CFS Research Center @CFSRC
The Chronic Fatigue Syndrome Research Center at Stanford University (CFSRC) aims to discover a molecular diagnosis, causes, and a cure for CFS. omf.ngo/community-symp… Stanford University Joined November 2013-
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Live now: Our panel discussion with this morning's speakers at the Community Symposium on ME/CFS. We've already had 100+ questions submitted ... share your questions for the afternoon panel at omf.ngo/questions/ #MECFS18
LIVE NOW: Maureen Hanson, PhD, of Cornell University presents "Metabolism and ME/CFS" at the OMF-sponsored 2nd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University. #MECFS18 Watch via livestream here: bit.ly/2MN0lq7
#MECFS18 - Bergquist - then shows alarming physiological effects of poor sleep. Easy to see why Ron Davis brought this Swedish researcher on board: he's involved in an amazing amount of ME/CFS research. which shows positive results in a number of areas...:)
LIVE NOW: Alain Moreau, PhD, of U. of Montreal presents "Deciphering MicroRNAs code in ME/CFS pathogenesis" at the OMF-sponsored 2nd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University. #MECFS18 Watch via livestream here: bit.ly/2MN0lq7
LIVE NOW: Wenzhong Xiao, PhD of Harvard U. presents "Results from the Severely Ill Patient Study (SIPS)" at the OMF-sponsored 2nd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University. #MECFS18 Watch via livestream here: bit.ly/2MN0lq7
For live tweets from the symposium check out @CortJohnson and @exceedhergrasp1 and also follow the #MECFS18 hashtag.
Very honored and delighted to be back among @StanfordGenome @CFSRC @OpenMedF and the passionate #MECFS research + patient community for #MECFS18!
Very honored and delighted to be back among @StanfordGenome @CFSRC @OpenMedF and the passionate #MECFS research + patient community for #MECFS18!
A look inside the Second Annual Community Symposium on the Molecular Basis of ME/CFS, happening now. #MECFS18
You voice matters: You can submit questions for the panel discussion at today's Community Symposium on the Molecular Basis of ME/CFS at omf.ngo/questions/ #MECFS18
TODAY (Saturday) is the OMF-sponsored Second Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University! The Symposium runs from 9 a.m. Pacific time to 5 p.m. Pacific. *Register now* for the free livestream: bit.ly/2MN0lq7 #MECFS18
Now: Peidong Shen talking about Next Generation DNA sequencing as a tool for ME/CFS research. He's worked with Ron for over 20 years and is a really great scientist.
So far we've heard from Wenzhong Xiao, Alain Moreau, and now Fereshteh Jahaniani. #me/cfs18
Here we go! Working Group meeting on ME/CFS at Stanford. Over 50 great minds. #mecfs18
Ron's birthday dinner. Afterwards I gave him the booklet OMF had made with all the birthday wishes you guys have sent, cards, tweets, etc. He was really moved. ❤️
Great @unrestfilm panel w @JanetDafoe daughter Ashley, an immunologist, a nurse leader & a head nurse & 70 others—dozens of school nurses!
Dr. Ron Davis prepared a statement for Ashley Haugen to read yesterday at the Western Massachusetts Dept. of Public Health screening of Unrest. This new information from the SIPS study was also presented in London. Read the update here: bit.ly/2J26WMq #BRMEC8 #IIME13
Who is at #BRMEC8 in #London? Professor Maureen Hanson from @CornellMECFS Invest in ME Research International Biomedical Research into ME Colloquium #WorkingTogether investinme.eu/IIMEC13-news-1… #mecfs #NHS #research #MedEd #CPD #MEConferenceWeek2018
OMF's Dr. Ron Davis and Linda Tannenbaum are at the 13th @Invest_in_ME Research Conference in London, joined by several OMF Scientific Advisory Board members, pictured here. We're excited for this opportunity to promote international research collaboration! #MayMomentum
Janet Dafoe shared a plea from her son Whitney as part of the #MillionsMissing campaign. Watch her video here: bit.ly/2KPJiQK, then record yourself making "The Whitney Plea" and email it to [email protected] and post on social media with hashtag #WhitneyPlea
We hope you will join us in San Francisco or at one of the #MillionsMissing events around the globe this Saturday, May 12! Find out more: bit.ly/2KHsISK
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Tom Kindlon @TomKindlon
14K Followers 579 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 206 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Michael VanElzakker @MBVanElzakker
10K Followers 290 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
ME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.
