Em @emawatidreaming
Myalgic Encephalomyelitis + EDS etc | Disability/Human Rights & Climate Change Activist | Feminist | Follow on Instagram @healingseaside Australia Joined October 2010-
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I'm supporting Julian Assange, and have just sent a letter to the US Ambassador to Australia. Will you join me? action.assangecampaign.org.au/?pc=tw
Are you 18 or over and have been diagnosed with #MECFS? MSc student, Paola Carnevale, would like you to contribute to her research project in the field of Personalised Nutrition.
With the 2023 TCS @LondonMarathon just around the corner, Zoe, one of our amazing #LondonMarathon runners this year, has shared a little about why she is running for Action for M.E. Learn more about Zoe’s story and follow her fundraising journey here: ow.ly/zLcv50NuQJa
"Illness post viruses is not new its been around for decades we've got a condition called #MECFS... its been a very neglected area of research." ITV Meridian Facebook discussion - @StaceyPooleITV interviewing @BinitaKane about #LongCovid in Children.
Exactly!
It’s amazing how the pscyhologizers disappear when science discovers the actual biomedical reason for a particular illness. Unfortunately they only do so until the next new illness comes along. And then they’re back with their psychosomatic nonsense again. Every single time.
'The disabled villain: For centuries, fictional narratives have used outer difference to telegraph inner monstrosity. As someone who uses a #wheelchair, I’ve learned you can’t just edit out a few slurs or bad words to fix this – it’s often baked deep into theguardian.com/news/2023/mar/……
Able-bodied Stranger: “you know its really important to think positively when you are sick” Me: “if positive thinking were an Olympic sport or cured my M.E, I’d have 20 gold medals and would have climbed The Himalayas and Machu Picchu 50 times in the past 12 years.”
People with disability never seem to get a break. #Auspol2023
Australian politicians are looking to cut back the National Disability Insurance Scheme to pay for nuclear submarine acquisitions. They really think #disabled people can't push back, or that no one will notice. Let's prove otherwise. #NDIS #DefendTheNDIS
In 2023 no person should have to explain wearing a face mask for their health or the health of the people they love and the community they live in. Ever. Stop.
Ubers, Taxis & Buses in #Australia NEED to be held accountable for denying a disabled person with a service dog access to transport. Drivers need to be educated & fined. #discrimination #disabledaccess @Uber @cityofsydney @cityofmelbourne #abledworld facebook.com/groups/DDA.Pub…
The Burden of ME. Another powerful illustration by Norwegian artist Kristine Paulsen (@KorneliaPaulsen). #MyalgicEncephalomyelitis #MECFS #
The Burden of ME. Another powerful illustration by Norwegian artist Kristine Paulsen (@KorneliaPaulsen). #MyalgicEncephalomyelitis #MECFS #
Coming to a hospital near you soon...
Hey #MedTwitter, how do you explain the stigma and neglect faced by people with #MyalgicEncephalomyelitis, aka #MECFS, for half a century? What are you doing to challenge it? @NHSuk @NHSEngland @pulsetoday @TheDA_UK @gmcuk @BMA_GP @GPonlinenews @TheBMA @JournalGIM @bmj_latest
It's very difficult for people with #MECFS to gather evidence of their disability for benefits/financial support claims when they're treated in a health system that doesn't support thorough testing and the gathering of evidence.
