Claire @claireheatherd1
Holy Spirit filled Christian who's not ashamed to say it. In full faith for deliverance & healing from severe ME. Nothing is impossible with God. In Jesus Name South East, England Joined February 2016-
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So many! I'm sorry to be the bearer of more sad news this morning. Condolences to friends and family. 🕯️ #MyalgicEncephalomyelitis #MECFS
Update about Millie: Petition change.org/p/save-millie-… Fundraiser justgiving.com/crowdfunding/b… #BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie #DontLetMEDie
How are we still having this argument thirty years on? @RobbieRinder
How are we still having this argument thirty years on? @RobbieRinder
I'm a GP – the way chronic fatigue patients are treated is unforgivable - inews apple.news/ABx3gmi2_S_C2Y…
"Urgent call from Christoph and his family: we are looking for well-done projects, websites, news articles, documentaries, and photographs that realistically depict the dark realities of people living with #MECFS. Please post all relevant data in the comments. Thank you! ❤️🙏"
This week marks 8 weeks since Millie was admitted to hospital. Although things have started to improve a bit for Millie let’s not forget what’s happened over the last 8 weeks. #MilliesevereME #SevereME #pwME #saveMillie Part 1:
Latest update about Millie’s situation at the Royal Lancaster Infirmary. #wME #MECFS #MyalgicE #SevereME #SevereME #DontletMEDie #MillionsMissing #MedicalScandal
Please sign! Save Millie's life - Royal Lancaster Infirmary must STOP causing Millie harm - Sign the Petition! chng.it/Y9MXSR8Q via @Change
“These findings, FOR THE FIRST TIME, suggest a link between specific abnormalities in the brain and ME.” From NIH press release. Full out lie, a farce. Brain abnormalities in ME have been published for decades. Predictable NIH blather. Who in science will call them out on this?
Today= 4 years=battling LongCovid 6 months=in current decline from my betterish baseline 1,461 days=of symptoms 0=FDA approved treatments 0=Cure #LongCovid #LongCovidAwareness
@JanetDafoe I’m afraid that this is the tragic end result of a massively hierarchical, arrogant and often unscientific profession. In the UK it is best to avoid being diagnosed with ME, as it’s treated as a psychological illness.
Our thoughts and prayers are with Gabriel's family. 💙 Let's share this sad news in the hope of raising awareness about the tragic realities faced by many #MECFS patients. 🙏🏼
Our thoughts and prayers are with Gabriel's family. 💙 Let's share this sad news in the hope of raising awareness about the tragic realities faced by many #MECFS patients. 🙏🏼
Please sign. #VerySevereME is a devastating disease. It can kill. And it requires special care. Too often in the UK, appropriate & substantial care is denied. It’s happening again right now. Demand this @NHSuk trust do better. Please sign. chng.it/tJwFnR8YVC
One hypothesis is that postexertional malaise is a manifestation of autonomic dysfunction. That leads to the question of whether we could reduce or prevent PEM with some intervention acting on the autonomic nervous system.
Day 3 of covid infection for my 6 year old. It’s been horrific. This evening has been torrential nose bleeds and this is what his skin now looks like. It NEVER looked like this before, he’s never suffered with nose bleeds. #LongCovidKids #LongCovid #MedTwitter
Whitney’s 2023 award winning photo
Does anybody else suffer from hip pain waking them up.I’ve looked it up and it seems it’s the bursa (Fluid filled sac) around the hip joint. It comes on if I sit or stand too long in the day.. It’s driving me mad because it wakes me up at 6 am in absolutely agony.
Is it just me or does Grace Dent look like an older Vicky Pattison? #TheApprentice
I contracted SARS-CoV-2 in Jan '20, it took my 40 yr old nephew a month later & my wife was infected a month after that. We still deal with #LongCovid 3 yrs & an Omicron infection later. We can't risk another infection. There is no going back to normal for us. So don't ask us to.
Renate-new account�.. @Renate834601
86 Followers 431 Following Myalgic Encephalomyelitis since -87,severeME,Bedbound, diagnosecriteria /name matters!separate ME from ME/cfs; use ICC -G93.3 for ME❤️#Enterovirus
Gregg Mallitt 🇭�.. @fungus_54
530 Followers 2K Following Retired Emergency Service Officer with Integral Energy. Retired Deputy Rescue Officer NSW State Emergency Service Sydney Western Division.
