B Rob @AlpineOpen
I read the science. I’ve had ME/CFS since 1989. From bad health to good. Only to be undone by a flu shot in 2016, severely & permanently worsening the disease. New Zealand Joined December 2012-
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@njfatigue met with Bill Cassidy’s office weeks ago to discuss the urgent need to fund and prioritize #MECFS research. It’s clear that our engagement is breaking through! This is #NotJustFatigue
David Tuller has battled for us ME/CFS patients for many years. But he can only do it with crowd funding. We are lucky UC Berkeley back his work. We need David to keep fighting this fight. Donation link in the feed
David Tuller has battled for us ME/CFS patients for many years. But he can only do it with crowd funding. We are lucky UC Berkeley back his work. We need David to keep fighting this fight. Donation link in the feed
A letter from @Nina_Steinkopf prompted New Zealand GP group to disavow apparent Lightning Process endorsement. Also, BBC takes a look at LP and interviews @oonagh_cousins: virology.ws/2025/04/16/tri…
Trump just pardoned crypto firm BitMex for violating money laundering laws — making him potentially the first president in American history to pardon a corporation. It's truly a new Golden Age for corporate crime.
Last year @TheLancet published an intervention trial for "persistent physical symptoms." Clinically insignificant findings were promoted as a result showing effectiveness. @joan_crawford1 and I responded, and they "rebutted": virology.ws/2025/04/04/tri…
The real story here is the cruel reality of ME/CFS. Severe long covįd has similar effects. They are absolute torture. The worst of it is the denial sufferers face, the lack of medical expertise or treatments, and likely surge in cases as covįd continues. 1news.co.nz/2025/03/12/i-c…
#LongCovid #MECFS don’t push through as you never want to end up this severe!!!
#LongCovid #MECFS don’t push through as you never want to end up this severe!!!
Worth being aware of this ongoing battle
Unfortunately the pharmaceutical companies can’t see that if one of their drugs helped improve or even cure long Covid or ME/CFS then they would become many times richer than they are already. But for some reason they have the heads in the sand. cen.acs.org/pharmaceutical…
Tonight, I am kicking off my coast-to-coast Fighting Oligarchy tour in Nebraska. I hope you’ll join us.
And 35 years later we're still being insulted and bullied.
And 35 years later we're still being insulted and bullied.
The biggest political divide in America isn't "left" versus "right." It's the American people versus the oligarchy.
85% of #longCovid patients improved on this treatment (in the trial). Hopefully it can be repeated by other researchers and we see research discover why there’s improvement #pwME #MECFS sleepreviewmag.com/sleep-treatmen…
Great this is getting exposed on a much larger scale. The hard work of many including the epic work of UC Berkeley’s David Tuller who provided Monbiot with much the information in his recent articles. That work is starting to pay off!! #MECFS #LongCovid
Great this is getting exposed on a much larger scale. The hard work of many including the epic work of UC Berkeley’s David Tuller who provided Monbiot with much the information in his recent articles. That work is starting to pay off!! #MECFS #LongCovid
Always worth reading David Tuller’s blog. #LongCovid #MECFS
Always worth reading David Tuller’s blog. #LongCovid #MECFS
Why the Left lost. It became so un-fun. Pple got sick of being told what to think, books were edited, opinions were cancelled, except for the Right jocks & their kin. &mobs flocked to them And then the Right was able to pretend the Left was the Far Left rnz.co.nz/national/progr…
If the ‘Eye in the Sky’ was instead replaced with ‘Intelligent Extraterrestrial Space Aliens’, this article would go viral…
If the ‘Eye in the Sky’ was instead replaced with ‘Intelligent Extraterrestrial Space Aliens’, this article would go viral…
Microscopic inflammatory processes, possibly involving abnormal microglial activation, fibrinogen deposition, microscopic inflammation & mitochondrial damage = ‘Smouldering MS’ Maybe Prof Ron Davis is right about a ME/CFS subgroup overlapping MS #MECFS medscape.com/viewarticle/sm…
Abigail Morris @Angelamorris781
25 Followers 411 Following
Misbrown @Misbrown4
250 Followers 179 Following The hardships we have experienced will always bloom into romantic roses, shining brighter than the stars.