Sabrina Poirier (On H.. @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Science for ME online.. @s4me_info
5K Followers 282 Following We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Ben H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
peter orr @orrtknpp
2K Followers 2K Following degrowth, local community net zero, retrofit, biodiversity and transformation with social justice
A_JessW_J8AS2 @j8as281665
30 Followers 2K Following
Mohammad Reza Dadashi @Mohamad19717941
460 Followers 3K Following @iauac Undregraduate Cell and Molecular biology' 2028| Biophysic& Physic|Cancer System Biology, Computers ,Immunology,ct DNA,Liquid biopsy,Leukemia,lymphoma|•
Jodie Marquardt @JodieMarq
897 Followers 817 Following Financial planning professional; wife & mum; health & fitness advocate; Green Bay Packers fan. Retweets are not endorsements. Views expressed are strictly mine.
Robin Edwards @RobinCFexpert
195 Followers 1K Following The chronic Fatigue Expert- a expert in chronic fatigue Robin Edwards
Liz @libbylujr
70 Followers 2K Following
Darlene Gildersleeve @DGildersleeve88
273 Followers 618 Following Long Covid patient advocacy, March 2020 until now fighting it.
Wendy Alice @_WendyAlice_
10 Followers 59 Following Person with ME. Chronic CSF leaker. Formerly a teacher and photographer.
Meyer @Keinkommenta
4 Followers 80 Following
marconeri44 x @SMarconeri44
1K Followers 5K Following 4 #rbdtmric #K #Z #DV #ZV #ibdtmric donazioni a [email protected] PayPal
Peter Langenfeld @ptlangenfeld
0 Followers 31 Following
Terry Fries @TerryFries4
109 Followers 804 Following
Sareeta @SareetaOT
227 Followers 680 Following Lecturer/Researcher🔸Consultant Occupational Therapist 🔸All views are my own
Amber Green @Orchili75
979 Followers 5K Following ❤️ Him, #advocate, #survivor #escapedsextrafficking, #testimony, #useyourvoice, #shareyourtruth, #traumahealing, #dvsurvivor, CCRCC -terminal, gypsy 🙌✝️💜
Alex @Super_Alex_One
89 Followers 506 Following He/him🏳️🌈, Montreal🇨🇦. Autistic🙃. Anxiety + ME/CFS warrior. Always exploring: photography📸, maps🗺️, science🧬, music🎶, special needs stuff🎧 etc…
Strider777 @Strider7773
1 Followers 409 Following
Cristian Serious @CristianSerious
286 Followers 2K Following Sharing my personal journey of navigating life with Chronic Fatigue Syndrome, CCI/AAI, and TC. #cci #mcas #mecfs #mespine
clean living advocate @healthjustice7
95 Followers 2K Following 🏳️🌈. 🖤 🩶🤍💜. Mold injured: #mecfs, #bri, #mcs: I most kindly need clean housing. Pic is Uncle-US Army WW2 Purple Heart Veteran.
Corinne @cozza_coz
623 Followers 2K Following I want my life to be more about Jesus, less about me. I'm married to @juz1906 we have 2 daughters. #Faith #MentalHealth #Chronicpain #CFS #Fibromyalgia
Heather Hayes @hhayes91
1K Followers 5K Following 💙 BC Survivor, Friend, Lake & Dog Lover, #meshinjured Diagnosed w/#MECFS, MCAS, Fibro, CRPS, PA, Hashimoto’s & Autoimmune CIRS from J&J Prolene mesh.
Allie Wilkinson @AllieWilkinson
6K Followers 2K Following Freelance science journalist. Formerly at @sciencenews. Award-winning baker.
