Jomo Martin N., MSHCA/MHA/BS @jomo_unscripted
Husband, father to JJ & EJ. Loves God, people & life. ALS advocate (pALS) & healthcare activist. Trained in healthcare admin, sleep medicine & higher education. Maryland Joined March 2009-
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As a person with a terminal disease, I applaud @US_FDA for exercising regulatory flexibility to give patients facing a terminal disease the chance to choose with their doctor whether to try a therapy that is safe and may help them. And I hope it will happen more often.
🚨COUNTDOWN TO #LG4DAY🚨 We are HOF (1966), 2x MVP, 18x All-Star Ted Williams days away from #LouGehrigDay!!! Who's your favorite 9? Attn: @RedSox, @MLB, @GordonEdes, @RedSoxFund, @BostonStrong_34, @BGlobeSports, @PeteAbe, @LeighMontville
The investigator at the Healey & AMG Center for ALS at Massachusetts General Hospital spoke to the CENTAUR open-label extension and AMX0035’s development. neurologylive.com/view/sabrina-p…
Followers....want to take 2 minutes and help ALS patients? Click the link below 👇and sign to help ALS patients gain access to #AMX0035 from the @US_FDA @iamalsorg @alsassociation #EndALS ALS Association Advocacy Action Center als.quorum.us/campaign/28538…
Exciting positive results @US_FDA approve this! Amylyx Pharmaceuticals Announces New England Journal of Medicine Publication of Pivotal AMX0035 Data Demonstrating Statistically Significant Benefit in People with ALS | Business Wire businesswire.com/news/home/2020…
Join us tomorrow as our co-founders and co-CEOs, Joshua Cohen and Justin Klee, speak at @ALSFlorida’s #ALS Hope and Help Symposium! Register here to hear a little about Amylyx and from other great speakers: bit.ly/3hCcydu
We've reached a big regulatory milestone: Prosetin received Orphan Drug Designation for the treatment of ALS from the FDA. We break down what orphan status means, why it’s important, & what it means for Prosetin’s potential clinical development. projectals.org/prosetin-orpha…
“- In Responder analysis, 80% of rapid progressor patients treated with AstroRx® were identified as responders.” #EndALS Kadimastem Reports Positive Interim Results of Cohort B of its AstroRx® Phase 1/2a Clinical Trial in ALS prnewswire.com/news-releases/…
The fact that patients—especially terminally ill patients—have to be patient advocates is insane. We will all be patients one day so why isn’t our default building patient-centric systems with baseline principles of providing the best care to all and speeding cures for all.
This life, it’s all about family. In 2018, I met with 100s to learn everything about ALS. In 2019, I flew 120,000 miles to advocate for treatments and cures. In 2020, we are building every tool possible to speed access to therapies. All for one reason: my family and yours. ❤️
#NIH plans to invest $25M over 5 years in a new program to spur innovative research on #ALS, sometimes known as Lou Gehrig’s disease. Accelerating Leading-edge Science in ALS (ALS²) will be part of @NIH_CommonFund’s High Risk, High Reward program #NIH_ALS2 nih.gov/news-events/ne…
As your constituent & someone impacted by #ALS, I urge @ChrisVanHollen to cosponsor the #PromisingPathwayAct to create a faster pathway for new #ALS therapies. Contact @SenMikeBraun now. #ALSAdvocacy
As your constituent & someone impacted by #ALS, I urge @SenatorCardin to cosponsor the #PromisingPathwayAct to create a faster pathway for new #ALS therapies. Contact @SenMikeBraun now. #ALSAdvocacy
This 👇. All I can say is thank you—thank you @RepMikeQuigley for your leadership in this fight, for your humanity and for giving so many hope.
This 👇. All I can say is thank you—thank you @RepMikeQuigley for your leadership in this fight, for your humanity and for giving so many hope.
Everyone who has been touched by ALS in anyway needs to lean in hard and help get their members of Congress to co-sponsor these bills. More to come, but get ready to email, tweet & call their offices.
Everyone who has been touched by ALS in anyway needs to lean in hard and help get their members of Congress to co-sponsor these bills. More to come, but get ready to email, tweet & call their offices.
