Manuel Lopez @hauling221
VALS fighting for treatments for als Joined July 2012-
Tweets12K
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What a day, what a day at NEALS!! Ozdinler Lab presented 4 posters, all on different topics and all require different expertise. How can you not love & support the Ozdinler Lab?
ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN @BellinaDeb @brainmatters10 @CraigReagan2 @EBraeden @MinoSean To Those that think ALS is just Letters I Pity your STUPIDITY The day that YOU or the LOVE OF YOUR LIFE is DIAGNOSED you will Know what those letters mean DEATH #NUROWN4LIFE
Day 747 asking @US_FDA to urgently to approve @BrainstormCell’s #NurOwn for #ALS and @FDACDERDirector @POTUS @DrCaliff_FDA to help
Day 747 asking @US_FDA to urgently to approve @BrainstormCell’s #NurOwn for #ALS and @FDACDERDirector @POTUS @DrCaliff_FDA to help
Antisemitism is not just the Jewish community’s issue. It’s everybody’s. Retweet this video with #StandUptoJewishHate to show your support.
ALS-THE FORGOTTEN DISEASE @brainmatters10 @EBraeden @MinoSean @FDACBER I have been Telling Richard's Story for 5yrs Still NO NUROWN NO VIABLE TREATMENT NO CURE ON THE HORIZON Richard's WAR with ALS took 8yrs to END in DEATH NUROWN was in Phase 3 Trials WHY IS NUROWN NOT IN BODIES
@leanne_yacyshyn The like I put on this is not because I like anything about this for you. It’s to visually tell you I hear you. I see you.
ALS took my valentine of 38 years @becky_mourey ♥️ today. My heart is broken. 😞 I hope her advocacy makes life a little easier for the next generation of ALS patients #ENDALS @iamalsorg @alsone_official
Thank you to the people of Illinois’ 9th Congressional District for choosing me to be your voice in Congress, it is truly an honor! I will continue to fight for a more equitable and just world. Please do not hesitate to contact me if you need assistance. schakowsky.house.gov/contact
41-year-old Luther died of #ALS leaving behind his wife & young son Congress, help END the CRUEL regulatory RIGIDITY of the @FDACBER for 100% FATAL ALS. @DrCaliff_FDA, HOW MANY MORE HAVE TO DIE? DEMAND an #AdComm hearing be given for safe/effective #Nurown at Type A mtg TODAY
It’s imperative that @BrainstormCell receives an Adcom meeting. January 11th is type A. Write your congressman, reporters, etc to strongly urge the @US_FDA to do the right thing
Day 514 asking: @US_FDA to use flexible regulatory pathways with @BrainstormCell’s #NurOwn for #ALS. & @FDACDERDirector @POTUS @VP @DrCaliff_FDA to act urgently. #everypointmatters so that my mom, a #PLWALS, can meet my kids, not just my dog. There remains an unmet need here.
The fate of SO MANY ALS patients rests in the hands of the @FDACBER at the January 11 Type A mtg I have NO FAITH in the FDA to do the right thing after years of empty words/promises. #Congress, please help END the CRUEL #FDA regulatory RIGIDITY for 100% FATAL ALS. #NurownWorks
Derek died of #ALS on Monday WITH NO CHANCE OF SURVIVAL. He left behind his wife & 4 children. ALS IS NOT RARE. This can be you/your loved one next. Congress, tell @DrCaliff_FDA & his @FDACBER to approve safe/effective #Nurown. How many more families have to bury loved ones?
Don’t freak out early alert for tonight-Pennsylvania reports Election Day results before mail in ballot results which will make the early reporting look skewed to Rs because more Dems vote by mail (70% of requested ballots this year were dems) so hang tight tonight
If you don't already know Catherine Scott, you should. If you do know Catherine, you know she has lived with ALS for 20 years and is one of our most active Team Gleason Board members and a force of nature, despite the disease.
