Clay Newcomb @ClayNewcomb4
Virginia, USA Joined August 2017-
Tweets2K
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Followers158
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Following294
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Likes7K
Dying while knowing that something’s out there that could’ve saved you is even worse than just dying. Please @BrainstormCell #FileTheBLA! Please @US_FDA @FDACBER #ApproveNurOwn! We’re running out of time. How much longer do we need to beg for our lives? #ALS
Day 7 asking @alsassociation to take a definitive stance on whether Brainstorm should file a BLA for #NUROWN, and whether @FDACBER should use accelerated approval process. Failure to do so means your stated principle of listening to pALS is false. RT and make it go viral.
Welcome to GV. We’re proud to work with @bsw5020 @sabrevaya and the @synapticure team as they build a better future and standard of care for ALS patients — nytimes.com/2022/02/01/bus…
25 years ago this morning we lost Dad to an unexpected heart attack, 8 days after we lost Mom to ALS. I give ALS credit for both. We need to pay more attention to the toll ALS takes on caregivers. ALS stinks.
Brian Wallach (@bsw5020) is a superhero. As is Sandra Abrevaya, (@sabrevaya) his wife. Please consider joining them and @iamalsorg in the fight to #ENDALS. apple.news/Az7FEaWNYTtG1N…
The disaster on I-95 is the perfect example of why Biden’s electric car world will fail.
When Biden threatened “severe illness and death' for unvaccinated people” did that include the millions pouring across the southern border who are NOT AMERICANS and who are not required to get a vaccine or be vaccinated?🤷🏾♀️
Border Patrol made more than 173,000 arrests at the southern border in November. The highest total for November in the Department of Homeland Security’s history! And barely a peep from Democrats or the mainstream media on the crisis.
@HaterAls @FDACBER @BrainstormCell @DrWoodcockFDA @BrainstormCell 🙏🙏Please Please help ! 😢This does NOT get better . Every day is a day closer to death for all ALS patients .🙏❤️
We have indisputable biomarker evidence that #NurOwn has a treatment effect for those above 25 ALSFRS-R. @BrainstormCell needs to file a BLA with @FDACBER immediately. We don’t have any more time to waste! #NurOwnWorks
Great to see the leading #ALS organization stating the obvious move! #ALS #ENDALS @statnews @biospace @BrainstormCell @US_FDA @FDACBER @califf001 @FiercePharma @SenatorBurr #NUROWNWORKS @tedcruz @MarshaBlackburn @SenateGOP @SenateDems @POTUS @FDACDERDirector
Great to see the leading #ALS organization stating the obvious move! #ALS #ENDALS @statnews @biospace @BrainstormCell @US_FDA @FDACBER @califf001 @FiercePharma @SenatorBurr #NUROWNWORKS @tedcruz @MarshaBlackburn @SenateGOP @SenateDems @POTUS @FDACDERDirector
Congress: Speed up therapies for the ALS Community votervoice.net/Shares/Bo2_rAA…
Q: Crashing #zoom: Can you give Daddy medicine to make his body feel better? A: Yes they can Rae, by passing #ACTforALS - #S1813 @MarkWarner @timkaine @virginianpilot @RTDNEWS @roanoketimes @NewsInTheBurg #GirlDad #AllIWantForChristmasIsYou #Christmas #ChristmasGiftIdeas
As your constituent, I urge @SenTedCruz to WAKE UP and support and pass the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy
As your constituent, I urge @MarkWarner to support and pass the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy
As your constituent, I urge @timkaine to support and pass the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy
@MMoutsoulas @califf001 @US_FDA @SenRandPaul @senrobportman @SenTomCotton @ChuckGrassley @MarshaBlackburn @SenSchumer @CoryBooker @SenatorWarnock @BobMenendezNJ @SenTimKaine @SenJackReed MY THINKING IS #ALS DOES NOT KNOW STATES, BOUNDARIES, POLITICS, 100% of Congress SHOULD be supporting #ACTforALS for the nation, for self..FOR SELF..think about that .. the drugs are there that may treat, be a cure .. but there is no access ..
