CF Connection @CF_Connection
CF Connection is a new facebook site where patients with Cystic Fibrosis and caregivers can connect and share information United States Joined June 2016-
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Followers125
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Following43
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'Bystander' Cs meet their match in gene-editing technique Biomolecular engineers at Rice University have found a C-worthy technique that dramatically enhances the accuracy of gene editing.The Rice lab of biomolecular engineer Xue Sherry Gao has introdu... sciencedaily.com/releases/2020/…
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Read The Diary Of A Young Woman With A Deadly Lung Disease Salt In My Soul is a new memoir about a young woman’s life with cystic fibrosis. View Entire Post › buzzfeednews.com/article/azeeng…
Novartis's pricing might be tested with costly eye therapy Luxturna, sold by Spark Therapeutics in the United States and by Novartis elsewhere after the Swiss drugmaker bought the rights, is a one-time tr... yahoo.com/news/novartis-…
Tracking Down the Origins of Cystic Fibrosis in Ancient Europe Imagine the thrill of discovery when more than 10 years of research on the origin of a common genetic disease, cystic fibrosis (CF), results in tracing it to a group of distinct but mysteri... smithsonianmag.com/science-nature…
Chubb's Darling Honored for Industry Leadership, Cystic Fibrosis Work Compassion and helping others were the key takeaways from a message that Jim Darling delivered to a group of several hundred insurance professionals gathered to honor him in Los Ange... insurancejournal.com/magazines/mag-…
Top Cystic Fibrosis Advocacy Groups Endorse Proteostasis' Triple ... Read about the U.S. and Europe's top CF advocacy groups endorsing Proteostasis' plan for a clinical trial that tests a triple-combo therapy. cysticfibrosisnewstoday.com/2018/01/09/top…
relationship between the gut and the lungs in people with cystic fibrosis facebook.com/cftrust/videos…
Vertex Doubles the Number of 'All in for CF Scholarships' Vertex Pharmaceuticals announced it will double the nu... cysticfibrosisnewstoday.com/2017/11/09/ver…
Joliet helps fight cystic fibrosis JOLIET – The Greater Illinois Chapter of the Cystic Fibrosis Foundation recen... theherald-news.com/2017/08/07/jol…
Living with cystic fibrosis I worry about the AHCA Turning 18-year- old just a few days ago was a major celebrat... seacoastonline.com/news/20170620/…
Despite her need for a lung transplant, she was determined to get her college degree More than one doctor had to... fresnobee.com/living/liv-col…
Making strides to fight cystic fibrosis Community members can support their family members, friends and neighbor...batesvilleheraldtribune.com/news/local_new…
After raising €4m cystic fibrosis charity says it needs no more money A charity that raised the bones of €4m tow...irishexaminer.com/ireland/after-…
Teen With Cystic Fibrosis Makes Cards To Help Find A Cure (CBS4) - Doctors say the average life expectancy of a ...denver.cbslocal.com/2017/04/10/cys…
Enterprise Therapeutics Gets Cystic Fibrosis Trust Grant to Develop Innovative Treatments Cystic fibrosis blocks...cysticfibrosisnewstoday.com/2017/04/11/ent…
Woman with #Cysticfibrosis meets daughters of organ donor who saved her life #CF metro.co.uk/2017/01/29/wom…
Orkambi can slow decline in lung health in people with #cysticfibrosis by up to 42% #CF cysticfibrosis.org.uk/news/studies-r…
Teen's #cysticfibrosis video going viral #CF thedailynewsonline.com/bdn01/teens-cy…
Siblings with #cysticfibrosis can't play together as their bugs could cause lung failure #cf dailymail.co.uk/health/article…
Saliva Test Screens Possible Carriers of #CysticFibrosis Available Online #CF cysticfibrosisnewstoday.com/2016/10/19/goo…
もり @Hawklalq205188
26 Followers 2K Following
Maude Perrine -Writer... @MaudePerrine
2K Followers 3K Following Author of 'Love you' & audiobook narrator 📚🎧 Cystic fibrosis & diabetes warrior 🫁💜 Spoonie🥄Married 💍 #cysticfibrosisawareness
Victoria Tremlett @Tor87
3K Followers 2K Following Huge musical theatre fan. Love London. Blogger. Dog obsessed. Cystic Fibrosis, lung transplant & incurable cancer, oh my! Body battles on a daily basis.