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Shah Minokadeh, M.D. @MinoShah
4K Followers 730 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Mandi @RunningMama0522
2K Followers 1K Following
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
alsHATER @HaterAls
1K Followers 967 Following als hater MM lover Impossible is an option One woman army
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Nicole Cimbura @nicolecimbura
1K Followers 2K Following
DeepaK Kumar @Deepak13900
15 Followers 141 Following A Father & Husband..... symptoms onset since 2021 waiting for my Dx
JC @JC75408607
558 Followers 452 Following Diagnosed with ALS 3/30/22. Living life day by day while I try and process this journey.
Sowmya Anderson @SowmyaAnde53458
110 Followers 3K Following
Elon musk @reeve_elonmusk1
34 Followers 548 Following
Sarah Williams @SarahWilli63751
113 Followers 3K Following
Emma Day @EmmamwDay
14 Followers 504 Following Found different beauties from all US states 😻 They are ready to meet Nudes in profile! Watching this https://t.co/Il6JlLnHQu
Veronica Stafford @VeronicaSt36661
93 Followers 3K Following
Marlene___§~♤♡�.. @Marlene8606
45 Followers 364 Following ~Don't give up on the things that you wan't in life~~ ~This Account is all about Reality app :)
150MND @150mnd
121 Followers 371 Following we are a team of friends aiming to raise £150k by walking 150 miles inspired by our great friend Rob who was recently diagnosed with MND. A Big Rugby fan
Danielle Obamak @DObamak21268
11 Followers 747 Following
Joseph Shlipton @BardChatGPT
322 Followers 3K Following
Chris Scandaglia @ChrisScandaglia
957 Followers 5K Following https://t.co/VTII0I4qsa President, in memory my grandfather where I have worked w AROD&CANO other NYY raised $10310 ALS widow, $4612 ALS widower & $2505 for ALS widow.
COACH OLIVIA @coach__olivia
874 Followers 4K Following 🕵Entrepreneur 📊❤ miner Earn $30,000 weekly DM📩 For Info and start earning $10,000 daily. 📈BUSINESSES COACH
Pete Wallach @pwallach87
1K Followers 2K Following Top 5 cartwheeler in the Midwest*. Opinions are my own. CFO, @Synapticure. YC S20. previously @bainandcompany, @columbia_biz, @uva . #ENDALS
Sunny Brous @sunnystrongals
2K Followers 623 Following I have ALS but it does not have me. No apologies, no excuses, no regrets, just me.
Jessica Smith @joysmith77a
42 Followers 286 Following
DEB-MNDWARRIOR @DEB_MNDWARRIOR
940 Followers 909 Following https://t.co/k61gquuj0Z Hairdresser,Mother of 3 World just tipped upside down with a diagnoses of MND/ALS 💔
Netha Lindsey @NethaLindsey
12 Followers 204 Following
Betty’s Brigade Fou.. @No_More_ALS
347 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
Jill Brattain @MommaJillB
546 Followers 560 Following Love my family, love my life, but most of all, Love God. Victim of the ALS beast. Miss my best friend.
Costan Buenafe @CBuenafe1993
8 Followers 7 Following
アラフォーALS @ALS7693636895
1K Followers 5K Following 2023年にALS（筋萎縮性側索硬化症）という難病の確定診断を受けました。同じ病気を持つ方々や、難病、障がいをお持ちの当事者及び支援者へ向けて、色々と発信していこうと考えています。
Tal Gazanda @Tal_Gazanda
135 Followers 363 Following
NeuroSense Therapeuti.. @NeurosenseT
539 Followers 269 Following A Clinical stage Biotech company. Advancing novel therapy for ALS and neurodegenerative diseases. Nasdaq: NRSN $nrsn
T.J. Brown @TJBrown26
2K Followers 2K Following There's a lot of beauty in ordinary things. Probably had a Coca-Cola today. HELP FIGHT ALS! Opinions are my own.
Charlie Theron @CharlieThe43797
171 Followers 4K Following
Tri-State Trek @TriStateTrek
983 Followers 2K Following We can't wait to see you June 22-23, 2024 for the Tri-State Trek! #EndALS #WeAreTrekFamily🚴♀️🚴♂️ Raising funds for ALS research at @alstdi.
Kencats1 @ChrisKencats1
14 Followers 51 Following
All is Well: Lessons @AllsWell333
619 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
NeuronsNeeded @NeuronsNeeded
132 Followers 522 Following
Micheal Robbin @Micheal040823
1 Followers 56 Following
Andrea Anderson @aander1987
7K Followers 5K Following National advocate for patients, clinicians, research & scientists… all who are involved in living with, treating, or researching chronic/persistent pain.
Nuruddin @BrandOnpassive
67 Followers 216 Following
Lee Morrison @LeeMorrison2022
370 Followers 887 Following Disabled, ALS fighter, power chair, USMC & Army Veteran, Book seller on AbeBooks @ https://t.co/pFVnC80NOW NO DM!!!!! You WILL be blocked!!