Christine Sulser @SulserSuls
44 Followers 5K Following
Shantelle Membreno @membre_shantel
38 Followers 5K Following
Bambi Para @BambiPara18826
26 Followers 2K Following
Grazyna Dikens @grazyn_g
55 Followers 5K Following
Eva Devotie @devoti_e
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Adeline Boiles @adeli_boi
30 Followers 5K Following
Aviana Snater @AvianaSnat57875
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Saige Larabee @LarabeeSa
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Chanell Provosty @ProvosChan
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Corey Tuttle @tutsos
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Justin kimdong @JKimdong33636
9 Followers 33 Following
Mike B @mbath01
7 Followers 99 Following
Gold Rush Pawn @MTGoldRushPawn
119 Followers 185 Following We opened our doors for the first time in June of 1980. We are the oldest locally owned and operated pawn & gun shop in the Flathead Valley.
sTephen @stephenncharles
218 Followers 374 Following
Christopher Binder @ChristopherBin8
220 Followers 1K Following
Brent Johnson @BrentJo19103276
15 Followers 17 Following
🇨🇦🇨🇦🇨�.. @Timothy45908418
64 Followers 135 Following Retired Energy Worker | Conservative |Outdoor Enthusiast | Freedom Lover | Pro Life |
h @hm041919
69 Followers 168 Following
Jason london @jlondon625
560 Followers 1K Following America First! God, Family and the Constitution! Tired of Rhinos.
ALS ONE @alsone_official
948 Followers 634 Following Our world leaders in ALS research & care have united 2 advance critical research towards a cure while improving the qual of life of individuals living w/ALS now
Lilian Ngusuur @LNgusuur
13 Followers 114 Following
Cecilia Aguirre-Crow @CeciCrow
527 Followers 465 Following ALS Warrior, fighting for expedited treatment
Steve Rice @rice0494
2K Followers 2K Following Canadian, liberal, intersectional feminist,Pro Choice, BLM, equality, #EndAls, climate change is real#Leafsforever, dms welcome,he/him
wayne thomas @nwaynet
570 Followers 1K Following ALS Warrior! World Trvlr - 38 countries, Joanna.Foodie.Xmas.Fur kids:Callie & Skye. FCPHR, CMC, MBA, Sr. Leader. LIVING LIFE NOT WAITING TO DIE.🇨🇦🇺🇸🥂🍽
Lisa Martinez @LisaMar17763916
457 Followers 685 Following supporting @jamieroseberryy 💙ALS community 🐺🌹#ENDALS a wise woman once said “ you can’t scare me I have ALS “@sandymorris333
Jeffrey Martin @Jmartinten
116 Followers 548 Following Husband, Father, Grandpy, ALS caregiver, U.S. Air Force Veteran,Budweiser delivery guy, Tigers Lions & Pistons fan, Buckeyes, Ayersville Pilots
Unite Genomics @UniteGenomics
292 Followers 933 Following Unite is developing an all-in-one platform to bridge the gap between the rare disease community and researchers to accelerate the development of treatments and
Unite ALS @unite_ALS
1K Followers 4K Following Unite is developing an all-in-one platform to bridge the gap between the #ALS community & researchers to accelerate the development of treatments & cures.
Samson Eric davis @SamsonEricdavi5
180 Followers 125 Following A male stripper from New Orleans Louisiana
D'Andrea Jones @wahhooscwgrl
599 Followers 5K Following I lost an Amazing Husband to the horrific disease ALS! Raise awareness to Lou Gehrig’s disease! #ALSSucks #SoulMates #ALSFindACure
Jennifer Bullard @JenniferBull09
177 Followers 790 Following Retired first grade teacher. Fan of problem solvers. Here to learn.
Proud Retired Navy CA.. @KRob8753
2K Followers 3K Following ALS is my battle now. 1/6/21 was an attempted coup. Never Trump. “We convey by our presence, and our actions, that which is important.”
Mara @mara_dolan
154 Followers 192 Following Fighting for my husband's life. Fighting for #NurOwn. Fighting to change the pattern of failure. ALS = same exact prognosis today as in the 1800s.
