ALSProblemSolvers @ALSProbSolvers
ALS Problem Solvers #TheCogSquad ALSproblemsolvers.org US Joined September 2021-
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This! Just watch and you'll see. And please RT. Thanks.
This! Just watch and you'll see. And please RT. Thanks.
The Music Stops With ALS Please take 2 minutes and watch our new video. vimeo.com/726779719/5756…
Do you have ideas on how NINDS and our partners can best advance fundamental neuroscience? NINDS has a call out for input. See ninds.nih.gov/News-Events/Di…; grants.nih.gov/grants/guide/n…
Two independent research teams discovered how mislocalization of a protein alters the genetic instructions for UNC13A, providing a possible therapeutic target that could also have implications in treating ALS and FTD: ninds.nih.gov/News-Events/Ne….
There is one ALS trial at the @NIHClinicalCntr Thank you, @NINDSdirector We need more ALS trials there!
There is one ALS trial at the @NIHClinicalCntr Thank you, @NINDSdirector We need more ALS trials there!
Man-made problems have man-made solutions. We are ALS Problem Solvers. We do not accept the status quo. Period. #thecogsquad
Our anthem!
There's still time for YOU to respond to the NINDS RFI... and we need YOU. Everything you need to know is here alsproblemsolvers.org/whatsnew Your response doesn't have to be long or fancy.Just speak to what you think NIH NINDS can do to help move ALS research forward better. Thanks.
RT @NIA_BSR: Registration is now open for @NINDSnews Alzheimer’s Disease-Related Dementias (ADRD) Summit! The ADRD Summit will be held virtually on March 22-23, 2022: web.cvent.com/event/72e5c537…
Someday...this will be us. Until then, we must keep pushing. Get your voice to our scientific leaders. ninds.nih.gov/ALS-RFI Deadline is Feb 11th. @ninds @NIH @FDACBER @fdacder @iamalsorg @ALSProbSolvers @ALSprinciples
You have 1 week to get your comments in. Yes, you! This is an important opportunity to be part of the first ALS strategic plan at NIH NINDS - a globally respected research agency. Please watch this 5-minute video & submit your thoughts. We need you. vimeo.com/667000119
Please let NIH NINDS know what you think. ninds.nih.gov/ALS-RFI Something as simple as "I couldn't get into a clinical trial when I was newly diagnosed & I sure can't now," addresses scientific gaps that they can close! They are missing the valuable clues that YOU can provide.
Thanks to @youdownwithldp for the shout. Can't wait to change the world with you. #TheCogSquad
We appreciate all that NIH does for a lot of diseases. We simply want for ALS things that NIH has done well in other disease areas. Please read and let them know your thoughts before Feb 11. Thanks. alsproblemsolvers.org/whatsnew
Silencing a faulty gene may uncover clues to rare forms of ALS. NIH-funded preclinical study identifies potential therapeutic approach to treat #ALS: ow.ly/8Kor50HCHkX.
The @NIH Outstanding Scholars in Neuroscience Award Program (OSNAP) is open and seeking nominations of graduate students and postdoctoral fellows engaged in #neuroscience research. Nominations are due 1/28/2022. Don’t miss this opportunity! Learn more at go.usa.gov/xeFbG
Football doesn't start until 430pm EST today. That gives you plenty of time to compose your comments for the NIH NINDS ALS Strategic Plan RFI. There are tools to help you at alsproblemsolvers.org/whatsnew Comments are due by Feb 11. Today is a good day act. Thanks.
