Dr Anna Briochette @AZebress
Retired specialist physician. #MedEd. Too many illnesses incl #EDS #Sjögren #CVID #HKPP. Apparently I’m a "Walking medical textbook". Isn't that fun. #NEISVoid France Joined December 2019-
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#NEISVoid #disabled Anyone have any recommendations for #WalkingBikes please? (Like in the photo). Pros and cons? Are the electric ones much better? Are they compatible with spinal problems? Any advice gratefully received, thanks.
A day in the life of #NEISVoid #ChronicIllness #ChronicPain. And then, when friends call me & ask how I'm doing, I somehow always answer "I'm fine, how are you?"... 🤷♀️
If you watch UK BBC #CallTheMidwife you might enjoy this extract from a newspaper review today 😂 - "There was also fears for Sister Monica Joan who is currently ill with hepatitis and what this would mean for her husband Cyril". (Where have all the sub-editors gone? 🤔)
I have 4 #autoimmune diseases. Classic features of each but atypical #autoantibodies so no internist has ever offered effective Rx. When my AAB titres rise they say "Increase doesn't mean anything". When the titres fall, "Look! - you're improving". Skewed logic = bad care 😠
Are my eyes playing tricks or has Twitter just changed it's font? Aaaand ........ it's now less easy to read 👎
Woke up today with overwhelming 😰 muscle & joint #pain. Pain-nightmares yet again. Love them... And to discover I'd removed my joint braces overnight, I guess my asleep brain thought they were causing the pain. That's a disappointing new one for me... #AutoImmune #HKPP #OA #EDS
#IWillNeverUnderstandTheFrench A stranger, seeing our willow trees being trimmed, comes to door asking to have cuttings (basketmaker). We course said yes. She arrived this morning, spent *3 hrs* invading our privacy, left her rejects in a messy pile, & drove off without a word 🤷♀️
Help please! Anyone any ideas for Rx of severe #Sjögren #tendonitis? I'm maxed on oral & topical anti-inflammatories & analgesics. All movement makes pains worse. TENS & ice packs not practical 'cos so many sites. Anyone been helped with e.g. physio, tapes, braces etc? Thank you.
Wish me luck please? Today is the day I see my GP and will have to mention that I am withdrawing from follow-up appointments with 7 of my current 10 specialists. I am finally Respecting the Law of Diminishing Returns. He may not see it that way 😂 #NEISVoid
Very pretty this evening. (Can you tell it's absolutely bloody freezing?)
Specialist said 6 months ago would send me scrip (GPs can't prescribe it) for new Rx "within 2 weeks". 3+ hrs of my time since then sorting 5 reminders via her staff. Today recd 2nd *incorrect* version of the scrip... No explanation or apology from her. I really truly give up...
#NEISVoid After 2 years of chronic incompetence, delays, mis-diagnoses etc, I have decided to withdraw from follow-up for 7 of my diagnoses. (I'll keep the Rx & docs that I 100% know do me good). Wonderfully freeing, yay 🎉 (But I will have to tell my GP I'm doing that... 🤔)
Pre-reg (1st yr Intern) UK 1970s. Routine alternate 'long weekends' on-take (emergency admissions) + on-call (covering 60 in-patients). 08h00 Fri to 18h00 Mon. In 4 of those 13 duty w/e I never slept, 82 hours. Risk to patients (and my health) never discussed. Times change... 👍
Pre-reg (1st yr Intern) UK 1970s. Routine alternate 'long weekends' on-take (emergency admissions) + on-call (covering 60 in-patients). 08h00 Fri to 18h00 Mon. In 4 of those 13 duty w/e I never slept, 82 hours. Risk to patients (and my health) never discussed. Times change... 👍
Same old, same old, conversation with Internal Medicine Prof re #Sjögren. Every few months. "Anything on the horizon for disease modifying Rx?"#DMARD "Sadly not, no recent trial successes. It's a shame you don't tolerate higher dose #steroids or #hydroxychloroquine"... 😢😡
I could listen to eternity to #MayaAngelou speaking. Her voice is the richest, deepest, smoothest magic. As is what she actually says. And her laugh. Oh my... I shall get me a playlist to help me cope with the next hospital admission.