Dying #ALS in DC this Wednesday 5/20/20 for a Body Bag Protest The FDA has moved lightening fast to expedite COVID19 treatments. In contrast, a lifesaving treatment for 100% fatal #ALS is stuck >10 years in the #FDA. Media, please contact: @als_now or [email protected]
We've been saying! After 4 YEARS & 6 NurOwns: ALS. Navy "prowler" driver Matt Bellina. TIME TO ACT @US_FDA @FDACBER @SecAzar @MarkMeadows @HHSGov @realDonaldTrump @VP @seanhannity @KellyannePolls @WhiteHouse @foxandfriends MAKE ALS HISTORY NOW! CREATE A NEW PATHWAY NOW! 😷 NME
Don't forget to mark your calendars and tune in tomorrow at 2 pm ET as we go live on Instagram! Follow us here to get notified when we go live: instagram.com/iamalsorg/
SupplyChainTrade🇺�... @Erbaupwun78749
35 Followers 2K Following 15-30% Monthly | 2 High-Conviction Stocks.Short-Term Gains: 15-20% in Days/Weeks.DM "JOIN" for WhatsApp Alerts. Live Trade Signals • Market Analysis
HermosaChilde @km7U8648fCiH1f
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Lisa @Lisa41478784118
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Emily @NineauezI_nFo0
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Smoudo @Smoudo168235
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OdeliaVan @dm50j1qK65XJI
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Susoreet @SusoreetwavJ6G
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Teyteseigh @teyteseigh44435
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Roberta @seysheslou74789
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Girl Travelin Alone @CathyStandish
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Nicole Cimbura @nicolecimbura
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Farmstrong @farmstronginfo
1K Followers 4K Following Fan of good UX & #techcomm. Together we can save my husband & hundreds of thousands who TODAY battle #ALS. #EsriMaps #DyingWaiting #BLM #LGBTQIA #mirfanda
D'Andrea Jones @wahhooscwgrl
586 Followers 5K Following I lost an Amazing Husband to the horrific disease ALS! Raise awareness to Lou Gehrig’s disease! #ALSSucks #SoulMates #ALSFindACure
No More Excuses ALS W... @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Ussen Mussa @UssenMussa1
28 Followers 262 Following
Lorri Cavaliere @LorriCav
1K Followers 4K Following A mom in CT, fighting and advocating every day for the life of my 34-year old daughter, Alexandra, diagnosed with sporadic bulbar-onset ALS in July of 2020.
biggMoe_effALS @biggMoe_effALS
519 Followers 471 Following NOT TODAY ALS.. NOT TODAY. brother diagnosed with ALS at 27. ADVOCATING&FIGHTING for all pALs
Hayek Medical @HayekMedical
675 Followers 1K Following Pioneering #Respiratory Solutions, Hayek Medical is the world's home of Biphasic Cuirass Ventilation (BCV), changing the way you think about #Pulmonary Care.
Dr. J @enter_sandwoman
139 Followers 375 Following Former military, sleep medicine & family medicine physician. Fixing #sleep for the whole family. Opinions my own. Follows/RTs ≠ endorsement
EverythingALS @everything_als
2K Followers 806 Following We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.
Don Altier @DonAltier
391 Followers 696 Following  I live to give others hope... I was diagnosed with ALS in 1992
🅹🅴🆂🆂🅸�... @Jessica_53296
17 Followers 326 Following Im a sexy girl whose looking to meet fun and curious people.Follow me and receive my hot photos in Direct 😜👗👗
Julie Dally @JDallySF
250 Followers 461 Following Wife, Mother & Amazing Woman! Living with ALS since Sept. 2019
ALS Uncensored 🏴�... @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Igor Goncharov @IgorGon55100824
142 Followers 323 Following IT specialist ALS patient. I am fighting for #NurOwn accelerated approval Please read my tweets by hash tags #AcceleratedApproval
cALS 💜 @cadawno
578 Followers 933 Following ALS advocate, caregiver to spouse with ALS, clinical pharmacist. ALS is not an incurable disease, it's an underfunded one. 🇨🇦🇺🇸
ALS TX DAD @AlsDads
2K Followers 840 Following
𝕯𝖟𝖎𝖐𝖔 @Achikulire
2K Followers 4K Following 🇲🇼🇲🇼🇲🇼🇲🇼 | Accountant | Writer | Sports enthusiast | Fun loving | @ManUtd ⚽ | Reggae 🎼🎷🎙️🎹🎸🥁🇪🇹🇬🇳🇯🇲
Chim Kamwana @ckamwana
6 Followers 15 Following
Harold Chiudza @hadzibomb
151 Followers 2K Following A husband, a father, a follower of Jesus Christ, an administrator, and a good friend to many.
alsFIGHTeurope @alsfighteurope
351 Followers 1K Following We're not going down without a fight! Join https://t.co/5w78nBPUsN?amp=1
President Biden Archi... @POTUS46Archive
36.4M Followers 5 Following This is an archive of a Biden administration account, maintained by the National Archives and Records Administration.
