Jody Pressman @JodyPressman
Canada Joined June 2009-
Tweets9K
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Followers334
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Following80
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Likes14K
I sometimes wonder if there are too many #ALS " non-profits" and if their funds would be put to better use funneled into one common interest instead of spread a hundred different directions?
@GWSmith14 Good for u I m ready to die only 11 months after dx
Her name was Hanna. Hanna Lambert. Hanna needed #whateverittakes to be done. Hanna is the reason we fight for #AMX0035, Hanna is the reason we fight for #Nurown. On 10/17/2017, Hanna lost her battle with #ALS. And at 17 years old, there was nothing that could be done.
The only real ALS Twitter account is @derekgunz. Raw. Brutal. Honest. No bullsh*t. If Derek has an evil twin it surely is @bsw5020
The only real ALS Twitter account is @derekgunz. Raw. Brutal. Honest. No bullsh*t. If Derek has an evil twin it surely is @bsw5020
Can I go to another state to get M A J D services I can’t live like this #als fam please help
I need help dying my care team ignores me I a burden to my family. I need MAID my state does not have it pleasè help me
@MinoSean Another promising trial that won’t be available to most of us #pals while we are still alive. It’s disheartening for me to read hope in the future.
NU-9: "we hope to start with healthy volunteers in a Phase 1 clinical trial early in 2023,” A Phase 2 clinical trial in people with ALS may begin in early 2024. “It is a long process — POSSIBLY 10 TO 12 YEARS! alsnewstoday.com/news-posts/202…
@sabrevaya @ChrisSnowCGY @kelsieswrites Chris had this fortunate outcome because he has a genetic marker 99% of us do not have & which has over 30 years of research behind it. This allowed him to get a treatment which slowed his progression very early in his disease. There’s no way to follow this w/o a time machine.
@keaninloomis @ALSCanada @NISHwmn ALS is an important cause but ALS Canada is a charity scam who only helps its healthy executives and employees. Money raised for them is money wasted. It does not improve the lives or outcomes of Canadians dying from ALS.
Got my peg tube it. I hate it it hurts like hèll I cànt keep food do
I won’t. Good night moon @bsw5020 @sabrevaya @SteveGleason
I won’t. Good night moon @bsw5020 @sabrevaya @SteveGleason
#als has destroyed me. I lost everything we even had to get of our dog. How can I die. I m a usrleee piece of shit. No dad or husband I have no control of my body
@VPResearch_ALS @temerityTM I will be gone soon and you will keep on milking the als cow, along with calaneet and @Lance4good . but rest assured that karma will get you when you least expect it . @PatrickNelson2
#als has won I m waving the flag. I feel so horrible. Every fiber og me is destroyed I m ready t to die I m ducking the life. Out of my family
@JodyPressman @PodolskyRony @Cylebo @VPResearch_ALS @genge_angela @ALSAction @KristianaSalmon @PatrickNelson2 Oh, no. Rony was one the original pack at @als_now back in 2019. Devastated.
One of the hardest things of #ALS is knowing that every day you get worse. There are no days ahead that your physically going to get better. #EndALS #everypointmatters @DrCaliff_FDA
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Kathy Collier @KathyCo74123384
920 Followers 1K Following ALS Advocate. Proud Mom of an Autistic Son. NEVER Forget Richard my ALS ANGEL.
ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
alsHATER @HaterAls
1K Followers 968 Following als hater MM lover Impossible is an option One woman army
Nicole McCabe @NicoleALSJurney
2K Followers 650 Following 35 year old PNW girl battling #ALS I'm here to fight with all my might. My babies need me! We deserve a right to live. 💙 join me in my battle
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Farmstrong @farmstronginfo
1K Followers 4K Following Foodie, #wine-y, fan of good UX & #techcomm. Together we can save my husband & hundreds of thousands w/ #ALS. #EsriMaps #DyingWaiting #BLM #LGBTQIA #mirfanda
I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 870 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Shaun Kalpakoff @skalpakoff
873 Followers 464 Following I am living with ALS. Father to 1. #teamshaunyboy https://t.co/fBhBLCeJpK
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Elizabeth McCormick @emmccormick2005
492 Followers 625 Following Hope is a verb. Hope is the only alternative in the face of uncertainty. Today more than ever. Mobilize. Fight. Make right real.