Petar @tinkeringpete
11 Followers 552 Following
Ryan @ryan_czm
89 Followers 608 Following Power Quant @ InCommodities. Following commods/quant/stem people. Curating a TL of wisdom & alpha. 27. 🇸🇬
The Ginger Ninja @ginger_ninja72
886 Followers 6K Following Stroppy short lefty ginger bird, blessed with various chronic illnesses but still with a sense of humour. Huge Charlatans fan! Also love dogs, goats, donkeys...
reeves musk @reeves__musk55
183 Followers 4K Following Tesla = 🚘 Fundador-Cofundador da The Boring Company - Neuralink OpenAl
Evankate @BlacqRoskid
2K Followers 7K Following Yo💵🌺💵you’re blessed today I choose you as a giveaway winner so text me “Payme”on telegram me https://t.co/GQUpTcT2nz
Juul @tiredjuul
515 Followers 601 Following bedridden by Me/CFS POTS longcovid the whole schpiel v severe 23 years old
Lyda Towne @LydaTowne5219
9 Followers 387 Following
Mekhi Brekke @BrekkeMekh86562
0 Followers 37 Following Join us for a free trial of 2 selected stock targets, only Europe friends with stock accounts are welcome
McWrore @MWrore64959
29 Followers 3K Following
bademba @bademba374788
80 Followers 7K Following
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Sousmeighsl @Sousmeighsl885
49 Followers 5K Following
Rosie @Rosie7147434381
50 Followers 1K Following Don’t force people to stay, be yourself the right people will always be willing to stay. Marketing at self owned business
Julie Sullivan @CureLongCovid
5K Followers 3K Following Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
Bestill @Bestill71072670
96 Followers 1K Following Mostly about improving your mitochondrial health. Sourced from experts. For the curious minded. Not medical advice.
AloneLonghaulLady @LadyLonghaul
1K Followers 7K Following severe ME • needs more 🥄 • LC 2020 • prefers clean air • some adult language • #ADHD #HSD #pwME #FBLC #MCAS #CareShareGive https://t.co/w5DtMNfLbn
NickDets @DetsNick
974 Followers 2K Following Video Editor • Producer • Writer • #pwME • #MECFS https://t.co/Hgixl0PlaM
Illustrator Interrupt... @FranceyME
3K Followers 2K Following https://t.co/jrET531Men illustrator, writer, photographer. Career interrupted indefinitely by myalgic encephalomyelitis #MECFS @franceyme.bsky.social
Oscar Teran @oterandi
2K Followers 2K Following Tech loving entrepreneur, engineer, MBA, consultant & occasional investor. Driven by positive impact innovation. Views my own. #LongCovidAdvocacy #Research
NickyProctor @NickyProctor
2K Followers 5K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Lindsey 🇨🇦🩵 @linds_longcovid
3K Followers 2K Following #LongCovid #MECFS #pwME #POTS #chronicillness since 01/22 💔 36 • Cat mom • Dancer • Empath • Music Lover • Former Web/UX Designer 💻
Taudneau @TaudneauC8ep
24 Followers 364 Following
Vijay Iyer PhD @vijayiyer312
4K Followers 2K Following Patient advocating science for #mecfs & #dysautonomia (incl via #longcovid & #postvac).👷🏾♂️Support #neuroscience users & use cases of @MATLAB. Tweets my own.
LilasT @Lilas_T_
1K Followers 2K Following
Somerset🎨🏉🎸�... @LalalaSomerset
295 Followers 371 Following A Somerset CCC nut in New Jersey. Bath RFC. Grumpy old git All views are strictly my own, or somebody else's PWME 30 Years. 🐈😽🐟
Hoitoharhautettu // M... @hoitoharhautus
513 Followers 1K Following Tarinoita hoitoharhautuksista. Kuvat AI:n luomia. Stories on medical gaslighting. Mainly in Finnish. Pics AI generated.
Tea And Oranges 💙 @lucacoleman999
2K Followers 4K Following My principles are visible in my tweets. Interests: politics, health, education, SEND, equalities, Covid, psychology, nature, football #FBPE #FBLC
Crafty Miss @CraftyMissB
6K Followers 3K Following I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled insta: thecraftymissb
Sammie McFarland - Se... @SammieFMc
3K Followers 3K Following Founder @LongCovidKids, & wellbeing coach on pause. “Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.”