Nicholas McKeehan @nmckeehan
422 Followers 2K Following
Matthias Fax @mat_fax
4 Followers 73 Following
Bartek @bartfoks
114 Followers 649 Following
AMI @ambreigh75
483 Followers 4K Following amateur escort, content creator, story-teller, tarot reader, psychic medium, ❤in love with @bustedrubber1❤️, chronic pain warrior, & Sagittarius
M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) & her M.E. advocate spouse/caregiver. Before: Architect, software interaction designer.
Annette Streich @annetteStreich9
965 Followers 2K Following ME/CFS , POTS and fibromyalgia . Love food , foreign films and my wee Siamese beasties .Once was witty now happy if I can form complete sentences 🤪
Neenyah Ostrom @neenyahostrom
564 Followers 2K Following Editor, ghostwriter, author--America's Biggest Cover-Up: 50 More Things Everyone Should Know About the CFS Epidemic & Its Link to AIDS, 2nd Edition on Amazon
CycloArtSali @nkfd_deficiency
562 Followers 1K Following #NKCellFunctionDeficiency #ChronicSarsCov2 #1stWaver #ChronicEBV #ChronicMP #ChronicHHV6 #ChronicCMV #Cycloferon #Artesunate #Salicinium #GcMaf #ItsTheVirus
Samuel Ilisei @SamuelIlisei
163 Followers 229 Following sehr schwerer MECFS Überlebender seit einem Jahr. Leben im Pausemodus. 32 Jahre alt. Lachen bis zum Tod
Angel @Angel24109349
0 Followers 10 Following
SMC1981 @SMC19812
97 Followers 1K Following
Bridget O'Shea @Bridget_OShea
2K Followers 2K Following Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.
Doctors for Accidents.. @docs4accidents
408 Followers 3K Following Personal Injury Listing Service | Med-Legal Digital Marketing And Strategies | Med-Legal Magazine Publication | Med-Legal Content Creator
Ragnhildvhlien @ragnhildvhlien
218 Followers 673 Following Wife, mother of 3, trying to stay informed.
Janeen Musselman @LilMommabear111
3 Followers 3K Following
Valentina Scacco @ValentinaScacco
2 Followers 101 Following
christina lawrence @christina_law
158 Followers 948 Following Former Financial/Data Analyst and College Economics Lecturer.
Alliance for Advancin.. @AABM_Coalition
97 Followers 288 Following AABM is an independent network of professionals dedicated to innovation at the intersection of healthcare and technology.
Inspiritol @Inspiritol
286 Followers 279 Following Inspiritol is a patented and patent pending new drug designed to treat acute respiratory distress and post viral illnesses, including Long COVID & ME/CFS.
Deborah McCarten @ynwal
902 Followers 5K Following
@ugusta @ugusta_Tweet
297 Followers 805 Following #GGZ ZorgManager #Patiëntenorganisatie ME/cvs #Patiëntenparticipatie #Ervaringsdeskundigheid #MantelZorgMama #ME #CVS #AAI #CCI #CPTSS
Thomas Steven Roth, M.. @Dr_T_S_Roth
11K Followers 12K Following I am a Christian Minister for Biblical Medical Ethics
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Tom Kindlon @TomKindlon
14K Followers 579 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Cort Johnson @CortJohnson
10K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Michael VanElzakker @MBVanElzakker
10K Followers 290 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Solve ME/CFS Initiati.. @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & post-infection diseases widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/84TBR9Fgzj
ME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.
Simon McGrath #mecfs @sjmnotes
4K Followers 243 Following Been ill for a while. Mostly ME/CFS biomedical research and news
Jennifer Brea🦒 @jenbrea
41K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
Ben H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Hillary Johnson: jour.. @oslersweb
4K Followers 952 Following The Why "Delicious" "Devastating" "Indispensable" Reimagining Ruth "..has a raw power" Osler's Web "A relentless, meticulous, highly persuasive expose."
Bateman Horne Center @BatemanHorne
6K Followers 1K Following Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating ME/CFS, FM, Long COVID, and related conditions.
Robert Saunders (aka .. @RobertHMcMullen
2K Followers 496 Following Author of "stranger and stranger," letter writer, advocate and fundraiser for biomedical ME research.