Two possibilities: 1/ The majority of health professionals still think #MECFS is psychosomatic (reflecting the lack of up to date training); or 2/ Health professionals know it's a real disease but are too conceited to admit they've been wrong for decades.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
KT King @KTKINGbooks
2K Followers 3K Following Author of Little Eden novels📚💎awakener🗝 🌏inspirational 😇🤗enlightenment 🌈💎higherconsciousness👽😇compassion 🌈🦄ME/CFS/Fibro🙁🙏💖 RTs 👍 millionsmissing
ME Foggy Dog 💙 @MEFoggyDog
7K Followers 4K Following Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - https://t.co/TNEwofcNnm
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Paula Knight @Paula_JKnight
5K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Ben H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Suzan Jackson @livewithmecfs
4K Followers 4K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Amy @alexandrite113
6K Followers 845 Following Long Covid to very severe ME/CFS to mod/severe ME/CFS. Tweeting into the void. DX'd autistic ✨
James Foulger @jifoulger
2K Followers 3K Following Engineer and the thing that is broken is ME @[email protected]
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Jessica Taylor-Bearma.. @jayletay
5K Followers 2K Following Author of A Girl Behind Dark Glasses and A Girl in One Room. and A Girl Beyond Closed Doors Winner of Best Non-Fiction at The People’s Book Prize She/her
Clare @SmilingClare
2K Followers 2K Following ME since 2005, POTS & hEDS #OUGraduate Often found with my Yorkie X, knitting, laughing, blogging or reading
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Pauline boyd @princesspenny62
417 Followers 4K Following Busy trying to save my life from a Fatal disease from Toxic mold in my Rental home. Owner fatally poisondd me and Retailiaton horroibly for the last 5 years
McSherea @ShereaMc67944
24 Followers 284 Following Can we be good friends? I'm looking for a serious relationship
Mary Shapiro 🌊🌊.. @Shap619Mary
8K Followers 8K Following 💙 Liberal Democrat 💙 Michigan 💙 Survivor of a Rare Cancer 😷 #Myalgicencephalomyelitis #ME #POTS Agnostic - Put No Stock in Religion
bethereificould @bethereificould
605 Followers 1K Following A mirrorbox and map taking messages from people with ME/CFS or long COVID to places they love but can no longer get to #ACEsupported #socialart #missingmillions
Uniquely Me #Resist �.. @PsychicHealerC
146K Followers 158K Following Mom, Wife, #ChronicIllness, #Steelers, Writer, Psychic Life Coach, #LongCovid, #Resist #autismmom #antibullying #daughterofvietnamvet 01/09/21😭via Moderna
LongCOVID Patients Ma.. @pwLCMaine
202 Followers 526 Following Patient-Centric community platform for Long Covid patients in Maine #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
Steph ♿️💝🌹 @Homebird777
1K Followers 5K Following Mum of 3 teens #Disabled #AutonomicDysfunction #PWME #ME #HSD #CFS #Fibro #POTS #ChronicPain #Spoonie #Autoimmune #gobshite #sweary #love4life #fun #GTTO
Alix🏹♿ @3ambird
25 Followers 623 Following 25 ☆ they/them ☆ polyfrag sys ☆ AuDHD, ME/CFS, hEDS, cPTSD+ ☆ Ambulatory Wheelchair User ☆ Rad Inclu ☆ one of the #MillionsMissing
Debi Domantay @DebiDomantay
3 Followers 11 Following
Steve Chalmers @FStevenChalmers
1K Followers 3K Following Let's tear down silo walls in the data center. Spent a decade each in servers and storage, then networking. Consultant to Daedaelus Corp. Retired from HPE.
🦋 WOPR SysProg Hea.. @RealNickHodge
1K Followers 1K Following 🦋 username https://t.co/PK27uj0pVX Carer for a lovely ME/CFS hEDS POTS wife.
Tim Stephens @ProfTimStephens
10K Followers 10K Following Professor of International Law @SydneyLawSchool | Fellow Australian Academy of Law | Councillor @IWCouncil | https://t.co/6BFO6JUmQm
Eliza Charley | Actre.. @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Emma Wooller @WoollerEmma
2K Followers 3K Following Coding is caring. Not that kind of Coder. I told you I was ill.
Bavardlyn @bavardlyn
874 Followers 1K Following Opinions my Own Board member at ME-international. Just doing the best I can with what I’ve got! #pwME https://t.co/tzDK62KM4z
Susan Dougill @SusanD1408
460 Followers 657 Following I am a married mother of one teenage son. I have a wonderful husband who cares for me. I have ME/CFS Fibromyalgia, POTS, peripheral neuropathy & other things
Johnny EV @HoagieHoag
398 Followers 587 Following Space, TECH, EV, outdoor lover. Excited about many technology changes coming over the decade. Patient Advocate collecting spoons #pwME #MECFS
Izayeth Vincent Lionh.. @Izzy_VLH_Rose
13 Followers 377 Following
Andrea Barrett @andreabarrett__
2K Followers 4K Following Artist-Activist 🎨🛡 Patient Rep for NHSBT🫀🫁💙 Co-Ordinator @HeartOfThe_Arts 🎗💕 Also:🐈🌲 #HeartTransplantRecipient #EBV #CancerSurvivor #LongCovid #AuDHD
Mary-Jane Kohler MT(A.. @TruthAbout_ME2
3K Followers 5K Following Formerly athletic homebound Medical Technologist w/33 years post-viral Myalgic Encephalomyelitis #pwME #LC ally 🌈ally 🌊 cats🐈 random symptom generator
Lou @Lucy_x_Lou_
319 Followers 541 Following
Teresa✨ @i_love_bands13
813 Followers 2K Following #longcovid #mecfs lvl 25 //and I'd love it if we made it// the 1975, K-Pop Enthusiast, Indie, love to make new friends so feel free to message me 💫🖤🏳️🌈
Lisa Zett @ME_LisaZett
2K Followers 1K Following #MECFS #Lyme #Democracy #🌈Ally PhD Political Science. I do care. she/her @[email protected]
PurpleSpeedwell purpl.. @PurpleSpeedwell
764 Followers 667 Following Housebound, mostly bedridden with Myalgic Encephalomyelitis, a devastating illness with little funding and no treatment. [email protected]