Thusliez @thusliez33924
18 Followers 1K Following
f @f8434784752
78 Followers 180 Following Science, biotech, macroeconomics, etc. No financial advice
Nick Core @__Crypto_Core
1K Followers 5K Following
Giannis__ @Gia8788
96 Followers 135 Following Poisoned and deceived from the COVID-19 vaccine causing me a mutated muscle wasting disease. Proud Father, Husband.
Corinne Clavet💙�.. @CorInne_Clavet
199 Followers 563 Following née en mars, mariée depuis +50 ans, 4 enfants, 1 gendre, 2 brus, 10 petits-enfants , 1 chien
Shanell Mercadel @Sweetpea0299
346 Followers 2K Following mother, grandmother, techy, Samsung lover....
Not drinking the Kool.. @Kool_Aid_Free
2K Followers 4K Following Not drinking the Kool Aid about a COURT-CERTIFIED violent, enabled liar, abuser, wife-beater & rapist. There is a mountain of evidence. Open your eyes to see...
Gale Dhaliwal @gdhali
3 Followers 704 Following
Susan @SamOC5
48 Followers 912 Following
Joel Young @Jyoung4216
164 Followers 2K Following
S. Livingstone @IndianowlRusso
26 Followers 344 Following Relationship come and go but a BEST FRIEND is forever...cherish it!
TetraMouse @TetraMouse
335 Followers 1K Following I design & manufacture computer peripherals & gadgets for persons with disabilities. Improving my products & the quality of life for my customers since 2005.
Stephanie @samclean821
12 Followers 111 Following
Miles Davis @MilesDavi
40 Followers 335 Following
Jeffrey Glowaczewski @JeffreyGlowacz1
2 Followers 1K Following
Susanne Gore Flukinge.. @SEGoreFlukinger
146 Followers 907 Following
Mihir @terminal_coder
150 Followers 204 Following 36. Programmer, developer. Living with ALS (Amyotrophic Lateral Sclerosis). Grateful for each day.
JayB @bjh1776
746 Followers 2K Following photography, woodworking, hiking, camping, bicycling, reds, bengals, cats, anti MAGA-Trump
Picapau67 @pjalves10111967
154 Followers 1K Following All conventional and unconventional thoughts and views are my own. Hungry for more…Radically open-minded!
Deborah Goldstein @Deborah18055733
2 Followers 46 Following
Chris @Chris52572695
281 Followers 1K Following The world is a dangerous place, not because of those who do evil, but because of those who look on and do nothing.
Lying Lauren Hoston P.. @EinsteinSarah
379 Followers 286 Following Lauren Houston is a disease faker, fraud & a liar. Stop giving her money.
César Pulex 🇬🇹.. @PulexCesar
414 Followers 2K Following I have met great loss. I lost my son🕊💙 to Amyotrophic Lateral Sclerosis ALS ELA w/C9orf72 February 26 2022 #forever18 #tooyoung #Madridistaforever #Forever12
Cathy DeLoach @cathy_deloach
141 Followers 2K Following
Amy Bonnaure @AmyBonnaure
42 Followers 758 Following
Big Don Keedic @BigDonKeedic7
166 Followers 921 Following
Jon Trauth @JonTrauth
63 Followers 351 Following Dr. Jonathan Trauth is a Visiting Assistant Professor in the Department of Family Science and Social Work at csu
Brass Bathtub @BrassBathtub
107 Followers 563 Following Theatre&Arts Company. Find and make art where you least expect it. « An anarchic journey out of town » The Guardian