Patricia E Gillespie @PEGpics
132 Followers 72 Following
Cleveland Clinic MD @CleClinicMD
301K Followers 2K Following News and insights for physicians and clinical professionals from @ClevelandClinic. Research, case studies and CME opportunities.
Coriell Institute @Coriell_Science
1K Followers 358 Following Nonprofit biomedical research center. Recognized as the world’s leading biobank, pioneer in genomic discovery, and expert in the field of stem cell research.
Stanford Pain Medicin.. @StanfordPain
16K Followers 429 Following The Stanford Division of Pain Medicine seeks to predict, prevent and alleviate pain.
Beth #MillionsMissing @rndNumGen
2K Followers 714 Following #pwME and science/data nerd. co-founder @meactnet. Mostly post about #millionsmissing, #ME, #LongCovid, #microbiome, #MCAS, #POTS, and #healthequality. CS @MIT
Fibromyalgia Awarenes.. @Fibromyalgia_b
9K Followers 577 Following The official page of https://t.co/Iqr0aAg6Ev blog #Fibromyalgia awareness #Fibromom #spoonie
May12.org @May12org
1K Followers 2K Following Supporting #VaccineInjury #Lyme #MyalgicE #GWI #POTS #PostSepsis *Complex Immunologic & Neurologic Diseases* #ImmuneDeficiency #ReactivatedViruses #RealScience
CFS Unite @CFSUnite
1K Followers 651 Following I have ME and Fibro since 2003. I run a support group for us with chronic fatigue conditions. We are based in |pswich, Suffolk. Follow us on our journey!
S.A.M.E. @scotallonme
1K Followers 2K Following We are committed to postive action that highlights the daily struggle of sufferers of Myalgic Encephalomyelitis in Scotland, The UK and The World!
Hillary Clinton @HillaryClinton
31.1M Followers 995 Following 2016 Democratic Nominee, SecState, Senator, hair icon. Mom, Wife, Grandma x3, lawyer, advocate, fan of walks in the woods & standing up for our democracy.
Brent Merritt @brentmerritt
482 Followers 1K Following Digital strategist at Metric Communications, LLC. Focused on nonprofits, advocacy and public affairs.
MECFS Conference in M.. @MECFSconf_mtl
316 Followers 123 Following 1re conférence collaborative canadienne sur l'EM/SFC ◼︎ 1st ME/CFS Canadian Collaborative Team Conference ◼︎ Mai/May 3-5, 2018 ◼︎ MTL-QC
Irish ME/CFS Associat.. @IrishMECFSAssoc
2K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
Metabolon, Inc. @Metabolon
3K Followers 1K Following Global leader in metabolomics for drug development, biomarker discovery, and advancing microbiome, pharma & life sciences research.
Palo Alto Weekly @paloaltoweekly
15K Followers 1K Following Palo Alto Online and the Palo Alto Weekly are the leading sources for news and information in the Palo Alto, California area.
Alice Lewis @AliceOutThere
2K Followers 2K Following MyalgicEncephalomyelitis—2 many lives lost—ruined—stolen. Outrageous neglect & medical MIStreatment—by our govts. 🆘 SHAME on them 🧐 Fight back ‼️ 🆘 pwME
KQED Science @KQEDscience
28K Followers 22K Following Award-winning science and environment coverage from KQED. 📬 Sign up for our weekly newsletter: https://t.co/A4wXMEHjsl. ▶️ Find us on Instagram: @KQEDScience.
Illumina @illumina
100K Followers 9K Following Dedicated to advancing human health by unlocking the power of the #genome. 🧬
Lars Steinmetz @LarsMSteinmetz
2K Followers 158 Following Prof. Genetics @StanfordMed, Co-Director @StanfordGenome, Director @LiSciAlliance & Snr scientist @EMBL. Cofounder @SOPHiAGENETICS, @RecombiaBio & @levitasbio
Leonard Jason @CenterRes
2K Followers 33 Following Leonard Jason is a Professor of Clinical and Community Psychology at DePaul University. He is also Director of the Center for Community Research
Russell Fleming @Firestormmer
2K Followers 922 Following Former investment manager international private banking. Disabled by M.E. and forced to retire after 15 year career. Tweet latest news relating to #MECFS.