Peggy Jennerman @PJennerman
81 Followers 619 Following Wife , mother and grandparents of 14 grandchildren and love to ride my Harley Davidson ♥
Moonbeam Ninja @MoonbeamNinja
517 Followers 2K Following While we research for a cure, let's approve #NurOwn, T-regs and Cu-tsum for ALS patients.
Dave Hagen @DaveHagen19
575 Followers 1K Following
Becky Martz @becky_martz
439 Followers 409 Following I am on Twitter to gain information regarding ALS. I lost the best dad ever to this wretched disease and I carry the gene that caused his ALS.
JulieDoyleCullen @JulieDoyleCull
555 Followers 821 Following Business woman and caregiver turned #author. Doing what I can to fight #ALS
Patricia Drinkwater @Drinkw4Patricia
85 Followers 151 Following Living life with ALS. It’s not a pity party, it’s a Patti Party! Fighting ALS while celebrating life.
@swizz_inks 0-1 n 11 .. @lizlezzjre1
517 Followers 3K Following JRE,Timcast, DaileyWire fans. Dolphin Nation 🐬 Freedom of fucking speech in America.. Make America Florida Now..... SBG 4 life
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
REC @RappElecCoop
2K Followers 323 Following Member-owned electric co-op serving 174,000+ connections in 22 Virginia counties. 1-800-552-3904 This page is not monitored 24/7.
Mark Kirton @KirtSpeaksALS
2K Followers 1K Following Former NHLer (Tor, Det. & Van.), Married & father of 3. Diagnosed with ALS in 2018… Symptom onset 2015. Member of ALSAC and pushing for a cure.
Pulte @pulte
3.1M Followers 466 Following The Philanthropist. Inventor of XPhilanthropy. I give away money, food, shelter & medicine!
Xcxx @lorrielinn
459 Followers 460 Following
Amber Salsberry @amber_salsberry
210 Followers 236 Following #hairstylist #salonowner #wrestlingmom #alshater #inthisfamilynoonefightsalone
Fox Nation @foxnation
401K Followers 555 Following Fox Nation is an entertainment streaming service with unmatched access to exclusive shows featuring your favorite Fox hosts. America is Streaming. Get the app.
Fox News @FoxNews
24.5M Followers 261 Following Follow America's #1 cable news network, delivering you breaking news, insightful analysis, and must-see videos. https://t.co/sXA1eVB5Gv
Moonbeam Ninja @MoonbeamNinja
517 Followers 2K Following While we research for a cure, let's approve #NurOwn, T-regs and Cu-tsum for ALS patients.
Misty Tincher @tincher_dawn
195 Followers 232 Following Wife, Mom of 2 boys.. ALS fighter for my husband!!
Wildcat4151 @wildcat4151
468 Followers 2K Following I'm a wife & mother, Navy Veteran, ALS Advocate, Writer, Cook and Warrior. Diagnosed January 2015. Former Miss Wheelchair New Mexico. Holy Walkamolies Captain.
Tara Collazo @TaraCollazo1
407 Followers 706 Following Victim of #ALS, fighting for survival. You may see me struggle but you’ll never see me quit. #ALS is destroying my family. #DyingWaiting
RealRawNews @RealRawNews1
54K Followers 35 Following https://t.co/glEd9YOEu3 Sharing what some don't want shared. Don't be a sheep.
Jan Schakowsky @janschakowsky
54K Followers 2K Following Official Twitter account for Rep. Jan Schakowsky, Illinois 9th Congressional District
Nicholas Florko @NicholasFlorko
6K Followers 2K Following I report @statnews on the business reasons why Americans are so unhealthy, and what's being done about it. Lover of public records and @terrorhardcore.
Jinsy Andrews, MD @JinsyMd
456 Followers 24 Following Neurologist, neuromuscular specialist. Opinions shared here are my own personal views.
Rep. Anna G. Eshoo @RepAnnaEshoo
52K Followers 1K Following Representing California's 16th Congressional District – the heart of Silicon Valley. 📧Sign up for weekly legislative updates at my website
Mayank Saxena @MayankNYC2LA
178 Followers 46 Following Actor & brother to my sister @mayuri444 who’s dying of ALS
Suzanne Maguire @SUZANNIO
5K Followers 3K Following Mother/Author. Lived in Canada & Greece in the 80s. Since 2002, living with MND in the UK. Proud Patron for South Yorkshire MNDA branch. Remaining positive 😁
nathanstanton @nathanstanton
1K Followers 2K Following Husband, father, son, leader, Elder and Coach(ACC) in the United Methodist Church, Director of Congregational Excellence/DCM, Great Plains UMC-Living with ALS
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
rob survick @Robdback
268 Followers 438 Following
MattsPlaceFoundation @JoinMattsPlace
991 Followers 4K Following Provide accessibility, housing and support to families battling ALS throughout ID, MT & WA #uncrushablespirit #als
4youiwillfight/Collee.. @ObColl
129 Followers 226 Following #4YOUIWILLFIGHT ##ALS #endals #curenow ❤️💪🏻🌻 ALS advocate for my sister and thousands of others ALS warriors!