jamborg @Jamboree44
41 Followers 548 Following
SuzWakewa @SuzWakewa
52 Followers 472 Following
Reena Kalik @msmaureen90
457 Followers 5K Following
Rosey Strollo Clow @RoseyStrolloClo
240 Followers 2K Following
Sandy Kennedy @SandyKennedy1
30 Followers 122 Following
Debbiedeb @Debbiedebs5
42 Followers 107 Following
IRENE @indwaru
434 Followers 1K Following I miss the person I used to be before my Michelle completed suicide.
Jessica Katz @JessicaKatz6
73 Followers 480 Following Fighting for a cure (though I'd even settle for treatment) for ALS in memory of my dad.
Brett Martine @brettmartine
611 Followers 4K Following There are two types of people in the world - those that walk into a room and say 'here i am' and those who say 'there you are.' - Abigail Van Buren
Loving my life @hhfamily
76 Followers 1K Following
Lee @LeeWaab
16 Followers 721 Following
Karen Reivich @KarenReivich
4K Followers 1K Following Study and teach Positive Psychology and resilience at UPENN. Spend a lot time looking at the world through my camera, which changes how I look at the world.
GJ @Joeybronko
274 Followers 4K Following
Paul Mackey @PaulMac17861882
1 Followers 350 Following
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Nicole McCabe @NicoleALSJurney
2K Followers 650 Following 35 year old PNW girl battling #ALS I'm here to fight with all my might. My babies need me! We deserve a right to live. 💙 join me in my battle
BrainStorm @BrainstormCell
5K Followers 777 Following BrainStorm Cell Therapeutics, Inc. (NASDAQ: BCLI) is a clinical-stage biotechnology company developing autologous cell therapies for neurodegenerative diseases.
Corey Polen 🧑🏽�.. @CoreyPolen
2K Followers 227 Following Very Blessed husband and father. Rolling w/ #ALS. #LetItBe #PromisingPathwayAct @venmo: ALSfund Tweets expire. Get'em while hot. (King/My Royal Majesty)
ALS TDI @ALSTDI
10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
Gregory Erb, MD @GregErb5
311 Followers 357 Following MD, former D1 football player (KU Jayhawks), laid back yet passionate, on mission to improve lives and effectively treat/cure neurodegenerative disorders
Scott Smith @ScottFightsALS
9K Followers 497 Following Father, husband, gym owner, ALS warrior and storyteller. Founder of BodySmith and Flex On ALS. 💪
HopOnACure @HopOnACure
526 Followers 61 Following Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOv
Zac Brown Band @zacbrownband
1.6M Followers 4K Following New music out now! Listen to "Tie Up" and "Pirates & Parrots" here: https://t.co/aFFWYBuYW6
JohnDriskellHopkins @johndhopkins
9K Followers 1K Following Musician, Actor, Husband, Daddy, Biker, Georgian, Water Lover, Founding member - Zac Brown Band - NEW Christmas Album available on my site.
Angelina Fanous @NotSoVanilla
5K Followers 1K Following Tweeting under the influence of butter & #ALS.
Derek Koval @derekgunz
3K Followers 273 Following Husband. Father to 2 boys 1 girl and 2 angels. fighting ALS and RP Blessed by those around me.
Senator Mike Braun @SenatorBraun
49K Followers 349 Following Main Street businessman & Hoosier U.S. Senator for Indiana Newsletter signup: https://t.co/itGCdTNjna
Sir JP @sirdotjp
357 Followers 62 Following Video Editor / Content Creator https://t.co/aGQfLfoRxR // https://t.co/nIekeBttFQ [email protected]
Ksenia Kastanenka, Ph.. @kastanenka
1K Followers 2K Following Neuroscientist @MGHNeurology @HarvardMed. PhD @CWRU. Fighter against #Alzheimersdisease. Writer. Speaker. Scholar. https://t.co/RF3K23u0pL….
Mr A-Game @MrA_Game
4K Followers 338 Following Content Creator from 🇦🇺 I make silly videos about Nintendo games, and I love The Legend of Zelda and anything Mario! 310K YouTube subs
Jay Lombard @MindfulNeuro
373 Followers 325 Following Acclaimed Integrative Neurologist, Author, Key Note Speaker. Connecting Science to the Soul
Bridget & Rebecca And.. @BridgetRebecca3
492 Followers 529 Following Momma Bear 🐻 fighting for the lives of her entire family #EndALS
Michele Stellato @shellymckenna
1K Followers 540 Following Communicator. A fan of kindness and living in the moment. ALS advocate.
