LisbethB @lis8e4h

Chronic illness warrior. Charity manager. Sewing and making when energy allows. lisbethmakes.co.uk Joined April 2016

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LisbethB @lis8e4h

2 years ago

Gutted to miss @bellesglasgow in Birmingham tonight. Been SO looking forward to it, alas #MECFS messes up best made plans again.

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LisbethB @lis8e4h

3 years ago

Walking down the aisle to Songbird, to marry my love. #FleetwoodMac

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Guy's Gift @GuysGiftCharity

3 years ago

Today is #GivingTuesday and we're sharing some ideas about how you might 'give' to @GuysGiftCharity We'd love to hear any other ideas from you too.

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LisbethB @lis8e4h

3 years ago

Sigur Ros were ABSOLUTELY worth navigating tube strike chaos last night.

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Along with the rest of the country, we’re saddened upon hearing the news of the death of HRH Queen Elizabeth II. We have shared a blog post giving advice about talking with children about this. guysgift.co.uk/blog/the-death…

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LisbethB @lis8e4h

3 years ago

"I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before" | Keith Kahn-Harris theguardian.com/commentisfree/…

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LisbethB @lis8e4h

3 years ago

Another day, another blood test drama. No luck this morning and rebooked to try again at lunch time.

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LisbethB @lis8e4h

3 years ago

normal illness + chronic illness = 'bounce back time' × 100.

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Katy Leeson @KatyLeeson

5 years ago

We NEED to stop glamourising overworking. Please. The absence of sleep, good diet, exercise, relaxation, and time with friends and family isn't something to be applauded. Too many people wear their burnout as a badge of honour. And it needs to change.

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LisbethB @lis8e4h

4 years ago

I have been lucid dreaming every night for the past 3 weeks. It's leaving me even less rested from sleep than before. Any tips #pwME?

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Guy's Gift @GuysGiftCharity

4 years ago

Thinking about becoming a volunteer? We are currently recruiting volunteers to join our team. Watch our short video to learn more about volunteering with Guy's Gift, then find our application form here: guysgift.co.uk/work-with-us

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LisbethB @lis8e4h

4 years ago

Two missed @FirstAidKitBand gigs due to #MECFS in 2018 and 2019. I hope third times the charm and I'm well enough to see them in Bristol this summer. 🤞🏻

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Susie Dent @susie_dent

4 years ago

Word of the morning is ‘forwallowed’ (15th century): wearied from tossing and turning night after night.

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Guy's Gift @GuysGiftCharity

4 years ago

Want to find out more about Guy's Gift and what to expect when you approach us for support? Check out the full version of our explanatory video: youtu.be/5CdZ1k9JJOc

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Susie Dent @susie_dent

4 years ago

Word of the day is 'roundaboutation' (19th century): bloviating or evasive talk that focuses on everything but the subject in hand.

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Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke

4 years ago

ME/CFS is not rare or mysterious. ME/CFS patients are neglected and ME/CFS research is underfunded.

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Sally Clare R 🌻 @SallyClareR

4 years ago

I think one of the misconceptions about #MECFS is that resting makes you feel well. It doesn’t. No matter how long I rested, the debilitating fatigue, the flu-like symptoms etc would still be there. I still wouldn’t be able to go out. What resting does, is stop me feeling worse

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Laura Elliott @TinyWriterLaura

4 years ago

masks help protect people and they’re really not difficult to wear while you’re in public places. please don’t stop wearing them just because boris says it’s fine. it’s not fine, and you know that really, and so do all of the disabled people being put at risk to save boris’ skin.