#ParisFashionWeek #DojaCat #Schiaparelli I think this is truly the most disgusting 'fashion statement' I've ever seen. Not least because it looks like some sort of horrible haemorrhagic tropical infection. I pine for Dior in the 1950s...
Welcome to the world of women with #SVT and/or #POTS. This damaging farce is pretty routine. Best purchases of my life were hand-held ECG recorder & recording pulse oximeter. Their traces usually make Emergency behave properly. My concern is that many can't afford to buy these.
I've a (healthy) friend who often (sober) texts me late, even 02h00. Just social. I've asked >6 times not to text after 22h00 unless she's in trouble. Last time she replied "Then don't take your phone to the bedroom, or switch it off"... Is she forgivable? 🤔
#NEISVoid I'm thinking of exploring #VirtualReality kits. For distraction from #pain e.g. virtual motorbike races, skiing, scuba diving, flying, travel. And, used with a TV, for very gentle #disabled physical exercise. I know nada about VR. Any suggestions please? Thank you 👍
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
The Tweedy Mutant @the_tweedy
44K Followers 1K Following Corin • PhD studying cats, gender, and domesticities @UBCGeog • literal mutant (EDS, etc.) • AuDHD • crip/queer/trans • he/him • thetweedy on 🦋
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
Renuka Dhinakaran @renudhinakaran
6K Followers 602 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Nicole Lee Schroeder,.. @Nicole_Lee_Sch
18K Followers 5K Following #Disabled and #FirstGen historian. Research on #DisHist, #HistMed, and #VastEarlyAmerica. Assistant Prof at Kean University. Tweets = my views alone
Oh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
Jeannie Di Bon @jdibon
10K Followers 1K Following Internationally recognised EDS/HSD Movement Therapist. 15 yrs EDS experience. Author, Speaker, Educator. IMM, The Zebra Club & Moovlite. MSc Pain Mgt
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue disorder caused/worsened by a virus. Ppl w/ ME/CFS & EDS often suffer from Craniocervical Instability & Occult Tethered Cord.
Amanda Hinkle, MD, FA.. @AHinkle628
3K Followers 1K Following mom. wife. pediatrician. advocate. warrior. she/her. hEDS, MCAS, dysautonomia, CCI, TMJD. eating disorder survivor. personal views, not medical advice.
Cortney Gensemer, PhD @CortDoesScience
7K Followers 936 Following Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education
Zahra Khan (she/her) .. @hellozeik
5K Followers 2K Following Aerospace Engr. Alum: @NASAPersevere @NASA_TESS 🤖 🚗 Interests: patient-centric healthcare, antiwar in STEM. Cofounder @feministfitna blog @SmacksForehead
SEDSConnective @SEDSConnective
5K Followers 3K Following Sympt.Hypermobility EDS HSD NEURODIVERGENT vol. Charity / health/education/care/work Chair/Founder Jane Green MBE @JGJanegreen Patron Dr Eccles @Bendybrain
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Alissa🕸hEDS manage.. @badelastic
785 Followers 280 Following multimedia director 💻🎨| this is my alt acct for sharing research & ideas re: managing #EDS #hEDS #HSD #POTS #MCAS #TMD + dynamic disabilities. she/her 🖤
EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
Alex B @AlexDesignsIt
1K Followers 5K Following she/hers • queer • disabled • graphic design • nonprofit • solidarity forever • clEDS • ADHD • C-PTSD • ischemic colitis • cat mom • nature lover • science!