Nyasia Kirby @nyasia60131
107 Followers 3K Following
Thomas Wayne @tomwayne1017
475 Followers 2K Following
Sir, Dame, EleanorF #.. @EleanorSews
2K Followers 4K Following Retired lecturer/therapist.(Klein, Winnicott,Orbach) culture, thoughtfulness, piano-player, linguist, textiles, activism @eleanorsews.bsky.social
ONG PEM @AsociacionPEM
1K Followers 968 Following Asociación de Personas con Encefalomielitis Miálgica (PEM) Spain #EncefalomielitisMiálgica #MyalgicEncephalomyelitis #TestimoniosPEM #pwME [email protected]
Liberty Church London @Liberty__Church
10 Followers 81 Following We're a community, not just a crowd. Join us in Shoreditch. 📍 St Hildas East Community Centre, E2 7EY ⌚ Sunday's 11am
Long Haul Hope - A Lo.. @longhaulhope
1K Followers 2K Following #LongCovid #LongHauler (sick 12/2019 - shortness of breath, severe fatigue, & brain fog ever since). Finally heard, validated and formally diagnosed 2022. #FBLC
Brain Frog @NearFights
390 Followers 907 Following #longcovid patient advocate. #curelongcovid March 15th is International Long Covid Awareness Day
Evan Vandegriff @evandegr
1K Followers 903 Following corgi dad and cto. Healthtech #AI enthusiast #LongCovid #LongVax #T1D #FBLC
McBuckers @McBuckers
4K Followers 4K Following Adult human female. Mum to three amazing girls. Ex Whitehall comms bod. Long Covid since 2020. #FBLC #FBPE #FBPPR #GTTO.
Helen M @TM2Helen
381 Followers 876 Following Long Covid since March 2020 -healthcare worker on pause #FBLC
Ruby E...w/ LC & ME �.. @RubyEngel1
1K Followers 2K Following Surviving Covid is NOT the same thing as recovering from Covid #FBLC #LongCovid #LongHaulers #CountLongCovid #MECFS
Marianne @hout_marianne
1K Followers 975 Following Dutch. Bedbound with severe ME/CFS. Trying to find my way back to life. (she/her)
Joanne Smith - Jo @_Joannesmith
790 Followers 970 Following ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs.Wildlife. Books. Bit of Politics. #pwme @joannesmith.bsky.social
michelle Lynn myrda l.. @shell980907821
490 Followers 1K Following Retired RN of 28 yrs. grateful to be alive humble had severe Long Covid, ME/CFS, MCAS survivor and warrior! not a fan of POLITICS at all! loves nature way more!
Charlotte Gill @GillGirlMum
5K Followers 4K Following Midwife 🏩 Mum from IVF🔬 Lives with Bipolar Disorder Type 1 🎭 Passionate about: ♥ Maternal mental health ♥ IVF ♥Breastfeeding. 🏳️🌈
Adrian @mradrianen
414 Followers 425 Following Revisjon. Rett skal være rett. Fasettmenneske. Jeg twitrer mine egne meninger.
Adam Lowe, AKA Beyonc.. @adambeyoncelowe
8K Followers 5K Following LGBT+ History Month Poet Laureate @SchoolsOUTUK Occasional drag queen in verse He/his (mostly) Debut Patterflash! 2023 @peepaltreepress Tweets all my own views
廖春玮Liao🇵🇸.. @liaochunwei3333
58 Followers 178 Following ME/CFS, diagnosed after almost 20 years of illness, gets worse after COVID-19,need wheelchair to travel. (her/him/them/I don’t careヽ(。_°)ノ
Khullain Paints (Ash) @KhullainPaints
2K Followers 1K Following Former commission miniature painter. POTS & ME/CFS sufferer. Disabled. Fuelled by tea. On a hiatus due to chronic illness.