Thank you National Institute of Neurological Disorders and Strokes (NINDS) for requesting info from the ALS community. Thank you @ALSProbSolvers for this 👇 video that explains it all! Here's your chance to be heard, please do this today!!!! PASS IT ON .@iamalsorg .@bsw5020
Thank you National Institute of Neurological Disorders and Strokes (NINDS) for requesting info from the ALS community. Thank you @ALSProbSolvers for this 👇 video that explains it all! Here's your chance to be heard, please do this today!!!! PASS IT ON .@iamalsorg .@bsw5020
Better than anything you'll see on tv... Please watch. Thanks vimeo.com/667000119

ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Jamie Smith @JamieLW8
4K Followers 535 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 873 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
Nicole Cimbura @nicolecimbura
1K Followers 2K Following
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
Mandi @RunningMama0522
2K Followers 1K Following
Danielle Boyce @DataSciDanielle
561 Followers 994 Following Data scientist/Drug Repurposing, Neurodegen + Epilepsy + ID + Oncology//art lover//patient advocate//mom of 4 / Views strictly my own.
Girl Travelin Alone @CathyStandish
4K Followers 5K Following
Andrea Pauls Backman ... @AndreaBackman05
2K Followers 1K Following Follow me at https://t.co/iaMHiklYK1. Passionate about people w ALS/MND & fighting for cures.
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Deb Paust @PaustDeb
1K Followers 691 Following Blessed mom, lover of snow, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Mike Harrington @Shankapotomas
3K Followers 922 Following Just a dude with ALS. Not dead yet, though.
ALS Uncensored 🏴�... @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Becky Mourey @becky_mourey
580 Followers 293 Following Wife, mom, musician, lover of life, living with and fighting to end ALS.
Jean C9orf72 @Jeanc9orf72
1K Followers 859 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
Phil Green @pjgreen
3K Followers 1K Following Father to 4. Husband to 1. Right-brained.. 2x Rose Bowler. 1x Nat'l Champ. ALS Advocate. PLWALS. Type with my eyes.. #PurpleReign #NoWhiteFlags #NotTodayALS
ALS TDI @ALSTDI
10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
Racing for ALS @racing_als
810 Followers 643 Following An amazing group racing to make a difference... Praying for a cure!! 501c3 - Over $1.85 Million donated!! Info & Merch via our website.
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Kandy Simons @KandySimons
1K Followers 2K Following ALS advocate. NurOwn Works and should already have FDA approval.
Rob Williams @rcw0607
81 Followers 588 Following
Nguyen Tran Minh Duc,... @DuckyM2
269 Followers 3K Following Co-First Author of "A Consensus-Based Checklist for Reporting of Survey Studies (CROSS)" in the Journal of General Internal Medicine.
Houston Mayor's Offic... @MoPD_Houston
2K Followers 730 Following City of Houston MOPD https://t.co/0VzsUyDloh 832.394.0814 [email protected]
L Brielmaier @BrielmaierL
544 Followers 478 Following Engineer, @IEEEBrain, IEEE EMB, PLWALS, prog-rock, “Scientists investigate that which already is. Engineers create that which has never been.” Albert Einstein
LG4 @LG4HAT
25 Followers 180 Following The LG4 Hats seeks to both spread awareness about the disease and pay tribute to Gehrig’s legacy. Every hat you purchase, ALL the proceeds
Karen Kornbluh @KarenKornbluh
4K Followers 2K Following Former Ambassador to OECD. Tech, etc. NYT says I'm "fighting for economic equality." Still trying to learn French.
Ali Mourey Coppolino @ali_mourey
44 Followers 56 Following
Rob Faulstich @RobFaulstich
184 Followers 178 Following Dad, husband, and retired pharma guy advocating for everyone impacted by ALS. There is hope but we need urgent action to make it real.