Pauline boyd @princesspenny62
426 Followers 4K Following Busy trying to save my life from a Fatal disease from Toxic mold in my Rental home. Owner fatally poisondd me and Retailiaton horroibly for the last 5 years
Nina A Tomei, MD @doctormom63
4K Followers 2K Following Life derailed #Sjogrens #MECFS #POTS #LongVax Child with #LongCovid Surviving Not Living. Sick Not Tired. Tweets not medical advice. We just want our lives back
Kacey Cyp @kaceycyp
39 Followers 809 Following
Autoimmune Chat @AutoimmuneChat
693 Followers 1K Following A patient led initiative bringing autoimmune patients together to share experiences, support and raise disease awareness. Join our #autoimmunechat community
Karin Friederic @karinfriederic
334 Followers 1K Following medical anthropologist (global health, intl dev't, human rights, GBV) * assoc prof WFU anthro * co-founder The Minga Foundation * tweets r mine * #pwme
Lawrence Alexander �.. @LawrenceAlxndr
131 Followers 403 Following My account for chronic illness and disability knowledge and networking. Tech/journalism: @LawrenceA_UK
Epistemic Leap @EpistemicLeap
27 Followers 147 Following “Against stupidity, the gods themselves contend in vain.” Avoiding COVID like the plague. Practicing equanimity amid postmodern insanity & ecological collapse
leslie @lesliewtexas
100 Followers 296 Following
zebramama @zebramama2
2 Followers 430 Following
lh73 @arctic_var
640 Followers 5K Following
Jane Moriarty @JaneMoriarty7
1K Followers 2K Following JD/MA Healthcare Ethics/Law Prof. sci.evidence, neurolaw, legal/judicial/healthcare ethics. Yes, I am the real Prof. Moriarty. opinions mine.🦓
Charlie LMSW Expert o.. @CharlieShrimp
535 Followers 2K Following Her/She/Mum of They/Them/Honey-Pie Lives in Splendid Isolation #GravesDisease #EDS sucks.
Wired and Tired | She.. @JayExperiences
547 Followers 2K Following Voice Actor, Speculative Author, Chef | She/Her | 25 | #ActuallyDisabled | Totally Not Fae lover: @A_curious_sheep
Adriana Ferrari @FerrariPsy
172 Followers 226 Following Trainee Clinical Psychologist | Interested in trauma and attachments, social inequalities, systemic interventions and hEDS | She/They | BLM
melisa resch 💜 @melisaresch
218 Followers 492 Following she/her. writer. filmmaker. producer. check out The Line. https://t.co/O9OJSDD2rz
NVR2Old2BeFangirling .. @2old2BFangirl
70 Followers 313 Following She/her - 40 something woman with a TV/Movie addiction trying to contain her inner fangirl #bekind #akf #spnfamily #walkerfamily #outlander
Sick Girl Probsss | A.. @SickGirlProbsss
618 Followers 555 Following 👽I'll be your disabled alien today🛸 •Coping with lifelong chronic illness & pain Co™• |🦓 MALRO • EDS • IC • POTS • IBD • C-PTSD • FIBRO • MCAS • && more fun.
Linda Johns @LindaJo96673156
216 Followers 691 Following Furious old bat and social justice campaigner. Ex teacher, adviser. Trained professionals in awareness of DA/ child safeguarding.Working class Cantab.
Edwina Kiernan 🎗�.. @EdwinaKiernanHQ
1K Followers 3K Following Award-Winning Author #ChristianFiction | #ACFW | Not ashamed of the gospel: Jesus saved my life | #EDS #POTS #MECFS | I #StandWithIsrael 🇮🇱
Ali Godfrey @xandraem
399 Followers 4K Following
Robin Sweeney @RobinSweeney
119 Followers 2K Following Queer and cranky. Living (sorta) with ME/CFS since 1991. Sonoma Strong. Mental health therapist. He/him.
