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The M.E. Trust @METrustUK

We have merged with @actionforME and are now known as Action for M.E. Healthcare Services, providing holistic care and support for people with ME/CFS. metrust.org.uk United Kingdom Joined November 2010
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  • Followers
    855
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    491
METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

@lc_cornell29 Thank you 😊

METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

Thank you all for supporting The ME Trust over the past 10 years. Tomorrow, we will merge with Action for M.E.. We will continue to offer our existing Doctor, Physiotherapy, Counselling and Chaplaincy services and support under the name Action for M.E. Healthcare Services.

METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

We are excited to be combining the power of our organisations and strengthening the services we offer. During 2022 we plan to scale up our provision of clinician-led, holistic health and wellbeing support to help more people with M.E. and their families. @actionforme

The M.E. Trust retweeted
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Action for ME @actionforme

5 years ago

The 4th episode of our Learn About M.E podcast is now live. In this episode, we hear from medical students about their experience of learning about ME/CFS in their medical schools. buzzsprout.com/1717775?fbclid…

The M.E. Trust retweeted
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ME/CFS Priority Setting Partnership @PSPforMECFS

5 years ago

We've now been able to send responses to all the applicants for the final workshops. We're so grateful to have so many excellent people joining us and wish we could have had all of you! These workshops are sure to create some fascinating dialogue.

The M.E. Trust retweeted
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ME Research UK @MEResearchUK

5 years ago

Researchers from @LivUni are conducting a survey looking at the experiences of transcutaneous vagus nerve stimulation in people with ME/CFS. Information sheet (bit.ly/3Ig88pO) & survey (bit.ly/3tAw8Qd) Open 'til 11/2/22 #pwME #MECFS

The M.E. Trust retweeted
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DecodeME the ME/CFS Study @DecodeMEstudy

5 years ago

.@SonyaChowdhury (Webinar) Please do go to the M.E. charities like @actionforme and @MEAssociation if you need help with getting a diagnosis of ME/CFS. If you do get a ME/CFS diagnosis (including following COVID-19 infection) you can take part in DecodeME. #LongCovid

The M.E. Trust retweeted
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Action for ME @actionforme

5 years ago

We have received a request from a journalist exploring experiences of access to services and support during lockdown. Do you think you can help? If you can shed light on your experience, drop us a comment or email us at [email protected].

The M.E. Trust retweeted
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DecodeME the ME/CFS Study @DecodeMEstudy

5 years ago

🔴Epstein-Barr virus (#EBV) can play a key role in causing #MS, a recent study showed. EBV is known to play a role in causing some cases of #MEcfs (through causing glandular fever). #DecodeME will look for evidence that genetic factors make EBV more likely to trigger ME/CFS.🧬

The M.E. Trust retweeted
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DecodeME the ME/CFS Study @DecodeMEstudy

5 years ago

You're invited to our Thurs 10am webinar, with: ➡️launch update ➡️@lifeofpippa_ @theslowlane_ME @chicaguapa explain how #MEcfs patients & carers help tell others about the study JOIN: *Zoom (Register at: us02web.zoom.us/webinar/regist…) *Live on Facebook (Recording available later.)

METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

"I appreciate how kind, sympathetic and thoughtful the doctor was." #patientquotes #METrust #MECFS #pwME

The M.E. Trust retweeted
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DecodeME the ME/CFS Study @DecodeMEstudy

5 years ago

Have questions about the study? Join this month's webinar on Thurs morning: us02web.zoom.us/webinar/regist… (We'll post the recording and transcript when they're available.)

DecodeMEstudy Profile Picture

DecodeME the ME/CFS Study @DecodeMEstudy

5 years ago

🔴 Great news: DecodeME opens for first participants this month. 🧬 Please RT! Phase 1 opens on January 31 for around 550 people. 🙏Thanks so much for your support. We can't wait to share the study with you! 💙 #MEcfs #PwME #MyalgicE #MillionsMissing decodeme.org.uk/great-news-dec…

The M.E. Trust retweeted
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Doctors with M.E. @DoctorsWithME

5 years ago

Putting it into Practice: What NICE ME/CFS means for GPs A thread ⬇️ doctorswith.me/nice-gp-update/

The M.E. Trust retweeted
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Dan 🦠➡️🧠🔥 @Dan_Wyke

5 years ago

Encouraging healthy people to exercise is fine but please remember that exercise is contraindicated for people with #MECFS and many #LongCovid patients. #r4today

The M.E. Trust retweeted
SonyaChowdhury Profile Picture

Sonya Chowdhury @SonyaChowdhury

5 years ago

An exciting few weeks ahead w this & @DecodeMEstudy launch. 2022 is the year for people with #ME #MECFS to finally receive the investment & focus they more than deserve. More research, more funding, more understanding, more healthcare…let’s end the ignorance, injustice & neglect

actionforme Profile Picture

Action for ME @actionforme

5 years ago

We are excited to announce that we will be merging with The ME Trust and launching our new Action for M.E. Healthcare Services on 1 February 2022 @METrustUK

METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

@hopefullizzy @actionforme Yes, it will. We actually hope to increase our service provision, including clinical /doctor support.

METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

@EvolvingME2021 @actionforme Thank you for sharing and we take your input aboard for consideration.

METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

We are excited to announce that we will be merging with @actionforme and launching our new Action for M.E Healthcare Services on 1 February 2022. Find more details and information on our merger here: metrust.org.uk/our-merger-wit… #METrust #MECFS #pwME

METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

@feather1 @actionforme Thank you 😊

METrustUK Profile Picture

The M.E. Trust @METrustUK

5 years ago

@feather1 @actionforme We can confirm that nothing will change for you and your place on the waiting list, as we will continue our services without any disruptions.

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