craig holmes @HolmeMadeHulme
43 Followers 472 Following Hand made, unique gifts made by me. Website coming soon. insta- @holme_made_23 #handmade #christmasgiftideas #hulme #sustainable #cfartist #manchester 😀
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Petes Tweets @petestweets141
2K Followers 4K Following Hi I'm Pete Marketing Advisor 30 years commercial exp Marketing Degree qualified - Swinburne Univ Hawks and Melbourne Storm supporter Proud Aust/Irish Origin
Cystic Fibrosis Assoc... @CFANorthDakota
438 Followers 741 Following We help people in #NorthDakota living with #CysticFibrosis to #BreatheEasier--physically, financially and emotionally.
Laura O’Hanlon @LauraOH123
107 Followers 427 Following Busy Wife and Mum of 2. All views are my own etc.
Gray Hair CF Club @GrayHairCFClub
2K Followers 4K Following A simple site for CFers with gray hair, CFers who plan to have gray hair, or those who love CFers with gray hair. http://t.co/Rt9N5u9G
The Salty Life Founda... @thesaltylifecf
151 Followers 274 Following The Salty Life: A Cystic Fibrosis magazine featuring people affected by CF in all walks of life🧂🌊65🌹 #thesaltylife #saltylife
#UK CF campaigner Sha... @CFno1LeftBehind
1K Followers 1K Following 🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter
Natasha Robinson R&R ... @rrcffighters
323 Followers 911 Following This is a page for raising awareness for CYSTIC FIBROSIS and also a fundraiser page on behalf of my son's Rhyan and Rhys who both suffer with CF.
Jamie Stephenson 🦜... @ssnjimb
2K Followers 5K Following I'm Jamie I suffer from #Cysticfibrosis I'm #openlyautistic They/Them 🌈 love Music/vintage computers, #CureCF #Supportthestrikes. Only Follows Back Real PPL
CFArtists @CF_Artists
2K Followers 4K Following From the most basic to the most advanced artwork from Cystics, let the world see your talent.
Sasha Haughian @Sweet_Sasha30
228 Followers 614 Following Old fashion housewife at heart. Candy Maker. Blogger. Mother of 3. Cystic Fibrosis advocate. Baking sweets is my hobby, a healthy lifestyle is my passion.
JimmyApple @jimmyapple127
55 Followers 259 Following Host of the podcast, An Apple A Day living with a disability. Advocate for people with disabilities. There is no such thing as a disabled person!!
Tim Wotton @timwotton
816 Followers 976 Following Husband to Katie & father to Felix, comms manager in London, sport lover with CF - author, podcaster & speaker about my survival experiences to help others
♏️ikayla @mikaylabianchin
101 Followers 355 Following
Rock The House Car Sh... @RockTheHouseCa1
44 Followers 362 Following Wicked Ways Car Club supports Cystic Fibrosis with our car show we have at Rock House Brewing in Lexington, KY.
♥HEART OF ❤THE SH... @1AVintageAffair
620 Followers 4K Following 🌹Northamptons Roses of the Shires🌹****P.R.O.P.E.R HISTORY SOCIETY**** *Saving Our Public Heritage From Sale* ☮️ARA🌱V🌱&*CF-Warrior*
Kote Hanger @DemocratCreep
10 Followers 377 Following Melissa Malino activist. To protect all rare wildlife species. with government power. except. humane kind. the right to kill me my child before its born.