pajama butch 🇵🇸.. @chronic_dyke
1K Followers 3K Following Nat • 27 • nonbinary dyke • ME/CFS, EDS, narcolepsy, LC • AuDHD • jewish antizionist • scraping by on ssi • communist • white settler private @pajamabutch
Kenny_LC @Kenny_LCbio
305 Followers 820 Following Long hauler (nov 20) w faith in 🔬 🧪 Pandemic Theme: Save, Save, Save M.E. (Queen 🎼) Team 🆑 👊🏻 MCAS, SFN, microclots + endoth 🩹+⚡️platelets #coagulonaut
VotingGenie.Com @votinggenie
1K Followers 4K Following Voting Genie is a Super Pac dedicated to change how our health system inhumanely deals with those who suffer from chronic pain. Please follow so we can win this
Edweeena @eddiemundo82
215 Followers 919 Following Rural GP (in sleep mode), musician, boxer (was), #longcovid #neurodivergent 🏳️🌈 She/They
Physiocure Physiother.. @Physiocure1
812 Followers 3K Following Physiocure | Team of Chartered Physios & AHPs| Holistic approach | Special interest #hips #shoulders #hEDS #HSD| Owned by @higo_anna
The Chronic Health Co.. @TheCHCoach
66 Followers 322 Following COMING SOON Women's Chronic Health Coach & PT Specialising in Endometriosis & ADHD. Insta & TikTok: @Thechronichealthcoach 🇬🇧
katetwitchell @katetwitchell
69 Followers 800 Following
Claire @Clairabelle765
42 Followers 314 Following Reg'd Nurse. Fence sitter on much 'til I have the facts - learned from the best, cats. Animals make so much sense. Hedgehog rescuer, just because. EDS/POTS/MCAS
Harmony4MA @Harmony4MA
54 Followers 471 Following Justice/Equity Advocate. Disability/Human Rights. Peace/Animal Lover. The idea that some lives matter less is the root of all that is wrong w/ the world-PFarmer
lynne disabled @DisabledLynne
92 Followers 4K Following Never give up always smile share positivity all the time living with a disability
Inner Surface 🪻 @ISurface
609 Followers 420 Following Errance médicale + MICI/RCH + SAMA / 💜 Cinéma, Plantes, Drag, Gôche Medical errancy since 2K21 + IBD/UC + MCAS - FQtoxicity - Solidarity with Long Covid
エーラス・ダン.. @EhlersDanlosJP
191 Followers 212 Following エーラス・ダンロス症候群は組織を形成するコラーゲンなど結合組織成分の先天性の代謝異常疾患です。 #不登校 #慢性疲労症候群 #過眠症 を高頻度で併発します。 医療関係者の認知が非常に低く、医療関係者に否定を受けてしまい適切な診断と治療が遅れる傾向があります。 @NPOKaminSupportが運営中。
T. R. & Tasha BUCK @TrTashantr
49 Followers 332 Following
ChronicallyBeautifulD.. @ChronicallyBea2
99 Followers 208 Following Support, Art, Inspiration from Chronically Beautiful Artists! Be the Change! Help others by Helping Yourself!
John McFadden, M.D. @drjohnhaiti
4K Followers 3K Following Pediatrics, Pain Med(ret) McFadden, Dr. John. M.D. https://t.co/skuUBGMf7R…
Kristin 🇺🇦🇮�.. @Kristin67377787
1K Followers 4K Following Classical Ehlers Danlos Syndrome CCI, OTC,Spinalfusion ME/CFS,CVID, mito,HyperPOTs,GP, SFN,MCAS. #ActuallyAutistic,Disability,animal rights, #EndTTI #NAFO🇺🇦
Anne @chronicAnn
420 Followers 450 Following
Katharina 🍀 @katha.. @katha1970
878 Followers 2K Following Here for research + info on #ChronicMigraines #MECFS #LongCovid #MCS #MCAS #ChronicPain #Neuroscience #Psychology #MedicalGaslighting, posts German & English 🎶
Michelle Henry @MichelleddjjmlH
898 Followers 2K Following Enjoy learning new things. CPP, Spondylosis, Lupus, Fibro, Arthritis, Laminectomy👎, sense of humor.😁
DasIstME @BobundDaisy
1K Followers 2K Following Psychologin, bis 2016 spez. in Therapien bei #ASS, seither arbeitsunfähig aufgrund ME, seit Covid schwer erkrankt #MECFS #LongCovid
TheCreativeNERDD | La.. @anamariayesdesn
2K Followers 5K Following She/Her Timeblind AuDHDist, Blogger, Content Creator, CEO at TheCreativeNERDD - host of the Low on Spoons Podcast
snaphappy @snaphappy
648 Followers 2K Following Problem solver; attorney in past life, currently a consultant; missed my calling as a liberal political commentator; Sixers fan
b on wheels♿️ ⸆.. @bendybeee3
107 Followers 316 Following ♿️ queerly shouting aggressively in monotone, into the void. disabled asf. cEDS, ME/CFS, SWIFTIE. needed a place I could bitch & moan✨ they/she
Callirhoé @Callirhoe_
2K Followers 5K Following Activiste et malade chronique/Parisian chronically ill activist. Santé, antivalidisme, énergie et climat. #EDS. Jane Austen, fantasy, SF fan and reader. She/her
The Grieving Project .. @GrievingProject
544 Followers 1K Following A musical audiobook by @aoedemuse invites you to grieve (losses from #chronicillness or other life changes) so you can go from surviving to THRIVING.