Jaye Wood @Kitschcreations
171 Followers 328 Following Classically trained pianist and soprano, crocheter, jewellery designer and zentangler.
Dara in Chains @DYork1979
2K Followers 1K Following Loves humanity. Wants freedom of exchange of ideas in a peaceful manner. Needs to find a cure for Vaccine Injury and Long Covid. ME, SPS,POTS, Dysauto, Immun---
The Three Seas Psycho.. @The_Three_Seas
612 Followers 5K Following The Three Seas Psychology Group counsel, coach and consult with individuals, couples, groups, and organisations.
Margo Bertrand @margozbertrand
78 Followers 375 Following ME/CFS since 1990.Ruined my life.Still suffering today, have given up hope of living life again. LOVE God family & friends HATE racism & social injustice.
Winston Blick @winstoncb
3K Followers 901 Following #MECFS post-viral #longhauler | ally of #LongCOVID | quoter of @mecfsquotes | previously, 🚵🏼♂️ 🏂 🏃🏻🏕️ 📖
Garðar M @Gardar_
130 Followers 421 Following Living with #myalgicencephalomyelitis Just one of the #millionsmissing Married to my soulmate; The music keeps me going ❤️ #pwME
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
Nele @NeleHelena
3K Followers 971 Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
Alexandra @AlexBliss101
221 Followers 1K Following Chronic Lyme, Myalgic Encephalomyelitis and a whole host of other not so fun friends! Perpetual lockdown. Housebound 14 years. One of the #millionsmissing
Tina Zed @FoggyTT
1K Followers 2K Following Passionate about nature! survivor of abuse living with a chronic illness. Loving life, friends, family, walking and smiling! #Fibro # Birds #Outdoors #Beach
Sarah O'Connell @SarahOC_MECFS
4K Followers 4K Following ME #pwME patient 10 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Long Covid Advocacy I.. @LCAIreland
2K Followers 3K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
Books and more 📚 @knitting_cats
841 Followers 4K Following Books. More books. And some more books. With side helpings of knitting, tea, and cats. ADHD; fibromyalgia; ME/CFS.
Mike Baldwin @ukhuman1st
993 Followers 3K Following Atheist and humanist with a keen interest in moral and political issues, science, philosophy, nature and photography. If you like what I say, please retweet!
Lawesome @i_am_Lawesome
204 Followers 713 Following From tiktok land. Outspoken disability advocate. Trying to change disability prejudice as far as i can!
Emily Beardall @EmilyBeardall1
3K Followers 2K Following Left pharmacy, now enjoying working flexibly in utilities at home, with energy left for growing food, crafting & gaming #pwME #mecfs #fibro for 35 years
Alisha Whittam @alishawhittam
605 Followers 653 Following Professional Nap Taker & Netflix aficionado. Conquering ME, Endometriosis and De Quervains syndrome with a dash of humour & sprig of sarcasm.
Laura ✨ @lau_danielle99
135 Followers 453 Following BA English Grad@UoN; TA; Mental health advocate; CFS/ME fighter; Book worm and writer; Curious about psychology & animals
ME/CFS/Post COVID 19 .. @ME_CFS_Covid19
55 Followers 291 Following I do research in Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) and Post Covid-19 patients. Anastasios Michos
Roxie Hill @RoxaanH
52 Followers 155 Following Aussie traveler, writer, love all things health and fitness, and simply wants to make a difference in this world- Ambassador for CUFA charity!