Spino Serebellar Atax... @Konur48728623
203 Followers 3K Following Neuroscience Research. Cerebellum Research S.C.A Grup Turkiye https://t.co/CLa0U1Mfmu
colorfulcarrotz @colorfulcarrotz
99 Followers 1K Following Teen herder, pixel mover, social justice ally, aspiring napper, PNW native. (she/her) #Inclusion #DisabilityPride #EndALS #BlackLivesMatter👩⚖️🏳️🌈🌻♿️☮️🇺🇦
Smurfmama.bsky.social... @firstsmurfmama
699 Followers 2K Following Follower of science/history/Ψ/antihate/she/her #COVIDisAirborne #VaccineEquity #MisinformationKills #IStandWithUkraine #IStandWithIsrael 🇮🇱🇺🇦🇨🇦🇬🇷🏳️🌈
Stella Safo, MD MPH @AmmahStarr
23K Followers 4K Following HIV primary care physician, NYC | Passionate about healthcare redesign, equity and civic engagement | Founder Just Equity For Health @just_equity | she/her
Kailey Sarkisian @KaileySarkisian
129 Followers 480 Following Your IN / KY / WV Echosens rep, focusing on Fibroscan. #liverhealthmatters
Guðjón Sigurðsson @Gaui_mnd
743 Followers 1K Following
biomac @biomachq
0 Followers 2K Following
Lisa Martinez @LisaMar17763916
434 Followers 641 Following supporting @jamieroseberryy 💙ALS community 🐺🌹#ENDALS a wise woman once said “ you can’t scare me I have ALS “@sandymorris333
Christine Moretti als... @cmoretti520
966 Followers 4K Following Living w/rare form of ALS called PLS, ALS advocate/brain tumor survivor/cancer survivor. Wife, mom to two fabulous sons. Nonni to my precious Enzo♥️ RESIST!
Unite Genomics @UniteGenomics
239 Followers 886 Following Unite is developing an all-in-one platform to bridge the gap between the rare disease community and researchers to accelerate the development of treatments and
Chrisf69 @cw_floyd
472 Followers 1K Following Just an average guy who likes to go camping and photography. #chronicpain #forcedintoawheelchair #butyoudontlooksick #ptsd #sasurvivor #bipolar #depression #cpp
Josephine Himes @himes_josephine
1K Followers 2K Following Hoping Trump ends up in jail!! Mom of 4 girls and two new grand babies ❤️❤️❤️❤️ Jackson & Christian — my handsome little boys!
💙🎵🤗❤️�... @EdnaRosse6
16K Followers 17K Following MARRIED , I FOLLOW BACK !! #BLUECREW, #LGBTO #VOTEBLUE2026,🛑NO DMS 🛑 NO LISTS , Be kind and always follow your dreams !! ❌ no Crypto. 🛑 no porns
D'Andrea Jones @wahhooscwgrl
585 Followers 5K Following I lost an Amazing Husband to the horrific disease ALS! Raise awareness to Lou Gehrig’s disease! #ALSSucks #SoulMates #ALSFindACure
Kevin Moorhead @KevinMoorhead
204 Followers 289 Following
Elizk @Elizk84179966
161 Followers 869 Following
fatma UĞUR @fatmagr9
25 Followers 223 Following
Patchouly @choulypat
34 Followers 472 Following
Marilynn H 🇺🇦 @marilynn_hale
241 Followers 798 Following Educator, music lover, person of faith, proud mom & fan of Cowboys Football
Irene Cloyd @cloyd_irene
3 Followers 197 Following
Amy Doornbos @doornbos_amy
31 Followers 6K Following ALS advocate, fighting for effective treatments for my pALS, my Dad, diagnosed with ALS in 2020.
y. m @y_mirzanl
137 Followers 3K Following
Debbie OBrien @Oboysfour
10 Followers 450 Following
Irene Shapiro @irene_shapiro1
355 Followers 281 Following Passionate advocate for people living with ALS & personal empowerment in healthcare.
Les Turner ALS Founda... @LesTurnerALS
4K Followers 571 Following The leader in comprehensive #ALS care in Chicagoland
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
Linda Hagen @hali1959
32 Followers 247 Following
Daniel Matta @DanielMattaMD
79 Followers 308 Following Father/husband. FM Attending. Interest = HospitalMed/SportsMed/RingsideMed/PrimaryCare/MedEd. #BJJisLife#MMA#Boxing.🇨🇴🇺🇸 Tweets my own≠Med advice.