T Simmons @s78095782
95 Followers 160 Following Blue collar woman living in a white collar world. Love Jesus & Family. Husband diagnosed with Bulbar Onset ALS 12/22.
Dr. Stacy Lewin @FarberStacy
469 Followers 438 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
Godwaypharma @Godwaypharma07
19 Followers 472 Following Godwaypharma is a natural cure based on oriental regenerative therapeutic. It was restored by us after many thousands of years of being forgotten.
LaVonne Roberts @LaVonneRoberts
4K Followers 2K Following Health, Tech & Science Journalist. Forbes 30 Under 30 Tech Reporter. Trustee Scott-Morgan Foundation. ALS Advocate.
Warren Schiffer @Wingsoverwallst
2K Followers 2K Following Join us 2 cure ALS (Lou Gehrig's Disease)! Cofounder of MDA's Wings Over Wall Street®, widower because of ALS (love & miss you Toni), recruiter of ALS Warriors.
cathy @ocean1763_cathy
35 Followers 999 Following
ALS Society of NB and.. @CareAndHope
514 Followers 2K Following ALS NB & NS is the life-affirming advocate for people & their families helping them navigate through a confusing & difficult disease with dignity & purpose.
Elizk @Elizk84179966
225 Followers 906 Following
Lauren L @LaurenL18641152
575 Followers 4K Following Proud Wife, Mother, Sister of ALS Warrior and PuppyMama. Stand with Ukraine. 🌻
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Shah Minokadeh, M.D. @MinoShah
4K Followers 730 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Mandi @RunningMama0522
2K Followers 1K Following
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Lesha Jett @ImLolly713
584 Followers 336 Following FT ninja in the forest & dirt. I HATE ALS as hard as I LOVE MY SISTER (who had ALS). Jamie Rose Berry died waiting...💔🌹🌙
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Deb Paust @PaustDeb
1K Followers 724 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
Nicole Cimbura @nicolecimbura
1K Followers 2K Following
JC @JC75408607
558 Followers 452 Following Diagnosed with ALS 3/30/22. Living life day by day while I try and process this journey.
Chicago Cubs @Cubs
2.6M Followers 1K Following The official Twitter home of the Chicago Cubs. #YouHaveToSeeIt
Northwestern Alumni @NUAlumni
13K Followers 1K Following The official account of the Northwestern Alumni Association. Connecting #NorthwesternAlumni and celebrating Purple Pride across the globe.
car128 @crayne128
231 Followers 317 Following homesteader, lover of sustainable living, hater of ALS for stealing it all away from me, and for threatening to steal my family from me. We need NurOwn now!
AnneeK @anneek10s
375 Followers 457 Following God is bigger than #ALS, dx in 2022, Married to the love of my life, Mom and Grammy, Golden retriever lover #bourbonlover #FightlikeAGirl #ALS #ALSWarrior
Dr. Stacy Lewin @FarberStacy
469 Followers 438 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
FDA Biologics @FDACBER
24K Followers 215 Following Latest information from the Center for Biologics Evaluation and Research. Contact us at 1-800-835-4709 or [email protected]. http://t.co/5Fo6rzyhYQ
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Ashley Lee @AshL1225
92 Followers 387 Following
OSINTdefender @sentdefender
1.1M Followers 792 Following Open Source Intelligence Monitor focused on Europe and Conflicts across the World. RT ≠ Endorsement. Want to Support my Work? https://t.co/PcUbewvWPr
Les Turner ALS Founda.. @LesTurnerALS
4K Followers 575 Following The leader in comprehensive #ALS care in Chicagoland
Lisa Martinez @LisaMar17763916
457 Followers 685 Following supporting @jamieroseberryy 💙ALS community 🐺🌹#ENDALS a wise woman once said “ you can’t scare me I have ALS “@sandymorris333
George Hahn @georgehahn
287K Followers 1K Following Just so we’re clear: I did not pay for the blue checkmark.