ToriBell, MPH @frocksoffantasy
907 Followers 446 Following 35, liberal, pansexual, polyamorous, childfree, disabled, atheist, feminist, cat enthusiast, nerdy, BDSM weirdo who is naked on the internet.
stable finally, getti.. @bennessb
27K Followers 693 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. find me on 🦣: @[email protected] she/her.
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
The Tweedy Mutant @the_tweedy
44K Followers 1K Following Corin • PhD studying cats, gender, and domesticities @UBCGeog • literal mutant (EDS, etc.) • AuDHD • crip/queer/trans • he/him • thetweedy on 🦋
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
Charis Hill | they/th.. @BeingCharisBlog
39K Followers 3K Following Disabled. Queer. Living in forced poverty. Writer, speaker, cat theydy, gardener. Punny.
Renuka Dhinakaran @renudhinakaran
6K Followers 602 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Nicole Lee Schroeder,.. @Nicole_Lee_Sch
18K Followers 5K Following #Disabled and #FirstGen historian. Research on #DisHist, #HistMed, and #VastEarlyAmerica. Assistant Prof at Kean University. Tweets = my views alone
Alissa Zingman MD MPH.. @DocZing
5K Followers 1K Following PRISM Spine and Joint, https://t.co/xU10wz4Q5O, Research https://t.co/1kUMpVueSJ, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
Oh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
Jeannie Di Bon @jdibon
10K Followers 1K Following Internationally recognised EDS/HSD Movement Therapist. 15 yrs EDS experience. Author, Speaker, Educator. IMM, The Zebra Club & Moovlite. MSc Pain Mgt
Hypermobility MD: Dr .. @BluesteinLinda
8K Followers 662 Following 🩺 Pain & inflammation specialist 🦓 Ehlers-Dani’s, HSD & MCAS 🎙Founder Bendy Bodies Podcast ⚕️@mayoclinic trained 🚫Not medical advice.
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue disorder caused/worsened by a virus. Ppl w/ ME/CFS & EDS often suffer from Craniocervical Instability & Occult Tethered Cord.
Amanda Hinkle, MD, FA.. @AHinkle628
3K Followers 1K Following mom. wife. pediatrician. advocate. warrior. she/her. hEDS, MCAS, dysautonomia, CCI, TMJD. eating disorder survivor. personal views, not medical advice.
Sparrow @UntoNuggan
11K Followers 3K Following [email protected]. bendy (POTS. MCAS. hEDS?) + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them
Cortney Gensemer, PhD @CortDoesScience
7K Followers 936 Following Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education
La France moche @lafrancemoche
80K Followers 0 Following On en a gros. Envoyez-moi vos horreurs locales en message privé, que tout le monde en profite.