Norges ME-forening @MEforeningen
952 Followers 475 Following Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://t.co/HMoKg2ochN
Irene @irene2up
770 Followers 1K Following Ufrivillig ekspert i sosial isolasjon. #hage #hund #småfugler #musikk #pwme #mecfs #postcommotio G.93.3
John Clutter @TheClutterer
2K Followers 5K Following Economist. Theologian. ME-patient. SCDS-patient. Introverted Idealist. @theclutterer.bsky.social
James Foulger @jifoulger
2K Followers 3K Following Engineer and the thing that is broken is ME @[email protected]
Phil Prydderch 🏴�.. @PJPrydderch
1K Followers 2K Following Dad of two | EVs | Born at 332 ppm CO2 | ME, FMS, POTS | @wrexham_AFC ex part-owner⚽️ | M.CIWEM | Flood Defence & Hydrometry
Céline Lesprit (Cast.. @CCCastera
2K Followers 2K Following IDEL #CovidLong #EM #POTS /porte-parole @apresJ20 #apresJ20 Soutien FB https://t.co/OOWaiSiiTg Mes tweets n’engagent que moi
Nono @psyyko
676 Followers 2K Following #covidlong #covidlongpediatrique #victmes de la #covid19 #apresj20 #actioncovidlong #stopdenicovidlong 2 millions selon Santé Publique France ‼️
Tomaso Antonacci @TomasoAntonacci
2K Followers 5K Following Borain, Sarde, Abruzzese, Luxembourgeois d'adoption, footballeux, municipaliste. Fan de G. Brassens, F. De André, A. Franquin, A. Camus, E. Metchnikoff.
♡｡.✰ 𝑺𝒕�.. @compassion_ate_
492 Followers 881 Following Sick 19yrs ✨Respect the Nuance✨#MECFS #Fibromyalgia #CKD #TBI #AFIB #Neurodivergent #Homelessness ⚽️🏄🏻♂️ 🎬🗣️✍🏼🇬🇷🇺🇸✡️ ✌🏼&💚🚫RACISM🚫
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue disorder caused/worsened by a virus. Ppl w/ ME/CFS & EDS often suffer from Craniocervical Instability & Occult Tethered Cord.
Nicki_the_bookworm @nicki_hynes
24 Followers 106 Following I'm a Christian, and love books, theatre and singing. English Literature student. New to neurodiversity. Aspiring English tutor.
Harrison Estate @EstateHarrison
145 Followers 495 Following
Justarandomuser @Justara45072675
80 Followers 433 Following
Nathalie Robin Justic.. @welcomewords
8K Followers 9K Following Writer. Photographer. Traveller. Cook. Married to my best friend: 19 yrs. #MyalgicEncephalomyelitis: 3+ decades. 80-100% bed bound: 5 1/2 yrs. Empathy is key.
Sergio Varanda @asvaranda
529 Followers 2K Following Recently more active on Twitter, mostly interested in Covid-19 mitigation and ME/CFS studies.
♈️AriesOnFire🔥 @BrwnEyedBlondie
305 Followers 2K Following Three things cannot be hidden for long:the Sun,the Moon and the truth.Pissed @ the bioweapon unleashed upon us all 💉= ☠️ #LongCovid #Unvaxxed #healthcareworker
Gill 💜 @Gill66039350
18 Followers 314 Following
😷🪷🗽🟧 Chri.. @MindFeast622
7K Followers 8K Following 🚫NO DM’s please. VOTE BLUE!!! Struggling with #MECFS #MCAS #PEM . TheResistance #DACA #BlackLivesMatter #LGBTQIA+ #ShePersisted #MeToo #FF #FBR #FBPE
Karl @karlander_
1K Followers 2K Following Ich twittere zum Thema ME/CFS. I tweet about the topic ME/CFS.