Lyle Ostrow MD PhD @LyleOstrow
692 Followers 1K Following ALS clinician scientist @TempleNeurology @ALSHF. Director, TUHS NM Path Lab & ALS PM Core collab w CDC. Chair, DoD ALS Research Programmatic Panel. Views my own
Fernando G Vieira @FGVoneforty
559 Followers 868 Following Dad. CEO & CSO at ALS TDI. Talk less, work more. Opinions expressed on this account are my own.
ALS ONE @alsone_official
949 Followers 634 Following Our world leaders in ALS research & care have united 2 advance critical research towards a cure while improving the qual of life of individuals living w/ALS now
Coya Therapeutics @CoyaTx
2K Followers 95 Following Coya (Nasdaq: $COYA) is unleashing the power of Tregs to tackle neurodegenerative and autoimmune diseases.
ALS Online Database @alsod_bot
141 Followers 99 Following Twitter account for the ALS Online Genetics Database, hosted at King's College London. Follow for information on research related to ALS genetics.
CRU@The Neuro @NeuroCRU
358 Followers 254 Following Clinical Research Unit (CRU) at The Neuro - a leading centre affiliated with McGill, conducting 130 trials/year in all areas of neurology. https://t.co/soFL7yUzjF
Hadasit Bio-Holdings @HadasitBio
1K Followers 1K Following A publicly traded subsidiary (OTCBB: HADSY) of the Hadassah University Hospital, Israel's foremost medical research center, promoting medical breakthroughs.
Zhenghong Gao @ZhenghongGAO
170 Followers 1K Following
Prilenia @PrileniaTx
2K Followers 244 Following Clinical stage biotech company focused on developing novel treatments for neurodegenerative and neurodevelopmental disorders
Neuralstem Inc. @Neuralstem_Inc
2K Followers 3K Following Neuralstem ($CUR) is a clinical-stage biotech company focusing on developing treatments for CNS diseases & neurodegenerative conditions. http://t.co/47lmSOvpAo
Katharine Nicholson @KNicholsonMD
406 Followers 150 Following ALS clinician researcher at Massachusetts General Hospital with specific interests in markers of disease in early familial ALS and the gut microbiome in ALS
Maria Tereza Fleury �.. @tfleurym
154 Followers 661 Following
David Balmer @balmer79
162 Followers 1K Following
Lynsay Balmer @LynsayBalmer
334 Followers 557 Following My page is dedicated to helping MND/ALS sufferers get the treatments they deserve! help fight!
The Neuro @TheNeuro_MNI
13K Followers 3K Following Official account of #TheNeuro, Montreal Neurological Institute-Hospital. Follow for the latest on transforming research & care, improving lives via #OpenScience
Greg Bauer @GJBest1982
718 Followers 433 Following Devoted father and husband to the best girls on earth. Penn State Football alum. ALS advocate and warrior.
Dr. Rudy Tanzi @RudyTanzi
24K Followers 1K Following Alzheimer's Disease Researcher; Professor of Neurology, Harvard Med School & MGH; Keyboardist; Best Selling Author: Super Brain, Super Genes & The Healing Self
Seelos Therapeutics @seelostx
1K Followers 28 Following Seelos Therapeutics, Inc. (Nasdaq: SEEL), is a clinical-stage biopharmaceutical company $SEEL
Biohaven @biohaven
2K Followers 751 Following Biohaven is a modern pharmaceutical company that is guided by science and inspired to change the lives of people with unmet medical needs.
Project MinE @_Makeityours
2K Followers 598 Following Groundbreaking genetic research for #ALS #MND by patients for patients. Mining your human DNA and ultimately find a cure!
Derik Steyn @Fred_Steyn
640 Followers 535 Following Researcher, scientists, proud dad; seeking a greater understanding for disease heterogeneity in #ALS #MND and cause for loss of appetite in disease
Keith Mayl @DrMayl
535 Followers 659 Following MD, PhD. Expertise in neurodegeneration with a focus on ALS-FTD. Medical Director at Servier.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
QurAlis @QurAlisCo
497 Followers 232 Following QurAlis Corporation is a private clinical-stage #biotech driving #Precision #Medicine breakthroughs for #ALS, #FTD, and other #neurodegenerative diseases.