FraudListing @FraudListing
1K Followers 1K Following Redditors against pseudoscience | Fraudlisting is about exposing unproven and nonscientific treatments for myalgic encephalomyelitis (including Long Covid)
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
KT King @KTKINGbooks
2K Followers 3K Following Author of Little Eden novels📚💎awakener🗝 🌏inspirational 😇🤗enlightenment 🌈💎higherconsciousness👽😇compassion 🌈🦄ME/CFS/Fibro🙁🙏💖 RTs 👍 millionsmissing
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
ME Foggy Dog 💙 @MEFoggyDog
7K Followers 4K Following Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - https://t.co/TNEwofcNnm
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Paula Knight @Paula_JKnight
5K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Ben H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Mary Quigley @maryeilmicdom
2K Followers 2K Following 'Pleasant lady lawyer' | Forced into retirement by complex chronic illness | Sport, history, language and humour. #Celtic 🍀
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Amy @alexandrite113
6K Followers 845 Following Long Covid to very severe ME/CFS to mod/severe ME/CFS. Tweeting into the void. DX'd autistic ✨
James Foulger @jifoulger
2K Followers 3K Following Engineer and the thing that is broken is ME @[email protected]
Jessica Taylor-Bearma.. @jayletay
5K Followers 2K Following Author of A Girl Behind Dark Glasses and A Girl in One Room. and A Girl Beyond Closed Doors Winner of Best Non-Fiction at The People’s Book Prize She/her
Clare @SmilingClare
2K Followers 2K Following ME since 2005, POTS & hEDS #OUGraduate Often found with my Yorkie X, knitting, laughing, blogging or reading
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Heritage: Why? @heritage_why
3K Followers 1K Following Why are we so obsessed with preserving colonizer architecture at all costs?
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Emma Wooller @WoollerEmma
2K Followers 3K Following Coding is caring. Not that kind of Coder. I told you I was ill.
CureME - UK ME/CFS Bi.. @mecfsbiobank
4K Followers 214 Following Driving clinical and biomedical research for recognition, diagnosis and treatment of ME/CFS at @LSHTM. Home of the UK ME/CFS Biobank. Advocating for #pwME.
ME Research UK @MEResearchUK
5K Followers 10 Following ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
Wading through treacl.. @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Alan Kohler @AlanKohler
144K Followers 1K Following Founder of Eureka Report, finance guy on the ABC news and columnist for The New Daily
Debbie Seymour @debbie_seymour
2K Followers 779 Following This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving. #LongCovid #MECFS #POTS
Eliza Charley | Actre.. @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Tracey Spicer AM GAIC.. @TraceySpicer
59K Followers 2K Following Global keynote speaker and emcee. Multiple Walkley Award winning journalist & broadcaster. Buy my new book about AI bias, MAN-MADE: https://t.co/SMrISiV0fZ
Alice @Alice_mecfs
1K Followers 687 Following #MECFS for almost a decade now. Hoping to connect with others & find a way out.
NotRecovered @Not_Recovered
6K Followers 206 Following We share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.
Dudley Dinsdale @RocknRollYorkie
1K Followers 120 Following Doggy-Blogger - Puparazzi - Chick Magnet.
Johnny EV @HoagieHoag
398 Followers 587 Following Space, TECH, EV, outdoor lover. Excited about many technology changes coming over the decade. Patient Advocate collecting spoons #pwME #MECFS
Kaitlyn Blythe @BlytheByName
2K Followers 936 Following ♿️🏳️🌈 Writer, performer, producer. Host of Just A Spoonful podcast. FKA Kaitlyn Plyley | She/her | Not accepting unsolicited advice at this time
Jo @SEPfieldPatient
606 Followers 1K Following
Charlie Park (she/the.. @MeanderingPark
3K Followers 1K Following Meanders about 🌈 Autism 🥄 Chronic illness 🐱 Cats ♿ Disability 😷 Avoiding COVID
Kornelia Paulsen @KorneliaPaulsen
1K Followers 236 Following On Twitter to share my illustrations to raise awareness about M.E. | 💟 and 🔁 to support #pwME | IG: illustrating_ME | Please be aware of copyright 🫶🏼🇳🇴
Bavardlyn @bavardlyn