yoni יוני @Primary_Immune
41K Followers 27K Following Human being. Jew. Israeli. Primary Immunodeficiency patient. הודו לה׳ כי טוב כי לעולם חסדו #Immunology #raredisease #ISRAEL
Smile For ME @SmileForME_xx
3K Followers 496 Following We are a charity that sends Smiles to ME sufferers and their carers to brighten their day and make them smile 😊 Registered Charity Number 1185760 💙
John Duncan @lamppostLighter
551 Followers 377 Following "'No!' said Aragorn, taking his hand and kissing his brow. 'You have conquered. Few have gained such a victory."
Karina Wagenpfeil @ChronicKarina
545 Followers 315 Following Scientist turned ME/CFS, MCAS, POTS, and EDS patient. Interested in patient advocacy. Strong supporter of biomedical research. Blog when my health allows.
New Scientist @newscientist
4.4M Followers 290 Following The best place to find out what’s new in science – and why it matters.
Ollie Cornes 🇪🇺 @ollie72
1K Followers 605 Following Disabled by @MyalgicE (ME/CFS) since 1999. Volunteer with @MEActNet & @MEActNetUK Kicsit beszélek magyarul.
NYT Science @NYTScience
1.2M Followers 455 Following Science, Medicine, Environment, Space & Astronomy. Sign up for the Science Times email, in your inbox every Tuesday: https://t.co/kpdN2C1hDy
Raeka Aiyar @raekaaiyar
893 Followers 1K Following Veep of Scientific & #DEIB Outreach @NYSCF | #SciComm-er | writer | moderator | #DEI advocate | #genomics PhD | mitochondriac | she/her | opinions own
Fane Mensah, PhD @Fane_Mensah
2K Followers 949 Following Strategic Account Director @automata_Tech| Founding Member @science_club| PhD in medicine @UCL #biotech #immunologist #labautomation #Healthcare
SenseAboutScienceUSA @SenseScienceUSA
4K Followers 3K Following Advocating for evidence+transparency in science+society. Collaborates with @senseaboutsci. Runs STATS w/@Amstatnews.
wigglethemouse @wigglethemouse
935 Followers 140 Following 49ers and Swindon Town supporter. Engineer. #mecfs has got in the way of having a life
#MEAction Scotland @meactionscot
2K Followers 711 Following MEAction Scotland is an affiliate of #MEAction, an international network of people working towards health equality for #MillionsMissing with ME.
#MEAction TN @MEAction_TN
355 Followers 240 Following Our group aims to promote health equality for ME and to get involved in local and national campaigns.
#MillionsMissing Aus .. @MMissingAus
2K Followers 435 Following There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting for health equality and to make their voices heard.
Stanford Medicine @StanfordMed
363K Followers 260 Following The official account of Stanford Medicine Advancing knowledge, improving lives
Stanford Medicine X @StanfordMedX
21K Followers 1K Following A catalyst for new ideas about the future of medicine and health care. Following ≠ endorsement. Medicine X | CHANGE 12/3/20. https://t.co/iPF76PIwy8
Michael Snyder, PhD @SnyderShot
6K Followers 55 Following Professor & Chair of Genetics Director, Center of Genomics & Personalized Medicine CoFounder: https://t.co/Pbp5i17rWN, https://t.co/psJ9Ar6KiC, https://t.co/X9PoQJP2Bo, https://t.co/qIDxcXFRj6, https://t.co/STxFxTdObZ
mary nichols @mlnichols5
4 Followers 4 Following
Forgotten Plague @forgottenplague
452 Followers 70 Following Forgotten Plague: M.E. and the Future of Medicine #mecfs #MyalgicE
Kati Debelic @a_parrot_or_two
2K Followers 3K Following Sick with myalgic encephalomyelitis since Nov 2008. Tweeting about health care for neglected diseases. #patientexperience #ptexp
may12th @May12th
3K Followers 2K Following
Simmaron Research @RedefiningMECFS
4K Followers 397 Following Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.#MECFS18 - Bergquist - then shows alarming physiological effects of poor sleep. Easy to see why Ron Davis brought this Swedish researcher on board: he's involved in an amazing amount of ME/CFS research. which shows positive results in a number of areas...:)
#MECFS18 - the big data man! Wenzhong Xiao- he puts it all together - on the Severely Ill Big Data Project - big deep dig into the severely ill. Data set given out free on endmecfs.stanford.edu - to researchers ......Several thousand have accessed - that's "Open Medicine" :)
Hi Wenzhong Zhou! He helped to process and display the data you can see on endmecfs.stanford.edu. You have to register to see it but more than worth it if you have a research position. There are machine learning tools too: “b/c this is Silicon Valley!” #pwme #MECFS18 @MEActNet
@benh_cfs @JanetDafoe His ability to wrangle so many irons in the fire at the same time is incredible. Their stubbornness that when normal funding routes are blocked to team up with Linda and say we are going to do what NEEDS to be done. And do everything he can to raise awareness. Thank you Sir!