Sadri-Vakili lab @GSVLab
540 Followers 480 Following Laboratory focused on molecular mechanisms that cause neurodegeneration. Interested in developing therapies & biomarkers for ALS, HD, & XDP. Co-founder @in_pwn.
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Tranquis Therapeutics @TranquisTx
43 Followers 1 Following Revolutionizing the treatment of neurodegenerative and aging-related diseases by targeting myeloid immune cell dysfunction.
Biogen @biogen
46K Followers 250 Following Official global newsroom account for Biogen, a leading biotech company pioneering innovative science since 1978. Community guidelines: https://t.co/56frPQHf74
Christy A. @momwithwheels
1K Followers 1K Following I am wife and mom of 2. Doing my best as a mom with Lou Gerhigs disease (ALS).
Paul Smith @Smitty_PJ
161 Followers 320 Following I live in Dartmouth Nova Scotia and suffer from Motor Neurone Disease aka ALS also known as Lou Gehrig's disease. ALS Champion and Warrior
Verge Genomics @VergeGenomics
2K Followers 166 Following Next-generation medicines from human genomics
GREAT NEWS! The House Labor-HHS Appropriations Committee has allocated $75M in funding for the #ACTforALS next fiscal year. This funding would go a long way in fulfilling the promise of ACT for #ALS! Thank you Committee Chair @rosadelauro & Ranking Member @TomColeOK04! #EndALS
Coya Therapeutics Announces Peer-Reviewed Publication of its First-in-Class Regulatory #TCell-derived #Exosomes and their #Therapeutic Potential in #Neurodegeneration and #Inflammation Related Diseases (@FrontImmunol). News release: bit.ly/3tWccGS #Biotech #Immunology
@derekgunz me too brother. The system has failed us terribly.
@jonstew1982 I’ve had the exact thought many times stew
I sometimes wonder if there are too many #ALS " non-profits" and if their funds would be put to better use funneled into one common interest instead of spread a hundred different directions?
@GWSmith14 Good for u I m ready to die only 11 months after dx
Her name was Hanna. Hanna Lambert. Hanna needed #whateverittakes to be done. Hanna is the reason we fight for #AMX0035, Hanna is the reason we fight for #Nurown. On 10/17/2017, Hanna lost her battle with #ALS. And at 17 years old, there was nothing that could be done.
@moonshadow407 @leanne_yacyshyn @ScottFightsALS @Mayuri_Saxena @bsw5020 @sandymorris333 I just want to die
Can I go to another state to get M A J D services I can’t live like this #als fam please help
I need help dying my care team ignores me I a burden to my family. I need MAID my state does not have it pleasè help me
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A record-breaking year for #BigFreeze.💙 Congratulations to @NealeDaniher + the @FightMND team for raising an incredible $19.8M!
My favorite place to be is inside your hugs #ProudDad #NotTodayALS #FathersDay
@Yuehan218 @derekgunz @US_FDA ALS does not stop, especially sporadic. Deep in the woods of the unknown. So complex. A bureaucratic government agency that doesn't give a shit.
Cool #FathersDay gift alert: A framed .wav file of "I Second That Emotion" performed by Smokey Robinson. It was the song playing in my car BOTH times @JamieLW8 and I left the birthing center with a brand new baby girl. #FlexOnALS
@lamhanson @MinoSean Ya .. 2024 .. that is an insult .
@MinoSean Another promising trial that won’t be available to most of us #pals while we are still alive. It’s disheartening for me to read hope in the future.
NU-9: "we hope to start with healthy volunteers in a Phase 1 clinical trial early in 2023,” A Phase 2 clinical trial in people with ALS may begin in early 2024. “It is a long process — POSSIBLY 10 TO 12 YEARS! alsnewstoday.com/news-posts/202…
#als has destroyed mry entire body in 10 months there is no explaining how hard this is there is no worse death sentence. It drstroys fwmilun #teadytodie #thereisnihope @US_FDA fucking give us a chsnce
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