874 Followers 1K Following Opinions my Own Board member at ME-international. Just doing the best I can with what I’ve got! #pwME https://t.co/tzDK62KM4z
Mary-Jane Kohler MT(A.. @TruthAbout_ME2
3K Followers 5K Following Formerly athletic homebound Medical Technologist w/33 years post-viral Myalgic Encephalomyelitis #pwME #LC ally 🌈ally 🌊 cats🐈 random symptom generator
Eric Topol @EricTopol
694K Followers 589 Following physician-scientist, author, editor. Ground Truths: https://t.co/YhatcBT0hA
Tim Hutton @TimHuttonAu
2K Followers 1K Following Part time teacher (by choice) | Occasional freelance writer | Full time sick/disabled person (ME/CFS) | Published in various places. Cis, but 🏳️⚧️ ally
Anna @halcionandon
2K Followers 5K Following Inquiring mind derailed by #SevereME #LongCovid #Hypothyroidism #Migraine #POTS #ChronicPain & more #FBLC. Health in hell mode-NEED SAFE HOME, ADVOCATE, GP
Lou @Lucy_x_Lou_
319 Followers 541 Following
Teresa✨ @i_love_bands13
813 Followers 2K Following #longcovid #mecfs lvl 25 //and I'd love it if we made it// the 1975, K-Pop Enthusiast, Indie, love to make new friends so feel free to message me 💫🖤🏳️🌈
Lisa Zett @ME_LisaZett
2K Followers 1K Following #MECFS #Lyme #Democracy #🌈Ally PhD Political Science. I do care. she/her @[email protected]
Nia | The Chronic Not.. @chronicnotebook
11K Followers 960 Following Here to smash societal stigmas about #chronicillness & #disability💊 Life with #ibd #eds #migraine #fibro #dysautonomia & more 🦓 IG 49K📷 Join Discord⬇ she/her
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
Tara Rae Moss @Tara_Moss
107K Followers 10K Following Author of 14 books. THE WAR WIDOW and THE GHOSTS OF PARIS 📖 Keynote speaker. Holistic and (Norse/Nordic) shamanic practitioner @ https://t.co/kckC5iMsrE
Jaye Wood @Kitschcreations
171 Followers 328 Following Classically trained pianist and soprano, crocheter, jewellery designer and zentangler.
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
PurpleSpeedwell purpl.. @PurpleSpeedwell
764 Followers 667 Following Housebound, mostly bedridden with Myalgic Encephalomyelitis, a devastating illness with little funding and no treatment. [email protected]
Katie @katie_andME
1K Followers 552 Following 19 year old bedridden for over 3 years with severe M.E. ill since 2017 #ME #MECFS #severeME #verysevereME
Professor Ahmed Hanki.. @ahmedhankir
106K Followers 7K Following Hon. Visiting Professor Cardiff University, UK. Consultant Psychiatrist, Canada. Views mine. Pre-order my book ‘Breakthrough’ Link 👉 https://t.co/47DmyicVTn
Harry Styles. @Harry_Styles
37.3M Followers 2K Following
Neo Walk @neowalksticks
4K Followers 83 Following At Neo Walk we make handmade acrylic walking sticks in gorgeous colours and designs. Feel proud of your mobility aid and walk with style and confidence.
Karen Denmark @kmdenmark
2K Followers 3K Following Maternity RN ‘til #mecfs arrived. Admin at #MEpedia. Tried #Ampligen. #Abilify is helping. USAF Nurse Corp vet. Mostly tweet ME CFS news. Joined Jan 2015
Dara in Chains @DYork1979
2K Followers 1K Following Loves humanity. Wants freedom of exchange of ideas in a peaceful manner. Needs to find a cure for Vaccine Injury and Long Covid. ME, SPS,POTS, Dysauto, Immun---
M_P @MchP66592467
3K Followers 2K Following 35y/o w Post-Acute SARS Cov2 Syndrome/ME/CFS,POTS,MCAS.Fmr Fin Analyst-now unable 2 work. ME/CFS=biggest Med scandal in history.Experiments w novel therapeutics
Senator Lidia Thorpe @SenatorThorpe
50K Followers 1K Following Senator for Victoria 🌱 Gunnai • Gunditjmara • Djab Wurrung✊🏾 Authorised by L Thorpe, Parliament House, Canberra
The Greens NSW @GreensNSW
8K Followers 2K Following The only party powered by people - not fossil fuels. Sovereignty never ceded. Authorised by A. Croft for The Greens NSW. 19a/1 Hordern Pl Camperdown NSW 2050
Progressive Internati.. @ProgIntl
147K Followers 295 Following We unite, organize, and mobilize progressive forces. Join us.
Action for M.E. @actionforme
14K Followers 2K Following We take action to end the ignorance, injustice & neglect faced by the 250,000 #pwME in the UK. Online: Mon-Fri 10-4. Helpline: 0117 927 9551 Mon-Fri 10.30-3pm
#MEAction Network UK @MEActNetUK
7K Followers 609 Following UK branch of global grassroots movement @MEActNet. Empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!