Terrible Maps @TerribleMaps
1.8M Followers 1K Following The home of terrible maps with a pinch of humour [email protected]
Men in Blazers @MenInBlazers
304K Followers 3K Following Men in Blazers Media Network Independent Global Football Coverage 🌎 Football, Passion, Empathy, Courage 💙 🎧 Podcasts 📺 TV Show 💻 YouTube 📰 Newsletters
We Want Plates 🍽 @WeWantPlates
148K Followers 1 Following The global crusade against serving food on bits of wood and roof slates, chips in mugs and jam-jar drinks. Buy the book: https://t.co/6hLuaCJKUU
Fit Test the Planet @FitTestMyPlanet
7K Followers 88 Following Crowdsourced adversarial motion resilience tests for masks, serving the public interest. https://t.co/YctK1mxGr6
Transport Committee @TransportCttee
26K Followers 625 Following The Transport Select Committee is a cross-party group of MPs in the @HouseofCommons that scrutinises the work of @transportgovuk. RTs ≠ endorsements.
Harmony4MA @Harmony4MA
54 Followers 471 Following Justice/Equity Advocate. Disability/Human Rights. Peace/Animal Lover. The idea that some lives matter less is the root of all that is wrong w/ the world-PFarmer
Menna Rawlings @MennaRawlings
34K Followers 4K Following Diplomat. British Ambassador to France and Monaco. Former 🇬🇧 High Commissioner to 🇦🇺. Mum of 3. Sports fan, esp #ChelseaFC. London Welsh 🏴.
Flightradar24 @flightradar24
1.1M Followers 622 Following Track air traffic in real time from all around the world! Apps: https://t.co/AnZhJUIrBg | FAQ: https://t.co/WkTgAaePHs | Support: https://t.co/BomORktp7R
Latest in space @latestinspace
1.2M Followers 6 Following Reporting on space events in real-time. Sub to our newsletter for more interesting news https://t.co/h6E31ucTCX 📩
Bad Medical Takes @BadMedicalTakes
280K Followers 54 Following Posting the worst medical takes. Have a submission? DM or @ me. #MedTwitter Same name on Bluesky/Threads/Mastodon
Angel @Acap42
2K Followers 2K Following Surviving on spite & Eurovision hype She/her 💖💜💙 @acap42.bsky.social @[email protected] 😷🛡️🥄🦓
Dr Liz O'Riordan @Liz_ORiordan
67K Followers 9K Following Writer - 'Under The Knife' 'The Complete Guide to Breast Cancer' | Motivational Speaker | Podcast - So Now I've Got Breast Cancer | Trusted Information Creator
MyMigraineLife (Sarah.. @MyMigraineLife
6K Followers 6K Following Patient advocate #migraine #pots 🧠Health & happiness seeker 💫Product reviews, discounts & life stories on blog ⬇️ #milesformigraine advocacy & family programs
Recherche Delaverite @RDelaverite
156 Followers 368 Following Searching for the truth; finding surprising, life-changing answers. She/her
Kate Hemion 🇺🇦�.. @kate_hemion
1K Followers 3K Following 💙#VoteBlueEveryTime #LoveMyKids❤️ #LGBTQ🏳️🌈 #BLM #History #Knitting #ADHD #CPTSD #Mountains🏔#Sailing⛵️ #SlavaUkraini 🇺🇦🇺🇸🇬🇧 Be nice to people.
Health Service Journa.. @HSJnews
99K Followers 3K Following The UK's leading resource for healthcare leaders. Winner AOP best specialist media brand 2017. Listen to the free HSJ Health Check podcast: https://t.co/5jZZ1NXHZp
James Wharton @jameswharton
9K Followers 2K Following Reporter - BFBS/@ForcesNews. Former soldier. Author of Out in the Army. All views mine.
La Chaîne Météo @lachainemeteo
104K Followers 1K Following ☀ ☁ ☂ Prévisions météo 24h/24 et 7j/7 accessibles sur la chaîne TV via Canal (chaîne 160) et consultables au sein de notre site et de nos applis gratuites ☀ ☁ ☂
The Hypermobile Physi.. @hEDSPhysicist
1K Followers 3K Following #Bisexual PhD Physicist & industry engineer blogging through #ChronicPain with #hEDS #MCAS #dysautonomia. Tweets not medical advice. #BLM Speaks English, French
Sebastian Francis @reinformist
323 Followers 462 Following Impartial. Independent. Analysing current events and themes in politics and the market. Follow those you don't agree with. Telegram: @reinformist
Neuro Sjogrens @NeuroSjogrens
2K Followers 704 Following Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice. RT's appreciated, helps spread the word!