Kira Taylor @TheKiraTaylor
556 Followers 2K Following Content Creator | Influencer Living Non Toxic & Spreading Positivity ~ CF Warrior 💌: [email protected]
Dad and a Baby @Daddyandababy
2K Followers 3K Following I love being a dad and a husband. I say what I think & review what I use. I will tell you about my experiences w/ products & my adventures as a first time dad.
Leanne Olney @LeanneOlney
395 Followers 3K Following Mum to one CF super warrior. Fighting for #orkambinow and a life unlimited 💛
Charlie Kate Campaign @charliekatecamp
33 Followers 87 Following Official account for Charlie Kate’s journey, info about cystic fibrosis, and how you can get involved. 💜 Featured group on @charityjar_app
Bravebob @Bravebob2014
1K Followers 2K Following This is a record of my training , thoughts and adventures as a long distance swimmer.
CF & Cancer Research ... @IanMorris16
457 Followers 566 Following Proud father of Daniel Hayley Elle Cara one with the Angel's. I hate CF.38years clear of Non Hodgkin's Lymphoma .Awareness for CF Grief & Mental Health
Laura Kinsey @laurakinseyRD
444 Followers 1K Following Lead Dietitian for Cystic Fibrosis. NIHR ARC-GM Pre-doc fellow. Passionate about Dietetics, Cystic Fibrosis Gastroenterology and research. Views are my own.
JWLS Official @JWLS_Official
96 Followers 298 Following Contemporary timepieces ∞ Each purchase supports the fight against #CysticFibrosis ♡ In memory of Julia Marlane Lyons. ♡ We ship worldwide.
Continent Chasers @ContinentChaser
2K Followers 2K Following ✈️ 94 countries & counting 👱♀️👦Since 2010 💜 Sharing our life with Cystic Fibrosis 📸 Real stories, travels & love ⚽ Sponsor of Daya Nueva Vets CF
Make CF History @MakeCFHistory
2K Followers 2K Following Raising $1 million for the @CF_Foundation. An annual #hockey tournament for men, women, and kids, silent/live auction, and more! #CysticFibrosis #CureCF
Jessica J @jessica45qt
157 Followers 1K Following (🏳️🌈SHE/HER Pronouns) ASL-BSL suffer from cystic fibrosis,cvEDS,Pots,Mcas,Cancer and other health issues as well. Lesbihonest !!
Anne Mackle @cassam101
770 Followers 709 Following Mum and grandmother. Book reviewer and blogger. Living with Cystic Fibrosis.
C.C. Redmerski: Cysti... @cc_redmerski
178 Followers 597 Following If I can do it, so can you!! 💪🏼🗣 If you know anyone struggling with Cancer, chronic illness, depression, anxiety, or cystic fibrosis! #34withcf #notransplant
Rob Ron (he/him/his) @RobJRon
53 Followers 106 Following
Robyn Baptiste @RobynBaptiste1
5 Followers 123 Following
CysticFibrosisSligo @CysticSligo
138 Followers 426 Following Volunteer Twitter account for the Sligo branch of Cystic Fibrosis Ireland. Direct messages open to all. 🙂
Helen Harris @HEHarris68
142 Followers 224 Following FB Blog: “65 Roses of Loss and Love” @HarrisFund #book #cysticfibrosis in memory of my daughter (👦 👼 👧)
Savara Inc. @SavaraPharma
614 Followers 425 Following Clinical stage biopharmaceutical company focused on rare respiratory diseases.
Klyn Elsbury Motivati... @KlynElsbury
3K Followers 3K Following 🏆 Top Motivational Keynote Speaker 💵 Sales Strategist 📚 2x Author 🎙 Podcast Host- The Truth About Sales 💜#cysticfibrosis ⬇️ Ask Anything
Christina Walker 💙 @Guatemalagirl
618 Followers 1K Following Mostly serious views on cystic fibrosis, health matters & drug pricing, with a bit of horticulture thrown in for good measure
Thoni Gilles (PhD) @GillesThoni
3K Followers 5K Following La promotion intégrée de l' #ActivitéPhysique favorable à la #Santé : de la santé des individus à la #SantéPublique. #Sédentarité; #Education; #Evidencebased
UHB CF Physios @CF_physios
486 Followers 236 Following Providing physiotherapy information and advice for adults with Cystic Fibrosis. Our tweets do not replace the specific advice from your own physiotherapist.