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Karen M Renton @karen_renton
1K Followers 2K Following The disabled bathroom at @NorthernViewLtd is named after me. Marcomms. Trilingual. Cat Mum. #ME #MyalgicEncephalomyelitis #Diabetes Views my own
Adriaan @speeckx
667 Followers 3K Following
Colandme🏴�.. @coldon83
1K Followers 2K Following Live by the sea. Aberdeen fan. SNP member. Freedom from WM🏴. Despise the Tories and Starmer’s Labour. ME / CFS for 10 years. Stand with Palestine
Sabine Radtke @SaraKoelnSued
532 Followers 4K Following
Buyivermectin24 @buyivermectin24
1K Followers 4K Following Welcome to the OFFICIAL account of the Medicine seller. @buyivermectin24 Everyboday show your love and check my Website, Link in the discretion. Thank you 😊
Etta Loveday @EttaLovedayME
355 Followers 173 Following She/Her, Rising awareness for people living with severe/very severe ME! #ME #SevereME
@invest_in_me (Invest.. @Invest_in_ME
8K Followers 733 Following An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
Holly Willoughby @hollywills
7.1M Followers 279 Following 📺 Broadcaster 🌙 Founder of Wyldemoon 💁🏼♀️Brand ambassador for Marks & Spencer and Garnier. 📚Author of ‘Reflections’
KarenG @tenacious_mumma
1K Followers 833 Following Mum/carer constantly fighting 4 health care 4 my beautiful daughter @spooniesophia bedbound with #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
Rhoda Watkins 👣 @RhodaWatkins10
3K Followers 2K Following Tracker, Instructor, Search & Rescue specialist. Managed by: 🇬🇧Jane Compton [email protected] 🇺🇸Seamus Lyte [email protected]
Kate Spitzmiller 🕊.. @KateSpitzmiller
6K Followers 6K Following #LongCovid since February 2020. M.Ed., BA: Human Geography, AS: Veterinary Science. “Autoritätsdusel is the greatest enemy of truth.” —Albert Einstein.
Allie @allietrann
3K Followers 1K Following
emily fraser 🌿🐌.. @emilyesfraser
5K Followers 4K Following Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Cyrus | Mastodon in b.. @CyruxiME
2K Followers 601 Following Energetically compromised by severe #MECFS. All systems operating at minimum capacity & overloaded. he/him. On the Fediverse: @[email protected]
Paula Knight @Paula_JKnight
6K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Renuka Dhinakaran @renudhinakaran
6K Followers 602 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
Paul Mc Daid @paulthedaid
1K Followers 1K Following ME/CFS. Determined father. Physics graduate, science nerd, LFC fan.
🌱 @GlimmerInAbsnce
1K Followers 111 Following #MECFS since 2010 - very severe since 2021 (Antibiotics). CG posts my drafts. really sorry if I do not respond - I just can’t most of the time. no Covid, no Vax
Karen Menis @karen_menis
87 Followers 13 Following Retired educator passionate about core strength underpinning health of individuals & organisations; lifelong learner, Pilates instructor and leadership coach
Revelation Church @revchurchlondon
735 Followers 538 Following A vibrant community of people with a single vision - to make the real Jesus known in North London and beyond. Sundays: Maria Fidelis School (NW1 1LY) @ 10.45am.
Nausi Spoons 👩🏽.. @NausiyanSpoons
76 Followers 1K Following I am the Chronically ill Nausiyan, just trying to survive in the world with #chronicillness She/Her/They/Them Chronic Illness profile of @Nausiyan
Nina Teicholz, PhD @bigfatsurprise
160K Followers 2K Following Science journalist, Ph.D. in nutrition, author of The Big Fat Surprise, advocate for nutrition policy based on rigorous science, mom.
Dr Shawn Baker 🥩 @SBakerMD
282K Followers 633 Following Multi sport world record setting athlete, physician, author of “The Carnivore Diet” -Founder REVERO
Ivor Cummins @FatEmperor
239K Followers 11K Following Technical Manager / Team Leader, Biochemical Engineer, Complex Problem Solving Specialist, Technologist, WW2 and Psychology buff. My Pronouns: We/The/People
Nick Norwitz PhD @nicknorwitz
59K Followers 296 Following PhD @UniofOxford, MD student @Harvard. Metabolic health enthusiast. #LMHR #LEM researcher. Lover of EVOO. Opinions are my own, but data are data
Elie Jarrouge, MD @ElieJarrougeMD
116K Followers 374 Following Doctor | Metabolic Health Coach | Reverse Obesity and Type 2 Diabetes | #LowCarb #LCHF #LCHP #carnivore |Posts ≠ medical advice
Robert Lufkin MD @robertlufkinmd
108K Followers 2K Following Medical school professor (UCLA & USC) helping people prevent/reverse chronic disease, cultivate consciousness, and live life to the fullest.
Dr Zoe Harcombe, PhD @zoeharcombe
200K Followers 665 Following I was interested in diet & health, and sometimes Wales & rugby. I still am, but I’m more interested in WTF is happening to the world!