Seeking Crystal Clari.. @migrainedude
156 Followers 323 Following I'm a young person living with physical disability and chronic illness (mainly refractory chronic migraine). I'm here to to learn more and support others.
Jennifer Mcdonald @claracluckpwme
175 Followers 1K Following MyalgicEncephalomyelitis since 2009 (vaccine induced)
DivergentPerspectives @DivergentPrsptv
414 Followers 979 Following reader, gardener, mother, wife, teacher, lifelong student, passionate abt humanity & science 🏴 🇦🇺 🦓 🧠 (she/her) also on other socials 😉
Jazz @thepotsghost
44 Followers 134 Following Disabled nurse. POTS MCAS etc etc. Prev? CFS/ME. That flushed tachy bubble life. 👻🧊 the.pots.ghost on threads/gram
Fightback Against FND @FndFightback
1K Followers 4K Following FND Warrior 💪🇬🇧 Down, but not out! Bringing more awareness to the debilitating effects of Functional Neurological Disorder (FND) Coffees warmly welcomed 👇
Will Graham @WillWGraham
16K Followers 6K Following Showrunner/writer/director, A League Of Their Own, Daisy Jones and The Six, Mozart In The Jungle, others. Queer, non-binary and proud. He/They.
Dr. Jennifer Cassidy @OxfordDiplomat
188K Followers 33K Following Irish • Diplomacy and Tech Lecturer @UniofOxford • A.I Expert - War Crimes - Cyber War • Former Diplomat @UN @EU • TED Speaker • Insta: @mynameisjennifer
Sarah Cohen Solomon, .. @stcohen112
1K Followers 723 Following Pediatrician, healthcare & disability advocate, writer, artist. #hEDS and friends. Good medicine starts with #empathy. Opinions my own. She/her.
Steve Chalmers @FStevenChalmers
1K Followers 3K Following Let's tear down silo walls in the data center. Spent a decade each in servers and storage, then networking. Consultant to Daedaelus Corp. Retired from HPE.
🍉 sentient heating.. @arlovergrown
531 Followers 2K Following 🏳️🌈🥄🏳️⚧️24 (they/them). disabled queer person with exactly 4 coping mechanisms and a lot of candles. EDS & co, type 1 narcolepsy, ND.
Shruti Chopra - Footp.. @FootprintsNB
406 Followers 212 Following Chronic health blogger & YouTuber (https://t.co/wfpY3c81SL). Sharing my journey with #endometriosis, #PCOS, #adenomyosis, #EDS, #MCAS, #Fibro etc
Laura McCall @mrsmacbiogal
888 Followers 3K Following Mom, biologist, teacher, concerned citizen, bird nerd
Tracy Livecchi @TracyLivecchi
376 Followers 411 Following Clinical Social Worker, psychotherapist, consultant, writer, mental health advocate, born with a congenital heart condition
Trigeminal Neuralgia .. @TN_UK
2K Followers 302 Following National Charity helps with Trigeminal Neuralgia & facial pain https://t.co/HUYKAG8RbU @aneetaprem MBE Chairs Medical Advisory board @SinanBarazi & @g_lambru
#ALeagueOfTheirOwn Qu.. @alotoquote
2K Followers 8 Following hourly quotes from a league of their own (2022). fan account.