Patton Oswalt @pattonoswalt
4.5M Followers 5K Following Head over to https://t.co/RxSAvjPK2W for tour dates, comics & whatever else I’m working on. I like making stuff. IG, Threads & BlueSky: @pattonoswalt
Jon Favreau @jonfavs
1.4M Followers 2K Following The other one. @PodSaveAmerica, @CrookedMedia, https://t.co/mKXKFl0EF4, https://t.co/zvWhe0ETFE
Randy Rainbow @RandyRainbow
726K Followers 3K Following EMMY and GRAMMY Nominated Comedian, Actor, Singer, NYT Best Selling Author. Calm down, everything here is PARODY! TOUR tix link below! [email protected]
Al Franken @alfranken
1.2M Followers 38K Following Husband, Dad, Granddad, Democrat, Minnesotan, Author, Human Cannonball, Comedian, Head of Midwest Values PAC, Host of The Al Franken Podcast
blaire erskine @blaireerskine
410K Followers 2K Following Writer for @jimmykimmellive. “The woman playing Yaccarino”- @THR. Rep: CAA
Jon Stewart @jonstewart
1.7M Followers 2 Following
Rabia Turcan @turcanrabia84
43 Followers 397 Following
KWQC TV6 News @kwqcnews
76K Followers 392 Following Serving the Illinois & Iowa Quad Cities Area. Got a story you want to see on air or on https://t.co/GaWeIeL4nx? Email us at [email protected] or call 563-823-KWQC.
Ann @Ann58032824
332 Followers 1K Following Septic Shock Survivor. Caregiver to mom with Vascular Dementia/ALZ 15+ years. ALS Advocate for sister & all pALS/cALS #DrugsInBodies #Hope #CURE
Barbara Smith @liseybabyluv
3K Followers 3K Following 32-year Retired Air Force SMSgt; Saint Leo University Alumni (BA Sociology; Master of Theology); Savannah Native; Stephen King and Resident Alien Superfan.
Dr. Robert M. Califf @DrCaliff_FDA
11K Followers 43 Following Husband, father, grandfather. Doctor with heart(s). Commissioner of Food and Drugs - @US_FDA
Meaghan Smith @MeaghanRSmith
2K Followers 3K Following Comms, strategy and design/ Helping incredible people make incredible moves/ Former Obama @HHSgov, @SKDKnick, Senate, and House alum
Synapticure @synapticure
4K Followers 505 Following Personalized virtual clinical care is finally here for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's
Senator Jon Tester @SenatorTester
165K Followers 986 Following Third-generation Montana farmer. Proud grandfather. Former school teacher. Flattop icon. Trumpet player. Montana's senior Senator.
Melissa Survick @MSurvick
284 Followers 310 Following
beanish 🐝 @bean_ish
322 Followers 1K Following ALS traveler ... Wife mom sister aunt friend neighbor activist legumist deltiologist... Team Pete forever #ENDALS #ALSAwarenessMonth #iamals
President Biden @POTUS
34.8M Followers 5 Following 46th President of the United States, husband to @FLOTUS, proud dad & pop. Tweets may be archived: https://t.co/HDhBZBkKpU Text me: (302) 404-0880
Chuck Grassley @ChuckGrassley
907K Followers 12K Following U.S. Senator. Family farmer. Lifetime resident of New Hartford, IA. Also follow @GrassleyPress for news and information.
ALS News today @alsnewstoday
2K Followers 44 Following We are dedicated to sharing the latest news, research, and Amyotrophic lateral sclerosis (ALS) patient perspectives.
Scott Smith @ScottFightsALS
9K Followers 497 Following Father, husband, gym owner, ALS warrior and storyteller. Founder of BodySmith and Flex On ALS. 💪
Michelle White @michelletzer
120 Followers 823 Following Veterinarian, Genetics PhD, Precision Medicine Stan, Broadie, Mom
SOS 4 ALS @SOS4ALS
286 Followers 561 Following Advocate for people with ALS. This "rare" disease has taken 3 from my life. *Drugs in bodies, hope for souls NOW.* Opinions expressed are my own.
Ales for ALS @AlesforALS
718 Followers 2K Following Since 2013, the #AlesForALS program has raised over $6,000,000 for ALS research at @alstdi. Cheers to beer and to helping #EndALS!
Chuck Schumer @SenSchumer
3.5M Followers 23K Following Official Account of Senator Chuck Schumer, New York’s Senator and the Senate Majority Leader.
Dak Prescott @dak
1.5M Followers 751 Following Louisiana Pride - Mississippi Grind Cowboy Living M.O.M. #Hailstate https://t.co/m2B1pUcrga
Maace @mavelou93269001
911 Followers 538 Following seek the lord while he may found..call on him while he is near 🌈🙏🏾Tonight, I will say goodnight early. Nothing is wrong, just getting some rest after a long week. Sending love to you all. Good night moon.