my CF Hero 💙 @myCFHero
1K Followers 2K Following Mother to a 9 year old girl, with the life limiting condition #CysticFibrosis. Fighting for access to medicines #Orkambi #Kaftrio (#Trikafta) #DoTheRightThing
Carolyn Sparshott @cazsparshott
85 Followers 328 Following
Romy Reyes @CFWife
119 Followers 769 Following Hello 👋🏼 I’m Romy, 23. My Fiancé Jack, 24, has Cystic Fibrosis and we have a son Rocky born 09.08.17 through IVF (ICSI). Insta -@lovelifeandhelpingtosurvive X
Morgan Coxhead @MorganCoxhead
646 Followers 2K Following I am 20 and I am determined to be the first person with #CysticFibrosis to become a professional goalie! Help make my dream become reality and share my story!
cf/Aware @CFAware
12K Followers 9K Following All about Cystic Fibrosis. Always refer to your team for specialist advice. Oh and we don't always agree with RTs.
Cycling4CF @Rallying4CF
661 Followers 1K Following Im a CF Patient In wales, Raising money 4 Cystic Fibrosis. New passion for MTB Cycling which I'm looking for a challenge! + @DavidMorris53 *Orange
KhloesHope @KhloesHope
358 Followers 626 Following Khloe was diagnosed w/ Cystic Fibrosis (CF) when she was 7 days old. Khloe is a happy, strong young lady w/a mission to raise awareness & money to find a cure!
CFF SC @CFF_SC
631 Followers 489 Following The South Carolina chapter of the @CF_Foundation raises funds through special events and other campaigns to advance the search for a cure for cystic fibrosis.
Make CF History @MakeCFHistory
2K Followers 2K Following Raising $1 million for the @CF_Foundation. An annual #hockey tournament for men, women, and kids, silent/live auction, and more! #CysticFibrosis #CureCF
65 Roses Ball @65rosesball
463 Followers 568 Following Donlan Lawyers 65 Roses Ball. One of Adelaide's premiere charity event supporting Cystic Fibrosis.
OurCFMattersHawaii @ourcfmattershi
1K Followers 2K Following To reach out to those affected by Cystic Fibrosis in the Hawaii Community (and beyond).
Cystic Fibrosis Assoc... @CFANorthDakota
438 Followers 741 Following We help people in #NorthDakota living with #CysticFibrosis to #BreatheEasier--physically, financially and emotionally.
@CFCanada, Toronto @CFCanToronto
2K Followers 2K Following Toronto & District Chapter of Cystic Fibrosis Canada works to help Canadians with cystic fibrosis live longer, healthier lives.
Emma Corr @EmmaKCorr
1K Followers 5K Following wife, mother, cystic fibrosis parent, campaigner, English Teacher.
Know CF @KnowCF
5K Followers 2K Following A place to connect with those who are impacted by cystic fibrosis.
