Alt Soccer Technology & Science Travel
michelle Lynn myrda l.. @shell980907821
485 Followers 1K Following Retired RN of 28 yrs. grateful to be alive humble had severe Long Covid, ME/CFS, MCAS survivor and warrior! not a fan of POLITICS at all! loves nature way more!
Emma @seychelles311
2K Followers 3K Following Uterine Cancer Survivor; Endometriosis; Fibromyalgia; CFS/ME; POTS; MCAS; Ehlers-Danlos Syndrome; Chronic Pain - #HarmReduction Saves Lives - #EndTheDrugWar
Chronically Cork @ChronicallyCork
49 Followers 235 Following Living with chronic illness. In Cork. Ehlers Danlos Syndrome. Thymoma. POTs. Migraine .... and many more.
Laura McKee - Writer .. @strengthtearmum
725 Followers 679 Following Supporting Women With Chronic Illnesses. Get unstuck, find solutions and take action for change | #IIH #Migraine #Anxiety #MentalHealth | Get 10% off ⤵️
DM 🌍 @BookishDM
522 Followers 2K Following #wearamasksavealife I like books and caffeine #humanist #vaccinesWork #KeyWorker
Scott - All4Inclusion @A4IScott
2K Followers 220 Following The All4Inclusion Pod host | Sale Shark fan 🦈 | Wheelchair User | FND Warrior | https://t.co/LHftFbLEX2 | https://t.co/bS6pOf2v5v
Fibro Jayne @transchronic
8K Followers 6K Following TV ratings. Procrastinator. Streamer. Dreamer. Fatigue is my middle name. Autistic.
Chronically Raine @ChronicllyRaine
125 Followers 825 Following A blog on life with chronic mental and physical illness and disability, and my experiences around living with them. #disability #chronicillness #mentalhealth
David Bainbridge @D_Bainbridge
300 Followers 1K Following 🦓 Ehlers Danlos Syndrome |🤮 Gastroparesis 🥱 Chronic Fatigue |🙏 Pain Warrior |☯️ Bipolar |🔥CRPS | My only Talent is I just don't Quit!
Michael Neuvirth @LetsGoCure
1K Followers 284 Following Billions of people dream of cures for Invisible Illnesses. We merge patient intelligence & AI to make their dreams come true. Watch us bring cures to life!
Cynthia Brutchey @cynthiabrutch
233 Followers 2K Following When I met you flowers started growing in the darkest parts of my mind. Fibromyalgia Warrior.
hannah @hollywoodhautie
123 Followers 171 Following unapologetically me author & advocate surviving POTS & other autoimmune illnesses
undu method @undumethod
120 Followers 296 Following NFL Alumni & USATF Masters National Champion Wholistic Pain Management Coach- I cured my Fibromyalgia & Degenerative Arthritis https://t.co/MQ2nhQdNf7
Cripping it Queer sty.. @CrippingQueer
596 Followers 2K Following Tales of access, inaccessibility, queerness and the intersection of being queer and disabled. views are my own, like/RT not endorsement. They/Them
Brooke Keaton @SonoraSmile
793 Followers 1K Following Wife and mom to 2 beautiful daughters! Former teacher, now Covid Long Hauler and Long Haul Advocate 🩵. Fighting AxSpA, IST, PMDD, MDD, GAD $BrookeKeaton
Tet Green @tet_green
585 Followers 2K Following Creative, socially awkward, lover of books & nature, geek with a dream of hiking & camping. Passion for true crime, animals & learning. I'm also disabled.