Adaptation to the situation is the only path forward in #ALS and eye tracking and understanding how to use it is a critical component. However, eye gaze is intimidating for many and often unapproachable. This new series will attempt to help break down some of the myths and choke…
I AM ALS’ Clinical Trial Team will host a monthly webinar to increase people’s understanding of clinical trials in general, as well as ongoing ALS clinical trials and trial finder tools. Join us for Clinical Trials 101, Thursday, May 9, 6 ET. iamals.org/action/clinica…
On Tuesday, Sandra and I were part of a webinar hosted by the White House to discuss new rules that transform long-term caregiving and the care economy. Thank you to the administration for its commitment to improving healthcare for all. whitehouse.gov/briefing-room/…
With ALS, I live in a world of ups and downs. I am sure that many of you live in the same world. So I just want to say, stay strong. The world is a better place with you in it. Good night moon.
I’m having a dinner meeting with my caregiver team tonight. I’m now on year 6 with #ALS and level of my care becomes more involved almost daily. What should we be expecting or asking ourselves? There isn’t a lot of information out there. Should I share our agenda and notes?
A Long Swim and Friends of Chicago River are about to make history in Chicago!! Swimming the Chicago River is going to be a reality again after 100 years! .@chicagoriver .@ALongSwim
I am honored to be part of this one of a life-time event. Chicago River Swim by A Long Swim!! @ALongSwim1 .@chicagoriver .@nbcchicago .@chicagotribune
#WhyIFight I fight for more time with my amazing wife, @mrslambgreen I fight to see my four children grow into the people they will become I fight for everybody that has been chosen to carry the burden of #ALS I fight to find effective treatments and cures, and #EndALS
Some will say there is no hope for people living with ALS. F that. They don’t see what we see -- amazing communities fighting like hell to make hope real. And we won't stop until we find cures. #WhyIFight Retweet this post, use #WhyIFight, and tell us why you keep fighting.
A year ago, my fingers weakened and I was unable to type on my own. It has been a long year but I have never given up on my dream to type again on my own. I am not there yet but step by step, with some help, I am making progress. Here’s to chasing our dreams.
Dr Merit Cudkowicz received award at the Les Turner Gala. The NU-9 team had a chance to meet. Let’s move NU-9 forward with science, love and determination.
Happy Friday!!! Time to advocate for Veterans impacted by ALS with @MommaJillB and @shellyhoover, then settle in for a great conversation during ALS Office Hours. It’s going to be a great day 😍
@BridgetRebecca4 @DrCaliff_FDA @US_FDA It's ridiculous. I lost my dad and I'm gene positive. When I develop symptoms, I'd like to be given a fighting chance and Nurown seems to be the best option. I'd take a 35% chance of survival over 100% death any day of the week.
I am at NEALS leadership meeting. I am so sad inside, but my brain is occupied by thinking how to improve clinical trials and my heart pounds with ❤️ towards ALS patients and all patients out there waiting for effective cures.
Today, I was back on the sidelines for my younger daughter’s game. In the grand scheme of things, seven months is not a long time, but when you are living with ALS it is everything.
Last month marked 6 years since I was diagnosed with #ALS. More has changed since that terrible spring day in 2018 than ever, so I've been told. Unfortunately, thousands of pALS' current fight for real change has been very difficult (but will continue). If I had to sum up how I…
@FDACBER What’s new is yet another new week that a subset of people suffering from #ALS, who could be benefiting from #NurOwn, are not getting access to it. It’s undeniable that a subset of people responded in trials. #someisenough #criticallyunmetneed @DrCaliff_FDA
GREAT NEWS! The FDA has approved the Phase 3b trial design for #NurOwn aka debamestrocel! TRIAL DESIGN 🔹≈200 trial participants 🔹1:1 placebo ratio 🔹24 wk double-blinded trial 🔹24 wk OLE where all participants can get NurOwn 🔹6-9 wk screening to do Bone Marrow Aspiration…
Tomorrow morning @BrainstormCell to provide update on the #NurOwn program for #ALS. Praying the FDA accepted the Phase 3b trial design. Lives depend on it! We KNOW #NurOwnWorks ir.brainstorm-cell.com/2024-04-08-Bra… #EndALS
I can't believe some of your callers @jillreports I have no intention or desire to go to Wreck Beach but for the callers to say "too bad so sad" about people with disabilities having access is down right mean. I hope that they never have to be in a wheelchair.
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