Sabrina Paganoni, MD,.. @PaganoniMDPhD
3K Followers 3K Following ALS physician scientist; ALS clinical trials @MGHNeurology and Healey Center; Associate Professor @HarvardMed; @NEALSConsortium; @SpauldingRehab
ALS_Nutrition @AlsNutrition
45 Followers 19 Following Researchers at #MGH have created an ALS Nutrition app #ALSA to provide personalized ALS nutritional counseling. To download the app visit our website:
Garrett May @rett_may
244 Followers 880 Following Latter-day Saint & disciple of Christ, ALS advocate, BYU Humanities alum, GW Law grad. Immigration lawyer. I think video essays are cool.
Arrest and Extinguish.. @AlsArrest
154 Followers 286 Following Twitter page of Arrest and Extinguish, ALS fundraiser account for, first responders to help support their brothers and sisters.
Jim Mourey @JimMourey
378 Followers 240 Following Husband of a strong amazing woman who fought ALS, father of 2 wonderful adult kids and advocate of ALS awareness
ALS CURE Project @alscureproject
690 Followers 511 Following The purpose of the ALS CURE Project is to provide laser focused leadership and sponsor scientific research leading to a cure for ALS (aka. Lou Gehrig’s Disease)
ALS ONE @alsone_official
948 Followers 634 Following Our world leaders in ALS research & care have united 2 advance critical research towards a cure while improving the qual of life of individuals living w/ALS now
James Maness @mrmaness1
957 Followers 402 Following Living with ALS. Fighting the fight. Trusting in God’s plan for my life. ALS Warrior.
Unite ALS @unite_ALS
1K Followers 4K Following Unite is developing an all-in-one platform to bridge the gap between the #ALS community & researchers to accelerate the development of treatments & cures.
Nicole McCabe @NicoleALSJurney
2K Followers 650 Following 35 year old PNW girl battling #ALS I'm here to fight with all my might. My babies need me! We deserve a right to live. 💙 join me in my battle
Christy A. @momwithwheels
1K Followers 1K Following I am wife and mom of 2. Doing my best as a mom with Lou Gerhigs disease (ALS).
Evan Campa @EvanCampa
3K Followers 2K Following Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Michael @mpabull
636 Followers 331 Following
Wayne Fagan @_FaGan_4
3K Followers 3K Following When life deals you lemons just add Tequila and keep on rolling. NamEra Veteran AK2. God Family Country. Retired farmer rancher.
Tina Forte for Congre.. @TinaForteUSA
77K Followers 1K Following Proud America First Patriot | Republican Nominee Against AOC! (NY-14) 🇺🇸
Farmstrong @farmstronginfo
1K Followers 4K Following Foodie, #wine-y, fan of good UX & #techcomm. Together we can save my husband & hundreds of thousands w/ #ALS. #EsriMaps #DyingWaiting #BLM #LGBTQIA #mirfanda
Pain In The ALS - Fun.. @PainInTheALS
634 Followers 265 Following Keeping Mike's Legacy going.. A brave & determined 5 yr fight with MND. Read Mikes blogs: https://t.co/KA4cNPfsQE
Mary Myers @MaryMyers8090
141 Followers 81 Following Wife, mother and Jesus lover fighting the beast known as ALS.
Ashley Thombs @athombs
301 Followers 417 Following The past is prologue to a future. What it will be, I don’t know. END ALS
Jeremy J. Van Tress, .. @jeremy_vantress
380 Followers 329 Following Husband. Father. US Army Veteran with ALS. US Paralympic hand cycle hopeful. Social Worker. #Paris2024
American 🇺🇸 Joy.. @DownHomeWoman
20K Followers 13K Following ❤ God & Country 🇺🇸 👈Stands for FREEDOM TN Vol Mama #RollTide AL Alumni. #FarmLife. #Country. #Bluegrass. #Carnivore #RealWoman #SmallGovernment.