Pat Quinn @PQuinnfortheWin
3K Followers 517 Following ALS Patient/Advocate, Co-Founder of the #ALSIceBucketChallenge. Diagnosed at 30 yrs old. No treatment or cure is unacceptable. Everyday I fight! #Quinn4theWin
axeALSFoundation @stevens_nation
3K Followers 692 Following On a mission to #axeALS Instagram: @teamstevensnation Facebook Group: Team Stevens Nation
Cat Mitil @cat_mitil
65 Followers 43 Following Wife . Mom . Sister . Teacher . Christian . ALS Advocate
LAURA HALE @LAURAHA50559163
123 Followers 56 Following ALS warrior, mother and grandmother fighting for my life
tricia pierce @triciap0617
113 Followers 104 Following ALS Advocate fighting for a treatment and cure for my husband and all ALS warriors!
Andrea Kessler @AndreaK33304073
200 Followers 92 Following Nurse, mama and daughter- fighting for my mom’s life after being diagnosed with ALS.
HHS.gov @HHSGov
1.6M Followers 32 Following Official account of U.S. Department of Health & Human Services | Follow @SecKennedy | Privacy policy: https://t.co/2fvEGkrCJN.
Julie Dally @JDallySF
250 Followers 461 Following Wife, Mother & Amazing Woman! Living with ALS since Sept. 2019
Bob Forster @BF31789
114 Followers 30 Following diagnosed with ALS 12/14 APPROVE NUROWN NOW #approvenurown
CDC @CDCgov
5.5M Followers 246 Following CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: https://t.co/9LbZmE3Wzg
Johns Hopkins Center ... @BSPH_CHS
687K Followers 1K Following The Johns Hopkins Center for Health Security works to protect people’s health from the consequences of epidemics and disasters. RTs not endorsement.
Trevor Noah Foundatio... @TrevorNoahFdn
52K Followers 374 Following Education is the seed from which everything grows. 📚 🌱🌳
Deborah Midgley @DeborahMidgley1
214 Followers 185 Following
Bryan Wayne @BryanWayneMusic
668 Followers 1K Following Hit songwriter, ALS battler- made a record before ALS robs me of my voice. Get it at https://t.co/X8YIaWvsPY @LG4DAY believer
Evan Campa @EvanCampa
3K Followers 1K Following Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
Hande Ozdinler @DrOzdinler
26K Followers 695 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Elizabeth McCormick @emmccormick2005
450 Followers 584 Following Hope is a verb. Hope is the only alternative in the face of uncertainty. Today more than ever. Mobilize. Fight. Make right real.
ALS Warriors - Glynis @ALS_Warriors
526 Followers 225 Following Widow due to ALS. Fighter because of ALS. Three words for ALS, WE WILL WIN! All thoughts are my own. #EndALS
Dr. Anthony Fauci Fan... @FauciFan
64K Followers 44 Following OG Twitter Fan Club of NIAID's Anthony S. Fauci, MD (Not associated with @NIH or Dr. Fauci. This Twitter is purely for entertainment & stanning purposes.)
ALS Action Canada @ALSAction
1K Followers 725 Following We're Canada's first and only ALS patient-led nonprofit organization fighting to #EndALS forever. Join us! Charitable organization BN: 791367204 RR 0001
Jan Mattingly @mattwoman
494 Followers 476 Following ✡️ Canadian, ALS hater, will like or RT any authentic ALS tweet. I know great loss: My loving son passed from ALS June 2022.
EverythingALS @everything_als
2K Followers 806 Following We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.
ALS Uncensored 🏴�... @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
LeBron James @KingJames
52.6M Followers 180 Following EST. AKRON - ST.V/M Class of '03 https://t.co/TrZZrgA5Yt #IPROMISE
NBC Entertainment @nbc
2.0M Followers 686 Following 𝗡othing 𝗕ut 𝗖ontent. Watch your new favorite shows on NBC and streaming on @peacock.
The Tonight Show @FallonTonight
4.3M Followers 19K Following The official home of The Tonight Show Starring @JimmyFallon! Weeknights at 11:35/10:35c on @NBC and next day on @Peacock. #FallonTonight
Jimmy Kimmel Live @JimmyKimmelLive
2.0M Followers 3K Following The official Twitter for Jimmy Kimmel Live with @JimmyKimmel on ABC! We have fun. #Kimmel
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John Kasich @JohnKasich
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Igor Goncharov @IgorGon55100824
142 Followers 323 Following IT specialist ALS patient. I am fighting for #NurOwn accelerated approval Please read my tweets by hash tags #AcceleratedApproval
cALS 💜 @cadawno
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Chuck H @ChuckHabz
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