Robin Hahn @robinhahnsopran
436 Followers 604 Following Super enthusiastic lyric soprano, YouTuber, and disability advocate | hEDS | queerly joyful | #ChronicallyIllCreatives | she/they
Sarah Clark @sarah_clark_84
984 Followers 3K Following Patient Expert. Studying MSc Neuropsychology; Writer; Photographer; Yogi; Aspiring Floating Researcher. ❤️🐱#hEDS #MALS #MCAS #Dysautonomia #LateDiagnosedAutism
Sonic J (she/her) #BL.. @sonnic42
320 Followers 701 Following Disability advocate, animal rescuer, grower of flowers in the desert. She/her
CAT,DO 😷 @ClareSail
281 Followers 597 Following Wife, mother, gardener, old dog adopter, retired anesthesiologist, pro-equality advocate. she/her 🏳️🌈☮️🇺🇦
Caitlin Moran @caitlinmoran
850K Followers 3K Following On tour this June, talking about What About Men? Tickets: https://t.co/r8gQ0nmexD
@EM_RESUS If she even got as far as to do an EKG
@AZebress I looked into the Alinker and was not impressed with its handling on hills. I think it’s great on level ground, but the width could be problematic in crowds. I use a power chair for longer distances, and urbanpoling.com walking poles for shorter ones.
@AZebress The thing with bikes of any kind is that your arms are in front of you in a fairly static position for extended periods. That makes my neck spasm. It’s why I chose a chair over a scooter. Also the bike seat. Just ouch. But I am a big person.
It’s this afternoon! 2.15pm #TinselGirl is back on @BBCRadio4 for it’s 6th instalment! Have a listen bbc.co.uk/programmes/m00…
It's ✨psychosomatic✨.
If 99% of allergists / immunologists refuse to believe MCAS exists, what is their explanation for the severe allergy-type symptoms – sneezing, red eyes, rashes, wheezing, food intolerance & more – clearly occurring in #LongCovid patients? They must have an alternative hypothesis.
I went through their multi-week pain management course a few years ago, and it was *all* stuff like this. I still have a whole binder of this crap. But hey, no one can say I was non-compliant! 😅
Not my original content, but here we have Kaiser Permanente’s list of ways to treat your excruciating chronic pain. We know they bought Group Health, funders of PROP, so no surprises. But the absurdities are inane. My faves: lava lamp, silver sneakers, and box toed shoes.
In my 10+ years of co-survivorship, doing life with @DGlaucomflecken through 2 separate cancers, 1 SCA and fighting off his death with 10 mins of #CPR, only ONE (1) of the medical professionals we interacted with has ever asked how I was doing. Meet Roger. authors.elsevier.com/a/1giY02p-l5Vhe
@stkirsch Women don't want to make deals with creepy men on planes. It's not complicated.
@AZebress This is making me wish I looked good in men’s clothing but my boobs and hips ruin it. Lol. Sending to spouse though. Then maybe I can steal it. 😂 Thanks!
#DisabilityTwitter, specifically those with chronic pain and/or sensory issues: what are your favorite comfortable clothing items? You know, the ones you buy multiples of if you can afford it? Links appreciated! Bonus if it’s sustainable & from a minority-owned/inclusive business
with consent (it’s mine) Now disabling 1st CMC joint pain What shall i do?
🤡🎪🤹🏻🤸🏻
Finally got most of my tests back. Despite borderline EKG with ST abnormalities, high d-dimer, lung granuloma, hypokalemia, chest pain, shortness of breath, & crushing ongoing fatigue, MD decided problems are stress-related & advised me to exercise more🏃♀️& eat more veg🥦.
On what occasion would you wear this? #onwhatoccasion
@arisonsned The other 364 days are International Men's Day aren't they? 🤔
⬆️ My Disabled Parking Petition has been approved for signing! @socialpwds @Adam_Pearson @All4InclusionPd @PurplePoundShow @fnd_advocate @lernintbflexibl @FndFightback @UOD_SONM @HollysGotThis @AZebress @Lmtdjourney @ConnectFnd @FND_Together @FndRecovery @FndPortal @vickyjane64
@Autistic_Lia Integrity. Honesty. Earnestness. Standing up to authority. 'Doing the right thing' These are all things/behaviours media (TV especially) have taught me to 'desirable' in a person, but IRL, I only ever earned backlash for them.
I suspect I would be less depressed if I didn't read #Sjogrens studies daily.
A common medical myth is that NHS prescription lengths should be 28 days. This is nonsense. Prescription lengths should be tailored to the drug and the patient. For many drugs and for patients with stable medical conditions, longer prescription lengths are entirely appropriate.
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