alsHATER @HaterAls
1K Followers 967 Following als hater MM lover Impossible is an option One woman armyWe’re witnessing the biggest gaslighting of the American people in the history of this nation. #SOTU
Hi, I'm Juan Reyes, AKA The Juan and Only,and I am living with ALS. A husband and father of 4 residing in San Antonio Texas. Join me and I Am ALS to help us create A World Without ALS.
Jamie is a fighter. A force in the #ALS world but she’s feeling her disease. It’s progressive, degenerative & terminal. Watch 👇🏼 & remember this could be YOU. #EndALS #whereisNurOwn #drugsinbodies @JamieBerrysALS @BrainstormCell @US_FDA
The ALS clock moves at an unpredictable pace. Every single loss of function hurts. Knowing the losses are not going to stop hurts worse. Access to #NurOwn = HOPE, as we try to beat an undefeated clock. Please help us find hope iamals.org/action/brainst…
@ClayNewcomb4 @BrainstormCell Thx Clay for your support. I’m sorry that you’re part of this #ALS club. The only bright side is that our “club” members are wonderful people.
@bsw5020 @iamalsorg @NIH Done. Let's effing doing this!
Dying while knowing that something’s out there that could’ve saved you is even worse than just dying. Please @BrainstormCell #FileTheBLA! Please @US_FDA @FDACBER #ApproveNurOwn! We’re running out of time. How much longer do we need to beg for our lives? #ALS
Sometimes I lapse into this mental funk of “why bother.” Why bother getting out of bed? Why bother w/ALS advocacy? Why bother learning anything new? Why bother fighting day in and day out? I’m in that funk now. Hate it. #EndALS #NurOwn @BrainstormCell
Things a learned in hs physics class- You don't measure one side of a table w a yardstick & the other w a micrometer to calculate area. In ALSland we measure progression w a pretty clunky yardstick. Then we apply a micrometer to the trial data to determine efficacy. #WIWWTP
After 4+ years living with ALS, you are darn right we celebrate our daughters half birthdays.
The most helpful advice I got upon being diagnosed with a 100% fatal, degenerative disease: ✨Don’t grieve that which hasn’t happened yet✨ Applicable to so many situations beyond #ALS
Is it jacked up that I have more faith in the @US_FDA than @BrainstormCell ? I do... please prove me wrong.
3 years ago my husband had neck surgery- Today his diagnosis is ALS which means no more clinical trials! Today we fight for Rob’s life! @BrainstormCell please #FileTheBLA #NUROWN #DAD2022 #ALS
Day 7 asking @alsassociation to take a definitive stance on whether Brainstorm should file a BLA for #NUROWN, and whether @FDACBER should use accelerated approval process. Failure to do so means your stated principle of listening to pALS is false. RT and make it go viral.
So wait. Unvaccinated truckers CAN’T bring us food but unvaccinated illegals CAN bring us drugs and guns? Who came up with that boneheaded idea?!
They say it is an old persons disease. I was 48. They say it is a rare disease. 3 of my high school classmates have lost a parent to it. Now my family. They say that now is not the right time. The US and UK just took bold, unprecedented action. Let's go, Canada! #EndALS
@DrOzdinler I'm appalled by paternalism, omnipotence & misogyny by some researchers. Know that the community of #ALS patients are behind you & we are the ones who: ▪️ Got $500M #ACTforALS passed ▪️ Raise $ for research ▪️ Direct people to clinical trials We are behind you & Nu-9! #UMN
I could not be more pleased to be invited to join the Expert Advisory board for this startup, which aims to transform #ALS care- including basic no cost genetic testing. #ALS has changed again! nytimes.com/2022/02/01/bus… #synapticure #ALS #ENDALS @RepMullin @JimInhofe @krhern NME
Welcome to GV. We’re proud to work with @bsw5020 @sabrevaya and the @synapticure team as they build a better future and standard of care for ALS patients — nytimes.com/2022/02/01/bus…
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