Ali Godfrey @xandraem
398 Followers 4K Following
Rohit Aggarwal @docrota
5K Followers 4K Following Rheumatologist, research in Myositis & Interstitial lung disease, medical director, Myositis Center, Professor of Medicine, @UPMC @pittrheum
pRime_13🇦🇺🎸�.. @Pr1m3_13
1K Followers 5K Following battling #fibromyalgia posting humour, art, musick, film, literature gen x multi-genre musician happily married family guy darkpsyche
Kimberly @Kimberly0110333
335 Followers 554 Following Chronic pain & chronic illness fighter. #MusicTherapy Some things are true whether you believe or not
Racheal Krysiak @Bossyracheal
38 Followers 216 Following I was born with Chiari Malformation and I also have EDS and Epilepsy. I have a son who I adore and I’m mad about dogs! 🐶
The Chronic Edge @thechronicedge
176 Followers 525 Following Employee Retention Training & Motivational Wellbeing Coaching. | TB Podcast: Living on the Edge | #chronicwarrior
DasIstME @BobundDaisy
1K Followers 2K Following Psychologin, bis 2016 spez. in Therapien bei #ASS, seither arbeitsunfähig aufgrund ME, seit Covid schwer erkrankt #MECFS #LongCovid
Shannon Hughes, MA @theneur0psych0
36 Followers 321 Following She/they🌈. #ActuallyAutistic🦄. #EDSer🦓. #POTSie💗. M.A.-lvl PsyD student👩🎓 & therapist👩⚕️. Here to fuck shit up🧠. #ACAB🚔. #PNW-er hailing from I❤️NY
Dr. Heather Sue M. Ro.. @MedSociOnWheels
2K Followers 3K Following Medical Sociologist and Quant Methodologist @TheWHN. Disabled #AuDHD #EDS #MCAS #POTS ♿️😷. #IMaskBecause. BA @AuburnU, MA+PhD @SociologyUGA #WarEagle #GoDawgs
Amy_StlProgressive�.. @STLProgressive
3K Followers 3K Following Progressive, Ally, cat lady w 2 Shih Tzus, huge U2 fan, music lover, piano player, history buff & geek. Dance the ghost with me. No DMs.
K. @Aluminousvision
186 Followers 3K Following
Dr. Amy K. Guenther @amykguenther
97 Followers 262 Following Editor & Writing Coach for academic, nonfiction, and memoir writers in the arts and humanities. PhD in Performance as Public Practice (performance studies).
Tammy Whitaker @tianky3
311 Followers 2K Following Love weather, have chronic illness Psoriatic Arthritis. Spoonie 💕 Love my granddaughters Happily Married
Morgane FK @ForceKro
848 Followers 3K Following Cordon bleu quadragénique pas écrivain mais presque. #spoonie #trigeminalneuralgia #neuropathicpain #teamparents
Kirk Adams @KirkAdamsPhD
1K Followers 5K Following Innovative Impact LLC. Accelerating inclusion of people with disabilities in the workforce!
Julie Tyrrell @JulieTyrrell3
2K Followers 3K Following #Artist,# Naturalist, #Animal lover, #Mom,#Nana, #Aunt,#Sister,#Cousin,#Daughter,loves #Mother #Earth and #Chocolate! Resist🌊Love Stronger than Hate!!!
Nav Shaikh @shaikh_nav
476 Followers 2K Following Confirmed Diagnosis: -M.E.(cfs) 2004 -M.C.T.D. -Lifelong Lupus(SLE) -Primary Raynaud’s -G.E.R.D. -Klinefelter Syndrome -P.E.G. feeding tube (July 2023) & more!!
Leigh @Leigh70515251
48 Followers 642 Following Rather safe than sorry. Long-standing chronic illness has humbled me & given the gift of caution & sanity. Gratitude to health workers & kind activists.
Taegan Lewis ✨ Taki.. @TaeganLewis_
589 Followers 1K Following Queer | Disabled | Care Experienced | Tired 💤 Activist, Volunteer & Public Speaker 🐝 Views my own 💭
I'm Joe... Gentleman .. @joescreenwriter
2K Followers 1K Following Co-writer of the produced original swing musical Big City. Co-writer of IDLE GIRL, PHANTOM FUN-WORLD, & THE BOY FROM BELOW. Ready to write some horror for you!
susan pountney @susanpountney
805 Followers 3K Following I have ME/CFS, Fibromyalgia, PsA, and I'm old. Lived in Canada, USA and France. Divorced wife of a Dairy Farmer (Retired) , was a Monkman, proud Mother of Jon.
Pippa @lifeofpippa_
5K Followers 2K Following Disabled writer and speaker, charity sector comms consultant, novelty pyjama enthusiast. Rep'd by @litagencygmc. #DisabilityPower100 2021-2023! (She/Her)
GiGi END LEGISLATED P.. @twistedparent
4K Followers 4K Following 60+ just trying to survive my last 3yrs on #ODSP. I swear a lot you've been warned. NEVER VOTE CONSERVATIVE #ODSP, agnostic.