Sonic Death Monkey @Parkesy1701
1K Followers 3K Following Myalgic Encephalomyelitis (ME) sufferer. Ill since Nov-19. On long term sick trying to keep it together for my family. Just about managing. #ME #POTS #MCAS #LC
🇳🇱🌻kirbs @kirstymecfslife
1K Followers 2K Following one day at a time 🦋 | ME since 2009| drastically deteriorated after vaccination and a covid infection | not anti-vax
Long Covid Advocacy I... @LCAIreland
3K Followers 4K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
👻ghost of submersi... @MECFScomrade
2K Followers 1K Following she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️⚧️
Michael Alexander @Michaeltikus
1K Followers 3K Following I like animals 🐙 Covid? Not so much. Views my own. @Long_Covid @RenegadeRes @WeCrunchME @OneSpoonProject
Steve Fifield @stevef... @SteveFifield3
692 Followers 1K Following Informed decisions from verifiable truth & facts please. Avoid unsubstantiated opinions / beliefs. #Equality #justbe #inclusion #LGBT+ ally. ME/CFS 😢 #pwme
OomaVerse at bluesky @Troevs
408 Followers 552 Following pwME. Disabled. Slightly anonymous in order to be free. Bluesky OomaVerse
Emmi Skytén @emmiskyten
969 Followers 2K Following Studies @Helsinkisus on hold because of POTS + Long covid / ME. Previously interesting, now mostly into resting. Member of @remissionbiome.
Susan Fairlie Hall @FairlieHall
1K Followers 3K Following Wanting there to be more recognition for the impact ME/CFS has on peoples lives, hoping that better support will be provided.
Adam Grant_01 @adamgrant_01
248 Followers 3K Following Organizational psychologist @Wharton. #1 NYT bestsellers: HIDDEN POTENTIAL, THINK AGAIN. Podcasts: Re:Thinking & WorkLife @TEDTalks. Former diver and magician.
Rachel Hall-Clifford,... @rahallclifford
1K Followers 843 Following Medical anthropology. Global health. @ Emory University. Parent. Enjoys sightings of the absurd and compassion.
Florian Krammer @florian_krammer
346K Followers 1K Following Viruses, viruses, viruses and vaccines. V5=3xancestral+1x bivalent+1xXBB Professor at the Department of Microbiology Icahn School of Medicine at Mount Sinai
Jammer @acrossthemersey
14K Followers 6K Following Sharks | Climber | Horror | Doomer | LFC | #LongCovid | Medical Professional - Chronic Wounds, Infectious Disease | Opinions My Own
Juul @tiredjuul
515 Followers 601 Following bedridden by Me/CFS POTS longcovid the whole schpiel v severe 23 years old
Dr. Pat Soon-Shiong @DrPatSoonShiong
113K Followers 1K Following Chairman of Chan Soon-Shiong Family Foundation, Exec Chairman ImmunityBio, Exec Chairman of Los Angeles Times
Jeffrey Lubell (EDS, ... @JeffLubell_C19
4K Followers 551 Following I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.
Leo Habets @L_Habets
2K Followers 64 Following Internist Onkologe #MECFS , seit 1988 betreue ich ME-CFS Patienten , Aktuell auch #PostCovid
Julie Sullivan @CureLongCovid
5K Followers 3K Following Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
Lenka @lenka_ags
9K Followers 275 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
Prof. Akiko Iwasaki @VirusesImmunity
213K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Katharina 🦋🍀 @katha1970
1K Followers 3K Following Here for research + info on #Migraines #MECFS #LongCovid #MCS #MCAS #MetabolicHealth #Neuroscience #MedicalGaslighting, hobby songwriter, posts German+English
Elizabeth Warren @SenWarren
6.6M Followers 495 Following U.S. Senator, Massachusetts. She/her/hers. Official Senate account.
Chronically Illumise ... @ChronIllumise
427 Followers 790 Following Lily. #pwME, pwPOTS, Pokémon fan (she/her).
Lene Benedicte @BenedicteLene
1K Followers 791 Following Former musician mostly housebound with #ME. BA in Music. BA in Theatre. 3/4 of a MA in Theatre, had to stop due to MECFS. I write. Languages. Genealogy.
Oksana Pyzik @OksanaPyzikUCL
6K Followers 6K Following Associate Professor Pharm Prac & Policy @ucl🦠@ABSW Media Fellow @guardian🗞️TV Health Pundit 📺 | Founder @UCLFightsFakes💊| GH Adviser/Board Trustee CPA🌍
Eric Topol @EricTopol
679K Followers 607 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
Lisa McCorkell @LisaAMcCorkell
6K Followers 2K Following on twitter/x hiatus. formerly: @patientled | MPP | she/her | natures 10 2022
Julia MV @julialmv
2K Followers 393 Following Senior Program Director @ScrippsRTI & #LongCovid patient-researcher @patientled Let's improve health equity Accessibility is my love language Views are mine
Kamala Harris @KamalaHarris
20.8M Followers 702 Following Always fighting for the people. Wife, Momala, Auntie. She/her. 107 Days available for pre-order now.