Jim Boylan @JCB_541
19 Followers 177 Following
Marcia Kaplan @MarciaKaplan6
8 Followers 110 Following
Evan Campa @EvanCampa
3K Followers 1K Following Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
420.Vision ___ 🌻 @MarijuanaCa
4K Followers 5K Following https://t.co/9DQNXnEAi9 website is being revamped. https://t.co/mvq8rV5U5X website is in private mode.
MStu @Mstu44996686
4 Followers 49 Following conservative, father, intent on leaving a better United States the next generation.
laurie @laurie01369902
15 Followers 806 Following
Jeanette @shortgardenpath
98 Followers 1K Following
Claus Sundgreen @Sundgreen
134 Followers 518 Following Physician, Chief Medical Officer. ALS and Inclusion body myositis. Tweets are personal.
Team Drea Foundation @TeamDreaFdn
512 Followers 222 Following Nonprofit & team of 200 athletes who have raised $750k to defeat ALS. Andrea is aiming to be the 1st person w/ ALS to do a marathon in all 50 states on a trike.
Danielle Boyce @DataSciDanielle
561 Followers 994 Following Data scientist/Drug Repurposing, Neurodegen + Epilepsy + ID + Oncology//art lover//patient advocate//mom of 4 / Views strictly my own.
Becky Mourey @becky_mourey
580 Followers 293 Following Wife, mom, musician, lover of life, living with and fighting to end ALS.
Phil Green @pjgreen
3K Followers 1K Following Father to 4. Husband to 1. Right-brained.. 2x Rose Bowler. 1x Nat'l Champ. ALS Advocate. PLWALS. Type with my eyes.. #PurpleReign #NoWhiteFlags #NotTodayALS
Racing for ALS @racing_als
810 Followers 643 Following An amazing group racing to make a difference... Praying for a cure!! 501c3 - Over $1.85 Million donated!! Info & Merch via our website.
NEALS Consortium @NEALSConsortium
3K Followers 97 Following The NEALS Consortium is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS
HHS_ASPE @HHS_ASPE
2K Followers 31 Following Office of the Assistant Secretary for Planning and Evaluation at the US Department of Health and Human Services
Gwen Petersen @gwenpetersen7
986 Followers 434 Following wife, puppy parent, sister, traveler, wanderer on wheels- dx #ALS
Merit cudkowicz @MeritCudkowicz
1K Followers 825 Following
Jinsy Andrews, MD @JinsyMd
475 Followers 29 Following Neurologist, neuromuscular specialist. Opinions shared here are my own personal views.
Sandy Morris @sandymorris333
6K Followers 3K Following Incredibly blessed wife, mother, ALS warrior, and necessary troublemaker.
Danielle Reinhart @RyansMom2
2K Followers 4K Following Mom of 4, research & advocacy, data science, knitter, she/her views=my own
Tim Lowrey @gatortimbo
477 Followers 635 Following Grateful and blessed to be married to Emily Wester Lowrey, UF Pharmacy '92, Buffalonian, Diehard Gator, Home remodeler, Avid reader of various, living with ALS
NIH Common Fund @NIH_CommonFund
15K Followers 217 Following Official Twitter account of the NIH Common Fund overseen by the Office of Strategic Coordination, part of @NIH. Privacy Policy: https://t.co/Rat5dGiB3w.…![Official Twitter account of the NIH/NINDS [Privacy Policy: https://t.co/uXZ2BEHgFz]](https://pbs.twimg.com/profile_images/880747540672589825/CqraUhnN.jpg)
NINDStrials @NINDStrials
2K Followers 452 Following Official Twitter account of the NIH/NINDS [Privacy Policy: https://t.co/uXZ2BEHgFz]
NINDSfunding @NINDSfunding
6K Followers 305 Following This account will no longer be actively maintained after December 1, 2023. For NINDS updates, including info. about funding opportunities, follow @NIH_NINDS.
NINDS @NIH_NINDS
13K Followers 102 Following Official account of the National Institute of Neurological Disorders and Stroke (NINDS), part of the @NIH Privacy Policy: https://t.co/IHhFTL1pRp