CFLF @CFLifestyle
990 Followers 679 Following Helping people with Cystic Fibrosis with Recreation Grants toward Living STROnger & LOnger #STROLO
Cystic Fibrosis @Cure4CF
276 Followers 5 Following BREATHING LIFE INTO THE FUTURE. Cystic fibrosis affects children and adults worldwide. it can be fatal, & a cure is needed. Please, help us find the cure
Samira Mohamed Ali @OfficialSamira
9K Followers 1K Following • CEO Enfys Foundation • Mindfulness and Meditation Expert • Co-Founder/COO @WalesFilmFest • International Speaker
Cure Cystic Fibrosis @KatyLovell
374 Followers 262 Following Full time mum, full time carer for my boy with #cysticfibrosis work part time at a pre school and have my own buissness. #livefortoday #sixtyfiveroses
SuperFriends4CF @SuperFriends4CF
1K Followers 2K Following SuperFriends fighting to find a cure for Cystic Fibrosis #CysticFibrosis
Bianca 💙 @BiancaNicholas
5K Followers 3K Following
Stop Cystic Fibrosis @NoCystcFibrosis
30 Followers 12 Following Cystic Fibrosis needs to stop taking people away. That's why I decided to help. Stay tuned and spread the word about this account! Projects to help coming soon!
Anne Mackle @cassam101
770 Followers 709 Following Mum and grandmother. Book reviewer and blogger. Living with Cystic Fibrosis.
Cure Cystic Fibrosis @CFFoundation
2K Followers 0 Following
CFResearch @CFResearch
3K Followers 1K Following Updating those who are interested in the latest Cystic Fibrosis news and research
Team Cystic Fibrosis @team_cf_aware
762 Followers 463 Following A charity cycling team raising awareness of Cystic Fibrosis in the UK. Organisers of the 65 Roses Sportives & the 2015 National Circuit Race Championships
Team Cystic Fibrosis @teamCFhudds
285 Followers 254 Following Local family and friends in Huddersfield West Yorkshire, planning fundraising events of all types to raise money and awareness for Cystic Fibrosis.
Cystic Fibrosis CHI @FirstLook4CFF
778 Followers 1K Following The Cystic Fibrosis Foundation is participating in the 2011 Chicago Auto Show's First Look for Charity. McCormick Place on Thursday, February 10th, 2011
Cystic Fibrosis Peel @CF_Peel
313 Followers 228 Following Our mission is to help people with cystic fibrosis. Email us at: [email protected]
Cystic Fibrosis @CF_65roses
552 Followers 324 Following are you a carrier? help raise awareness and hopefully find a cure
Cystic Fibrosis Aust @CFAustralia
1K Followers 163 Following CFAustralia is the national body supporting people who live with CF through research, advocacy and the CF Clinic Improvement Program.
Cystic Fibrosis @iCysticFibrosis
1K Followers 228 Following Cystic Fibrosis is a lung disease that causes musuc to build up on the lungs and pancreas for more info visit
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
Victoria Tremlett @Tor87
3K Followers 2K Following Huge musical theatre fan. Love London. Blogger. Dog obsessed. Cystic Fibrosis, lung transplant & incurable cancer, oh my! Body battles on a daily basis.
CF Together @CFTogetherAus
1K Followers 242 Following CF Together | Changing Futures, Together CF Together is a national organisation dedicated to advancing progress for people living with cystic fibrosis.
Cystic Fibrosis Kids @CFKidsUK
3K Followers 2K Following CFK support the children under Portsmouth Hospital with Cystic Fibrosis. We provide hospital and sports equipment along with activity grants and other services.
Cystic Fibrosis Non-P... @CureToLive
2K Followers 890 Following Tweet us your stories, news, events ect. CF = CURE FOUND. @Misscaley gained angel wings June 13, 2014 at 7:03 pm. 💜 #CureCysticFibrosis Follow @BreatheForCaley
Cystic Fibrosis SA @CFSouthAus
771 Followers 12 Following Cystic Fibrosis SA is a not for profit organisation which provides information and support services for people with Cystic Fibrosis living in South Australia.
Cystic Fibrosis WA @CysticFibrosis1
1K Followers 303 Following Our mission is to contribute to the social, physical and emotional well being of those affected by cystic fibrosis and fund critical CF research.
Boomer Esiason Founda... @cysticfibrosis
10K Followers 936 Following Fighting Cystic Fibrosis - Advocacy - Education - Fundraising
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Cystic Fibrosis Trust @cftrust
27K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.Trends for United States
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