Ron Smith @Ronxyz00
44K Followers 8K Following Proud Democrat | Professional MAGA hunter | I have TDS
Christy Collins 🕊�... @sun_in_winter12
4K Followers 1K Following Sharing what I've learned on my own journey ✨ Long Covid, MCAS, Hypermobility✨Tweets educational; not medical advice.
Kurt Eichenwald @kurteichenwald
422K Followers 3K Following NYT bestselling author, veteran of NYT & Newsweek. Bluesky: @kurteichenwald.bsky.social
Rhi @rhirhiarhii
2K Followers 1K Following BSc, PgDip Molecular Biology. Neuroscience Nerd & Science Communicator. Eternally trapped in bed
ChronicIllnessHumor @HumorChronic
5K Followers 2K Following https://t.co/b2LRFsTRox https://t.co/QSzrqdhVhT #chronicillness #autoimmune #funny
Sen. Bernie Sanders @SenSanders
11.8M Followers 2K Following Sen. Sanders of Vermont, Ranking Member of U.S. Senate Committee on Health, Education, Labor & Pensions, longest-serving independent in congressional history.
elle carnitine 🍉 @elle_carnitine
6K Followers 1K Following immunocompromised • made & kept sick by the state • kept alive by my beloved @predi_cam_ents🪳
Guus @guustweet
4K Followers 1K Following #LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱
Prof. Christina Pagel... @chrischirp
180K Followers 915 Following Prof Operational Research @UCL_CORU, . Member of @independentsage. only posting now at chrischirp at bluesky. https://t.co/nNW5zMenx2
Debbie Smith @Samos2C
248 Followers 880 Following
Vincent van Gogh @vangoghartist
213K Followers 253 Following Vincent Willem van Gogh was a 19th century Dutch Post-Impressionist painter. #artbots by @nuwaves_future
Oksana Ivanik Art @ivanik_oksana
46K Followers 37K Following Painting, photography, architecture, graphics, illustrations, sculpture and video. All that is beautiful, attractive, dignified, elegant, gentle, amazing, new
Kopis Pelekis @HopLongCovid
6K Followers 1K Following Former student/amateur lifter. Then #LongCovid #MECFS since 2020, can't walk anymore.
#TheNicotineTest -- C... @TheNicotineTest
6K Followers 621 Following A Patient-Led, Citizen Science Project. Low-Dose Nicotine Patch data collection/sharing for #LongCovid, #MECFS/post-viral disease. Admin: @Canal1point5
Tracey Burgess @TraceyABurgess
3K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Sammie McFarland - Se... @SammieFMc
3K Followers 3K Following Founder @LongCovidKids, & wellbeing coach on pause. “Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.”
Dana Brown @DanaMarinBrown
493 Followers 502 Following Public health nerd. Public pharma advocate. Health & Economy Fellow @DemocracyCollab. Anti-zionist. MECFS. All opinions my own. 🌹♿️
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
@longcovidtheanswers @longcovidanswer
1K Followers 74 Following The CREDIBLE destination for everything Long Covid | Dr. Funmi Okunola MD 🩺 Certified CPD/CEU/CME for Licensed Medical Professionals. Find your answers!
Helen 💚🌱 @Helen_biochem
2K Followers 4K Following #MECFS #LongCovid #POTS Former Biomedical Scientist (specialism in Blood Science) #FBPE 🇪🇺.
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
John Peters @johnthejack
5K Followers 5K Following Unbeliever (political & relig), Wales rugby, #c4news, porridge, #MEcfs johnthejack.peters https://t.co/DO2RA0zRnE
Peter Strachan @ProfStrachan
24K Followers 178 Following Professor of Energy Policy and Sustainability Transitions
Nicholas Boyd-Gibbins... @NBoydGibbins
3K Followers 650 Following UCL | Kyoto Univ. | cell engineering, synthetic biology, iPSCs, data science, long COVID, cancer, genetics and neuroscience @amaticahealth
Tom Kindlon @TomKindlon
15K Followers 621 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrsTrends for United States
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