#MEAction Network @MEActNet
21K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJiWith the 2023 TCS @LondonMarathon just around the corner, Zoe, one of our amazing #LondonMarathon runners this year, has shared a little about why she is running for Action for M.E. Learn more about Zoe’s story and follow her fundraising journey here: ow.ly/zLcv50NuQJa
"Illness post viruses is not new its been around for decades we've got a condition called #MECFS... its been a very neglected area of research." ITV Meridian Facebook discussion - @StaceyPooleITV interviewing @BinitaKane about #LongCovid in Children.
Sometimes having #severeME doesn’t mean you can’t go to the beach. It means you have horrendous after effects for ages if you do. Sometimes I choose to do things & deal with those after effects, just so I can experience a moment of living. I get judged on it from all directions
Alice is home. And as relieved as we are. It was an appalling, inhumane experience. @RCHTWeCare Drs disregard the specialist because he is private, even tho he’s been working 40yrs. So what now? Alice is left to die at home? #pwME #VerySevereME #MECFS
The racism in this country knows no bounds. If Sky has any decency they must take it down and apologise. Solidarity to Lidia - this is disgraceful.
I’m not linking to it because it is absolutely abhorrent and sickening. But Sky News has published a video on one of its main social media accounts referring to an Indigenous senator as having ‘all the grace of a [feral animal]’ There is no excuse. None.
@j_b_kennedy It's the lack of accountability that gets me. They never have to answer for what they've done; just move on to the next, and the next.
It’s amazing how the pscyhologizers disappear when science discovers the actual biomedical reason for a particular illness. Unfortunately they only do so until the next new illness comes along. And then they’re back with their psychosomatic nonsense again. Every single time.
- The Age Pension is a welfare payment. You can call it other things, but it certainly is and has always been welfare. - The previous Government did not change the law to 'define' the Age Pension as a welfare payment. - Age Pension eligibility has nothing to do with your taxes.
Dear Aunty ABC, the Age Pension IS NOT a welfare payment. Why are you using LNP rhetoric of former federal government? @BreakfastNews @abcnews #AgePension
It seems quite possible that dry British humor is not what most Americans are used to. This isn't rude. This is Hugh Grant, just being Hugh Grant. (This and when he referred to himself as basically a 'scrotum' later on stage, against the beautiful Andie MacDowell.)
hugh grant wants no part of this dumb shit
Slowly returning to my beloved Elise after several years unable to do more than walk past her with a huge degree of sadness for what was... Today's offering - Chopin Nocturne B flat Minor Opus 9 No 1. Good to be back at the "ivories".
My becoming a doctor journey: 2000 - Leave my family behind in Lebanon at 17 years of age. I arrive in the UK & my first job is working in a kebab van. People ask if I can speak English. 2003 - I secure the grades to get into Manchester medical school despite the constant…
Australian politicians are looking to cut back the National Disability Insurance Scheme to pay for nuclear submarine acquisitions. They really think #disabled people can't push back, or that no one will notice. Let's prove otherwise. #NDIS #DefendTheNDIS
Australian #pwME #MECFS (Melbourne-based): Photographer friend of mine is taking film/portraits of patients from diverse range of ages & backgrounds ahead of #MEawareness day in May. (1/2)
💙Thank you for your comments & sharing. I see you. I believe you. I stand with you. I’m so sorry for what you are facing. Right now I’m resting after a medical appointment - I plan to come back online and reply to as many comments as I can when I’m next able. Go gently friends x
Despite best efforts of many brilliant minds, government funding for Long Covid in many countries seems to continually be directed towards studying ‘lifestyle’ & ‘wellness’ factors. — As someone who has had relapsing-remitting MECFS for 12 yrs, I can share a few experiences:🧵1/6
In 2023 no person should have to explain wearing a face mask for their health or the health of the people they love and the community they live in. Ever. Stop.
Interesting. I wonder how patients will evidence this? Perhaps we should start recording consultations... #MECFS
@PeonyLeaves905 @Dan_Wyke @NHSuk @NHSEngland @pulsetoday @TheDA_UK @gmcuk @BMA_GP @GPonlinenews @TheBMA @JournalGIM @bmj_latest In Massachusetts “diagnostic overshadowing” is a term for gaslighting and it is illegal. I hope patients there will start hitting back at bad doctors. masslegalservices.org/system/files/b…
Another excellent piece by @JacquelineMaley Albanese talks proudly of his single mum. Time to put his money where his mouth is smh.com.au/politics/feder…
It's cover reveal day! I've been working for more than six years on this book, about the amount of bigotry embedded in artificial intelligence. Click here to pre-order MAN-MADE: How the bias of the past is being built into the future tinyurl.com/2b3wzh8c #MANMADE
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