This man is my hero. From the moment I heard about him, to the day I met him, to this day...and everything in between. There are not enough superlatives. @JanetDafoe too-they make for an incredible, synergistic team. I don’t know how they do it. ❤️ x.com/mikeseumaras/s…
Big crowd still here for Ron Davis. #IIMEC13
Dr. Ron Davis prepared a statement for Ashley Haugen to read yesterday at the Western Massachusetts Dept. of Public Health screening of Unrest. This new information from the SIPS study was also presented in London. Read the update here: bit.ly/2J26WMq #BRMEC8 #IIME13
Who is at #BRMEC8 in #London? Professor Maureen Hanson from @CornellMECFS Invest in ME Research International Biomedical Research into ME Colloquium #WorkingTogether investinme.eu/IIMEC13-news-1… #mecfs #NHS #research #MedEd #CPD #MEConferenceWeek2018
OMF's Dr. Ron Davis and Linda Tannenbaum are at the 13th @Invest_in_ME Research Conference in London, joined by several OMF Scientific Advisory Board members, pictured here. We're excited for this opportunity to promote international research collaboration! #MayMomentum
Here I go! Partial nephrectomy to remove kidney cancer tumor!
@CFSRC @benh_cfs @MECFSconf_mtl First class guy in every way. I was too shy to say hi to him in Montreal and being shy himself I felt that was the best way to thank him, but I sure hope he felt the love and caring for him and his family all around.
Janet Dafoe shared a plea from her son Whitney as part of the #MillionsMissing campaign. Watch her video here: bit.ly/2KPJiQK, then record yourself making "The Whitney Plea" and email it to [email protected] and post on social media with hashtag #WhitneyPlea
A great way to participate from home in #millionsmissing RT, reply and share our UK (and worldwide) #WhitneyPlea Whether you have #ME, care for someone affected, or support #pwme: #canyouseeMEnow #MEAwarenessWeek Thank you @JanetDafoe x.com/openmedf/statu…
Janet Dafoe shared a plea from her son Whitney as part of the #MillionsMissing campaign. Watch her video here: bit.ly/2KPJiQK, then record yourself making "The Whitney Plea" and email it to [email protected] and post on social media with hashtag #WhitneyPlea
Today's presentations have come to a close. Thank you for being with us throughout the day. A big thank you to the tech team at @ChuSteJustine, Francis and Stéphane, for their amazing work #MECFSConf18
What Ben said 👇 x.com/benh_cfs/statu…
Thank you so much to all corresponding on @MECFSconf_mtl #mecfs conference. I would love nothing more than to be there in person away from the confines of my bed, trying to comprehend the wonderful research from wonderful researchers. #mecfs #flyingbedplease
Thank you so much to all corresponding on @MECFSconf_mtl #mecfs conference. I would love nothing more than to be there in person away from the confines of my bed, trying to comprehend the wonderful research from wonderful researchers. #mecfs #flyingbedplease
@EndMECFS @SusanMora3 @wigglethemouse @benh_cfs @JanetDafoe @OpenMedF I was thinking about that as well when I saw the picture! Researching, advocating, attending conferences, holding lectures, educating researchers, manning the booth #rondavis #lookingsharp
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