P. D. Mangan Health &.. @Mangan150
257K Followers 807 Following Microbiologist, age 69. Helped 1200+ @ManganCoaching clients get lean, fit, & 2X energy in 60 mins/week without keto, cardio, or calorie-counting. Learn more:
Heart Surgeon Dr. Phi.. @ifixhearts
76K Followers 493 Following Want to avoid a heart attack? Start here: https://t.co/WKqGsHNqEl
DoctorTro @DoctorTro
122K Followers 386 Following Board-Certified Physician | Nationwide Practice |Mission: end Food Addiction, Obesity & Diabetes |💼Director @theSMHP |🎥Host @LCMDPodcast |Married @rosettesmix
Dr David Unwin @lowcarbGP
104K Followers 489 Following All diets and drugs have risks:Do we weigh up the pros and cons of drugs & lifestyle choices properly BEFORE making choices?Starch is concentrated sugar
OrlandoFamilyChurch @orlfamilychurch
16 Followers 26 Following Orlando Family Church - Never Walk Alone
Suzan Jackson @livewithmecfs
4K Followers 4K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Susan - M.E/Fibromyal.. @mefibromyalgia1
2K Followers 5K Following ME/FM patient since 2006, I hope some info helpful to those unaware of them you can also gain an insight. Advocate & sufferer invisible illnesses/chronic pain
Kirsten Nakken @Kirsrana
728 Followers 1K Following Mum, grandma. Love(d) running, hiking, skiing, tapdancing. One of the #millionsmissing/#ME for 18 years. 90% bedridden. #handquilting# #Audiobooks#
Claire C @claire_00017
731 Followers 679 Following Carer of amazing young person with ME/CFS 💙 Family, friends, nature, animal lover & optimist.
geoffrey keith brown @Millerswharf1
259 Followers 418 Following I have had M.E since 1988 sudden onset initially very serious for 6 months life-threatening according to Drs , improved for a while now back to severe
Sarah Richardson 🌻 @nosdrahcirharas
1K Followers 2K Following Raising awareness about the need for more medical research and treatment change for people with ME/CFS/PVFS/LC and other Chronic Life-stealing Illnesses
Margaret Laverick @margaretlav
755 Followers 819 Following Retired and supporting Invest in ME Research. Caring for my daughter diagnosed with ME 1998, now severe and bed bound. Biomedical research needed NOW.
ME Advocates Ireland @MEAdvocatesIre
991 Followers 979 Following Advocating for People with Myalgic Encephalomyelitis (M.E.) in Ireland [email protected]
ME Group Australia (R.. @MEGroupAust
468 Followers 629 Following ME Group Australia is a registered Australian charity to advance health for Myalgic Encephalomyelitis (ME). Opinion is my own. “Like & RT” are not endorsement.
McBuckers @McBuckers
4K Followers 4K Following Adult human female. Mum to three amazing girls. Ex Whitehall comms bod. Long Covid since 2020. #FBLC #FBPE #FBPPR #GTTO.
Ruby E...w/ LC & ME �.. @RubyEngel1
1K Followers 2K Following Surviving Covid is NOT the same thing as recovering from Covid #FBLC #LongCovid #LongHaulers #CountLongCovid #MECFS
ConsumedByCovid @ConsumedCovid
936 Followers 1K Following COVID long hauler struggling for past 42 months. Previously fit, healthy, active healthcare professional and mum.
LivaLavida Long-Covid @LivaLavidaLCov
174 Followers 132 Following Ireland ☘️❤️ - Education 👨🏻🏫 Year 3 living the crazy long covid life.🤯🥴 🤷🏻♂️Research/Investigate/Treat 🤷🏻♂️
Jennifer Chang @Jennife36412377
262 Followers 1K Following Former lawyer living with #longCovid since April 2020. 😡 w/the gaslighting & lack of treatment options for #MECFS & #PASC. ❤️ Mom to 4 furbabies 🐈🐈⬛🐶🐈 ❤️
Horizontal Views @horizontalviews
274 Followers 210 Following Tweets from the sick bed, #ME, Tweets in Eng & Swe @[email protected] @remissionbiome n=50 participant
Pez @ra_pez
173 Followers 652 Following #LongCovid #CovidPersistent #CovidPersistente #LongCovidAwareness #LongCovidAwarenessDay #NotRecovered
Helen M @TM2Helen
381 Followers 876 Following Long Covid since March 2020 -healthcare worker on pause #FBLCSo many! I'm sorry to be the bearer of more sad news this morning. Condolences to friends and family. 🕯️ #MyalgicEncephalomyelitis #MECFS
Update about Millie: Petition change.org/p/save-millie-… Fundraiser justgiving.com/crowdfunding/b… #BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie #DontLetMEDie
So I did it…Thinking of all you #pwME totally helped get me over the finish line. Thrilled to have more than doubled my fundraising target for @MEResearchUK and raised lots of awareness too. Thank you for all your support which has meant so much to me.