Erica marie 💞😘�.. @buyericastuff
477 Followers 409 Following few of my favorite things: 😍✨ women 🌈, fungi 🍄 cannabis 🌱, princesses 👸, the disabled community 🤗, & dogs 🐶 🥰 I am here to spread love.✌🏼❤️ Namaste🙏🏻
Isabel TR 🌷 @lothme_isa
553 Followers 2K Following Bolivian in NL 💜. Interested in sustainability & environment, but also in SF/F books & movies among other nerdy things😉 SP/EN/NL, she|her, #Fibromyalgia
Fab4Eyes @Fab4Eyes
316 Followers 691 Following Blogger, DIY-er, Science & policy wonk. #Spoonie with #endometriosis, #MCAS, #POTS. Sharing stories of managing a #chroniclife, as seen through my 4 fab eyes.
Two nights in a row with no zapping in my face! Trigeminal neuralgia let me sleep again y'all. Yay!! 😁💙 #trigeminalneuralgia #TN #facialpain #nervepain #MS #multiplesclerosis #thisisMS #endo #chronicillness #sleep #thisisme #mystory
A psychologist told me I shouldn’t say crash because it’s a negative word. I should say recovery or recovering instead. Doesn’t work. Me: can you cook dinner tonight please? I’m recovering. Hubby: what r u recovering from? Me: a crash 🙊🤦🏻♀️ 🤷🏻♀️ #PEM #MECFS #LongCovid #pwME
Yesterday kind of sucked. I was running on empty after a rough night of pain, GI issues, and no sleep, and it was hard. And I screwed up a doctor’s appt time. I’m treating today as an opportunity to be kind to & gentle with myself. #Migraine #NotJustAHeadache #ChronicMigraine
Nobody that has a long term, chronic physical or mental illness is automatically strong and resilient. They've just had to be in order to survive. Most of them would sacrifice that strength for a little less pain.
What hurts you the most as a chronically ill person? For me ,there are many things that hurt me but the feeling of being as a burden on others hurts me the most . #chronicillness
Why do I exercise so much? Because exercise is what keeps me sane while living with multiple health conditions. I am grateful for the ability to do the things I do. 💪 #chronicillness #MultipleSclerosis #endometriosis #endo #MS #trigeminalneuralgia #fitness #exercise #thisisme
A #spoonie family needs our help...#SingleParent & #disabled. Even $5 helps. Can you help? bit.ly/worldlupusday #MenHaveLupus #LupusRevolution #LupusaurusRex @patriciamenden7 @PainReaction1 @spoon_central @Clint99105373 @HonorJustLoyal @EDLMCLAURIN @FlemingInUSA
#RunningForJustice ❤️ 26 miles, 26 prayers, for 26 missing and murdered Indigenous relatives. I finished the 127th Boston Marathon today! You can learn more about who I ran for: jordanmariedaniel.com/runningforjust…
Our first group of advocates is off to meet their Senators! If you’d like to advocate virtually, visit p2a.co/m3itjze. #StopTheLongHaul
Grateful to have reached 30 years old today 🥂 a family day full of love and laughter. That’ll do me ❤️
i know it’s not the key thing that needs researching in M.E., but when we finally (please, ffs!) get adequate biomedical research funding i really want someone to look at the impact of periods on crashes etc, because oh boy do the 2 - 4 days pre-bleeding FLOOR me like little else
Sometimes having #severeME doesn’t mean you can’t go to the beach. It means you have horrendous after effects for ages if you do. Sometimes I choose to do things & deal with those after effects, just so I can experience a moment of living. I get judged on it from all directions
I’m still in here somewhere I tell myself.Fibromyalgia has stolen so many things from me.I have trouble accepting that I cannot do the things I used to do.Then there is The Judgement and Family&Friends who don’t understand.This is effecting my Mental Health.Does anybody resignate
You cannot see strength from the outside. True strength and resilience cannot be perceived with the eye. Make no mistake. I have never been more resilient. I have never been more true to myself. I have never been stronger.
As an immunocompromsied person who should stay home indefinitely I would like to say that I am grateful to whomever will be stepping up to buy me my beachside tiny cottage shack to help make this a possible reality.
I am literally EXHAUSTED 😭 BUT today is the first day in a long time I haven’t had any urges to harm myself. I went to ALL my lectures & I did everything I needed get done ticked off. And it’s 4pm and I’m in bed and I just wanted the Twitter world to know I’m proud of myself 😊
#SoberDay219 is in the books. Good night my precious people! Sending out big hugs and Sober smiles to all of you!! #SoberPosse #RecoveryPosse #SoberMonday #ODAAT #DivorcedAF #Love
Was anyone else a kid that bought and snacked on breathmints instead of candy like what was wrong with me and why did I eat so many altoids
Tried making a simple apple tart with roll out pastry. Forgot it was in the oven for nearly 2 hours!! #BrainFog
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