Matt Nisbet A GP running a marathon to raise money for @MEResearchUK 💙 #MyalgicEncephalomyelitis
So I did it…Thinking of all you #pwME totally helped get me over the finish line. Thrilled to have more than doubled my fundraising target for @MEResearchUK and raised lots of awareness too. Thank you for all your support which has meant so much to me.
How are we still having this argument thirty years on? @RobbieRinder
I'm a GP – the way chronic fatigue patients are treated is unforgivable - inews apple.news/ABx3gmi2_S_C2Y…
"Urgent call from Christoph and his family: we are looking for well-done projects, websites, news articles, documentaries, and photographs that realistically depict the dark realities of people living with #MECFS. Please post all relevant data in the comments. Thank you! ❤️🙏"
This week marks 8 weeks since Millie was admitted to hospital. Although things have started to improve a bit for Millie let’s not forget what’s happened over the last 8 weeks. #MilliesevereME #SevereME #pwME #saveMillie Part 1:
"The gut virome in ME/CFS" @DrMaureenHanson teams up with @Cornell colleagues for a groundbreaking study on the gut virome in ME/CFS. This collaboration could unlock new insights into chronic viral infections, aiding in the battle against ME/CFS. weandmecfs.org/research/the-g…
There’s a segment of the population that INSIST previously fit, healthy people like me ( #MECFS since 2017) collectively decided to lose well paying jobs we loved, independence, freedom, passions & joys because we suddenly became lazy and faking a disease #LongCovidAwarenessDay
Latest update about Millie’s situation at the Royal Lancaster Infirmary. #wME #MECFS #MyalgicE #SevereME #SevereME #DontletMEDie #MillionsMissing #MedicalScandal
Please sign! Save Millie's life - Royal Lancaster Infirmary must STOP causing Millie harm - Sign the Petition! chng.it/Y9MXSR8Q via @Change
“These findings, FOR THE FIRST TIME, suggest a link between specific abnormalities in the brain and ME.” From NIH press release. Full out lie, a farce. Brain abnormalities in ME have been published for decades. Predictable NIH blather. Who in science will call them out on this?
Today= 4 years=battling LongCovid 6 months=in current decline from my betterish baseline 1,461 days=of symptoms 0=FDA approved treatments 0=Cure #LongCovid #LongCovidAwareness
@JanetDafoe I’m afraid that this is the tragic end result of a massively hierarchical, arrogant and often unscientific profession. In the UK it is best to avoid being diagnosed with ME, as it’s treated as a psychological illness.
Our thoughts and prayers are with Gabriel's family. 💙 Let's share this sad news in the hope of raising awareness about the tragic realities faced by many #MECFS patients. 🙏🏼
Another ME/CFS patient has taken his life. Please repost this to share so more people can see what this illness does #LongCovid #MECFS
My father, baker Gerhard Ströck, told me that yesterday at Leban Inn in Kittsee (his birthplace), 84 year-old master baker Johann Potz approached him & handed over an envelope saying 'for your boys', generously contributing to #MECFS research & @weandmecfs. We are deeply moved.
@peterdawe8 @MindFeast622 Yes, I so agree. She's never understood the severity or seriousness of the disease (and never interested in learning). I'm realizing this is not only hurting me emotionally but making me worse physically, too.
@livewithmecfs @MindFeast622 In my experience family and friends who are not supportive basically so not believe the extent of the illness/disability. And not being believed does more damage in my mind than the lack of support
I will be completely alone on all Christmas days as well as on New Year's Eve. Someone will just come for lunch, feed me and prepare everything else. I can't even tell them how I feel about this. Because they already hate me for existing and having to care for me.#MECFS
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